Hi @afterthetreatment.
I do not have Hep C. I'm the Community Director of Connect. When I moved your thread here, I was hoping that past members @airtruck54@daveniles@bobuloops might return to share with you. I will continue to look for people who have Hep C and will join this discussion.
My keys. I try hang them up in a keyboard that spells KEYS it cuts down on frustration. But what I am experiencing is not remembering what I did a few days ago it brings on axniety and rage at times. Early on in my treatment I experienced it. Very scary. Treatment ended almost eight years ago. I m great ful for being negative for hepc but wasn't in formed enough by Drs. I was severely depressed from the beginning. My mother and sister died within weaks of each other. I had no symptoms of hepc. I am an American veteran. My medication was free why wouldn't I try be cured. A medicine that causes pain and suffering should be considered poison.
Same thing with me. Check out Forbes for tax exempt profit hospitals r making. I think as many as 4 million people r infected in US ALONE!
TAX EXEMPT PROFIT.
MAY THEY SMOKE A TURD IN PURGITORY!
I have been diagnosed with Hepatitis C and want to know more about good foods to eat and natural remedies to combat this disease without drugs if possible. Also want to consider any info you have on Harvoni Medication?
Hi @klk370, we took your questions to a Mayo Clinic Specialty Pharmacist. Here is her response:
"Neuropsychiatric side effects of Hepatitis C treatment with interferon like fatigue, insomnia and pain can occur. Strategies for dealing with fatigue include taking frequent rest periods, napping when possible, and spreading tasks throughout the day based on energy levels. A gradual exercise program like a daily walk can help improve energy levels and improve the patient condition. It is important to maintain adequate hydration with caffeine-free drinks as dehydration can contribute to fatique. Medications that increase dopamine like ropinirole, pramiprexole or amantadine could be tried as there is some indication they may be of benefit in fibromyalgia and fatigue. More research is needed to determine optimal treatment.
Insomnia can contribute to fatigue. Sleep hygiene is the first step in treating insomnia. Sleep hygiene strategies can be found on the Mayo Clinic website (http://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/sleep/art-20048379). In patients with severe or refractory insomnia a sleep aid like melatonin or zolpidem can be used during implementation of sleep hygiene strategies train the body back into a natural sleep cycle.
The sedating antidepressant mirtazapine could be used for sleep, mood and pain although there is not as much evidence for use in treating pain. Low-dose Effexor or Pristiq can be used to treat both pain associated with ribavirin treatment and to improve mood. Pain, fatigue and insomnia can often be associated with depression.
Celiac disease could be considered in HCV patient who have been on interferon therapy who present with weight loss, diarrhea and malabsorption that causes nutritional deficiencies. It can present atypically with symptoms of IBS, fatigue, recurring abdominal pain, bloating or excessive gas. Celiac disease is managed by avoidance of gluten which improves symptoms over 2 to 6 weeks.
We found one article that mentioned a dementia-like condition following Peg-Interferon and ribavirin treatment for Hepatitis C although it seems more research is necessary to determine the incidence and optimal treatment for this.
I have searched for any open trials regarding “Post-Interferon Syndrome” or related and couldn’t find anything currently. Clinicaltrials.gov (http://bit.ly/2s7rLZL) is a good place to look for this type of thing.
@klk370 I hope this gives you some hope that there options for treatment and that although more research is needed to provide certain resolution of your symptoms you can feel some comfort that there are others who are working through the same issues. Mayo Clinic Specialty Pharmacists can help patients with Hepatitis and other serious conditions to create optimal drug regimens which maximize the benefit of their treatment while limiting side effects. More information about Mayo Clinic Specialty Pharmacy can be found here http://mayocl.in/2s7pT2S.
I have an appointment feb.9. I suffer many of the same ailments. Same damage? If so I would be open to being a test subject.
My life has become unmanagable. I want to live the rest of my life helping others in same boat. There is a reason for everything. Here I am.
Hi @klk370, we took your questions to a Mayo Clinic Specialty Pharmacist. Here is her response:
"Neuropsychiatric side effects of Hepatitis C treatment with interferon like fatigue, insomnia and pain can occur. Strategies for dealing with fatigue include taking frequent rest periods, napping when possible, and spreading tasks throughout the day based on energy levels. A gradual exercise program like a daily walk can help improve energy levels and improve the patient condition. It is important to maintain adequate hydration with caffeine-free drinks as dehydration can contribute to fatique. Medications that increase dopamine like ropinirole, pramiprexole or amantadine could be tried as there is some indication they may be of benefit in fibromyalgia and fatigue. More research is needed to determine optimal treatment.
Insomnia can contribute to fatigue. Sleep hygiene is the first step in treating insomnia. Sleep hygiene strategies can be found on the Mayo Clinic website (http://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/sleep/art-20048379). In patients with severe or refractory insomnia a sleep aid like melatonin or zolpidem can be used during implementation of sleep hygiene strategies train the body back into a natural sleep cycle.
