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CLL with lambda monoclonal gammopathy
Blood Cancers & Disorders | Last Active: Apr 24, 2023 | Replies (12)Comment receiving replies
You sound like my oncologist he said the same thing as you, you may not never need meds but you need to be followed with blood tests. I see my lab results and think this is bad but my oncologist says I will tell you when it is bad and when we should worry until than if ever, just be happy.
You lifted my spirits. thanks.
Are there any oldies on here besides me??????
Replies to "You sound like my oncologist he said the same thing as you, you may not never..."
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I’m happy I could lift your spirits! I’ve had more bloodwork in the past 4 years than most people have in a lifetime so I’m pretty familiar with the whys and whats! 😊 You sound like you have a really great doctor and he’s right, he’ll be the first to know and can do the worrying for you. My oncologist said the same thing…he and his staff will do my worrying, I should just get on with life. And I am! In fact I just had my 4 year follow up after acute myeloid leukemia and a bone marrow transplant and my doctor said I’m one of the healthiest patients in his practice. So that made my day!
As for oldies?? I prefer to call us women of age…and men too! I think quite a few of us in the blood cancer groups are in our late 60s to 90s+ so you’re sure to be talking to any one of the members in our support groups at some point. Some members state their ages but honestly, most of these diseases strike us at any stage of our lives so we’re all over the place with life experiences.
To find other members with your similar diagnoses, when you are in the Blood Cancer Support group, you can type in the little search box words such as CLL or MGUS, a whole list of discussions will pop up with those words highlighted. You’ll be able to pick and choose the conversations you’d like to read. If you want to reply directly to one of the members, simply click the blue reply box in that post and it will automatically notify that person. Or, you can also make sure a person sees the post by including their @name.
A couple of other non-health groups that are fun:
~What’s outside your picture window today?” https://connect.mayoclinic.org/discussion/whats-outside-of-your-picture-window-today/
~What are you reading?
https://connect.mayoclinic.org/discussion/what-are-you-reading/
~Let’s go walking. Join me for a virtual walking support group!
https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
~Music Helps Me
https://connect.mayoclinic.org/discussion/music-helps-me/
~Art for Healing
https://connect.mayoclinic.org/discussion/art-for-healing/
Have you perused any of these groups??