The sedating antidepressant mirtazapine could be used for sleep, mood and pain although there is not as much evidence for use in treating pain. Low-dose Effexor or Pristiq can be used to treat both pain associated with ribavirin treatment and to improve mood. Pain, fatigue and insomnia can often be associated with depression.
Celiac disease could be considered in HCV patient who have been on interferon therapy who present with weight loss, diarrhea and malabsorption that causes nutritional deficiencies. It can present atypically with symptoms of IBS, fatigue, recurring abdominal pain, bloating or excessive gas. Celiac disease is managed by avoidance of gluten which improves symptoms over 2 to 6 weeks.
We found one article that mentioned a dementia-like condition following Peg-Interferon and ribavirin treatment for Hepatitis C although it seems more research is necessary to determine the incidence and optimal treatment for this.
I have searched for any open trials regarding “Post-Interferon Syndrome” or related and couldn’t find anything currently. Clinicaltrials.gov (http://bit.ly/2s7rLZL) is a good place to look for this type of thing.
@klk370 I hope this gives you some hope that there options for treatment and that although more research is needed to provide certain resolution of your symptoms you can feel some comfort that there are others who are working through the same issues. Mayo Clinic Specialty Pharmacists can help patients with Hepatitis and other serious conditions to create optimal drug regimens which maximize the benefit of their treatment while limiting side effects. More information about Mayo Clinic Specialty Pharmacy can be found here http://mayocl.in/2s7pT2S.
This all sounds like helpful information while on treatment. But the issue I and others want more information about is about symptoms which have persisted years after completing interferon/ribavarin treatment.
Same thing with me. Check out Forbes for tax exempt profit hospitals r making. I think as many as 4 million people r infected in US ALONE!
TAX EXEMPT PROFIT.
MAY THEY SMOKE A TURD IN PURGITORY!
Hi @klk370, we took your questions to a Mayo Clinic Specialty Pharmacist. Here is her response:
"Neuropsychiatric side effects of Hepatitis C treatment with interferon like fatigue, insomnia and pain can occur. Strategies for dealing with fatigue include taking frequent rest periods, napping when possible, and spreading tasks throughout the day based on energy levels. A gradual exercise program like a daily walk can help improve energy levels and improve the patient condition. It is important to maintain adequate hydration with caffeine-free drinks as dehydration can contribute to fatique. Medications that increase dopamine like ropinirole, pramiprexole or amantadine could be tried as there is some indication they may be of benefit in fibromyalgia and fatigue. More research is needed to determine optimal treatment.
Insomnia can contribute to fatigue. Sleep hygiene is the first step in treating insomnia. Sleep hygiene strategies can be found on the Mayo Clinic website (http://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/sleep/art-20048379). In patients with severe or refractory insomnia a sleep aid like melatonin or zolpidem can be used during implementation of sleep hygiene strategies train the body back into a natural sleep cycle.
The sedating antidepressant mirtazapine could be used for sleep, mood and pain although there is not as much evidence for use in treating pain. Low-dose Effexor or Pristiq can be used to treat both pain associated with ribavirin treatment and to improve mood. Pain, fatigue and insomnia can often be associated with depression.
Celiac disease could be considered in HCV patient who have been on interferon therapy who present with weight loss, diarrhea and malabsorption that causes nutritional deficiencies. It can present atypically with symptoms of IBS, fatigue, recurring abdominal pain, bloating or excessive gas. Celiac disease is managed by avoidance of gluten which improves symptoms over 2 to 6 weeks.
We found one article that mentioned a dementia-like condition following Peg-Interferon and ribavirin treatment for Hepatitis C although it seems more research is necessary to determine the incidence and optimal treatment for this.
I have searched for any open trials regarding “Post-Interferon Syndrome” or related and couldn’t find anything currently. Clinicaltrials.gov (http://bit.ly/2s7rLZL) is a good place to look for this type of thing.
@klk370 I hope this gives you some hope that there options for treatment and that although more research is needed to provide certain resolution of your symptoms you can feel some comfort that there are others who are working through the same issues. Mayo Clinic Specialty Pharmacists can help patients with Hepatitis and other serious conditions to create optimal drug regimens which maximize the benefit of their treatment while limiting side effects. More information about Mayo Clinic Specialty Pharmacy can be found here http://mayocl.in/2s7pT2S.
Same thing with me. Check out Forbes for tax exempt profit hospitals r making. I think as many as 4 million people r infected in US ALONE!
TAX EXEMPT PROFIT.
MAY THEY SMOKE A TURD IN PURGITORY!
Hi @klk370, we took your questions to a Mayo Clinic Specialty Pharmacist. Here is her response:
"Neuropsychiatric side effects of Hepatitis C treatment with interferon like fatigue, insomnia and pain can occur. Strategies for dealing with fatigue include taking frequent rest periods, napping when possible, and spreading tasks throughout the day based on energy levels. A gradual exercise program like a daily walk can help improve energy levels and improve the patient condition. It is important to maintain adequate hydration with caffeine-free drinks as dehydration can contribute to fatique. Medications that increase dopamine like ropinirole, pramiprexole or amantadine could be tried as there is some indication they may be of benefit in fibromyalgia and fatigue. More research is needed to determine optimal treatment.
Insomnia can contribute to fatigue. Sleep hygiene is the first step in treating insomnia. Sleep hygiene strategies can be found on the Mayo Clinic website (http://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/sleep/art-20048379). In patients with severe or refractory insomnia a sleep aid like melatonin or zolpidem can be used during implementation of sleep hygiene strategies train the body back into a natural sleep cycle.
The sedating antidepressant mirtazapine could be used for sleep, mood and pain although there is not as much evidence for use in treating pain. Low-dose Effexor or Pristiq can be used to treat both pain associated with ribavirin treatment and to improve mood. Pain, fatigue and insomnia can often be associated with depression.
Celiac disease could be considered in HCV patient who have been on interferon therapy who present with weight loss, diarrhea and malabsorption that causes nutritional deficiencies. It can present atypically with symptoms of IBS, fatigue, recurring abdominal pain, bloating or excessive gas. Celiac disease is managed by avoidance of gluten which improves symptoms over 2 to 6 weeks.
We found one article that mentioned a dementia-like condition following Peg-Interferon and ribavirin treatment for Hepatitis C although it seems more research is necessary to determine the incidence and optimal treatment for this.
I have searched for any open trials regarding “Post-Interferon Syndrome” or related and couldn’t find anything currently. Clinicaltrials.gov (http://bit.ly/2s7rLZL) is a good place to look for this type of thing.
@klk370 I hope this gives you some hope that there options for treatment and that although more research is needed to provide certain resolution of your symptoms you can feel some comfort that there are others who are working through the same issues. Mayo Clinic Specialty Pharmacists can help patients with Hepatitis and other serious conditions to create optimal drug regimens which maximize the benefit of their treatment while limiting side effects. More information about Mayo Clinic Specialty Pharmacy can be found here http://mayocl.in/2s7pT2S.
I was hoping to hear more about post treatment from others .....dose their blood work levels improve over time... like your platelet court HGB,MCHC, and your bilirubin levels improve
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My keys. I try hang them up in a keyboard that spells KEYS it cuts down on frustration. But what I am experiencing is not remembering what I did a few days ago it brings on axniety and rage at times. Early on in my treatment I experienced it. Very scary. Treatment ended almost eight years ago. I m great ful for being negative for hepc but wasn't in formed enough by Drs. I was severely depressed from the beginning. My mother and sister died within weaks of each other. I had no symptoms of hepc. I am an American veteran. My medication was free why wouldn't I try be cured. A medicine that causes pain and suffering should be considered poison.
Same thing with me. Check out Forbes for tax exempt profit hospitals r making. I think as many as 4 million people r infected in US ALONE!
TAX EXEMPT PROFIT.
MAY THEY SMOKE A TURD IN PURGITORY!
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Hug
1 ReactionI read something about healing herbs and spices. Poison is not necessary.
I have an appointment feb.9. I suffer many of the same ailments. Same damage? If so I would be open to being a test subject.
My life has become unmanagable. I want to live the rest of my life helping others in same boat. There is a reason for everything. Here I am.
This all sounds like helpful information while on treatment. But the issue I and others want more information about is about symptoms which have persisted years after completing interferon/ribavarin treatment.
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Helpful -
Hug
2 ReactionsNot sure I am understanding your point.
Hi @nethshelley,
You might wish to view this article from Mayo Clinic, which details various drugs, including the hard-to-tolerate antivirals that you are concerned about:
– Coping with side effects of hepatitis C drugs: https://www.mayoclinic.org/hepatitis-c-drug-side-effects/art-20121674
I also found these published articles about the long-term side effects of Hep-C treatment;
– http://www.mayoclinicproceedings.org/article/S0025-6196(11)64404-2/fulltext
– http://www.cghjournal.org/article/S1542-3565(13)01055-0/pdf
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1 ReactionDo you think it's morally right to profit from someone's misery.
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1 ReactionNot understanding things,joint pain ,muscle aches,insomnia,fatigue,depression, anxiety,rage,Barretts esophagus, gerd,IBS,other gastrointestinal problems,enlarged lymph nodes, cognitive problems,edema ankles, peripheral neuropothy,
I was hoping to hear more about post treatment from others .....dose their blood work levels improve over time... like your platelet court HGB,MCHC, and your bilirubin levels improve