Body vibrations when falling asleep or waking?

I so agree. There HAS to be a common thread. I googled "diaphragmatic flutters" and "injury to phrenic nerve" and "internal vibrations". They ALL refer to the diaphragm which controls the breathing. I also wore a heart monitor for 2 weeks to see if it would pick up anything and it did not. I got relief after a sleep study and didn't have vibrations for a week and a half after 2nd part of study where I slept with nasal piece. They slowly started coming back while I waited for my cpap machine. I didn't have them while using the machine but wanted to see if I could get same results as I did at sleep study so I started using it 4 hours each night, minimum required for medicare to pay, while watching TV on bed. I don't have the vibrations 90% of the time and I honestly think it's from having the air forced into my diaphragm by the machine. That's why I think mine is related to phrenic nerve injury. There has to be a doctor somewhere that find this fascinating enough to want to figure it out. When you can place your hand on your side or pelvic area or wherever the vibes are and actually feel the vibrations, that only proves they are real. My neurologist also thinks they may be from over active central nervous system. There's a lot of guessing going on but like I told him, I want to know what is PHYSICALLY going on in my body to cause them. Sometimes I feel them in my buttocks. They travel to different areas. I've been keeping a journal since 2019 and rate them every time I have them on a scale of 1-10. I thought one night one of my cats jumped on the bed but woke up and saw that it was me having vibrations, a level 10 that time. It is so crazy. I've not had covid or the vaccine. Please, will somebody out there help. I'm donating my body to science so maybe it'll be after I die they finally figure it out and it'll probably be something so simple........

I am so glad that this is working for you. I will let you know how things go. Thank You

This may be my last post on this thread but wanted those reading to know I was incorrect in thinking my sleep body tremors/vibrations were the result of covid or the vaccine as I originally assumed after finding this thread. As it turns out I began taking Klonopin for a sleep issue shortly after I had Covid. I had asked my sleep doctor if Klonopin could be causing my tremors and he said "NO". Well, he's an idiot as I did read that, although rare, it is a potential side effect. So, since this hasd been driving me crazy for last 7 months, I decided to stop taking the Klonopin just 18 days ago, cold turkey. The withdrawal symptoms have been bad, mostly insomnia, but my tremors have disappeared after first week or so after I stopped taking this terrible Benzo med. Just wanted folks here to know, in my case Covid had nothing to do with my experience, although I was convinced it did, like many here. Just my situation. Best to all and I hope it gets better!

so sorry you had to go through a miserable withdrawal, but happy you were able to find a solution to your issues.

If stopping that cold turkey is ANYTHING like xanax cold turkey, it could have killed you. In my case, in which I am in process of filing complaint against doctor, I had to switch doctors, stayed with Premier Medical practice, because of insurance issue after I went on disability at 62. I called for a week and she didn't refill it. I went to hospital twice in 24 hours, didn't sleep for over 48 hours straight, didn't eat for 5 days, it was horrible. The nurse manager finally called them in for me after my sister, who is nurse practitioner, figured out it was xanax withdrawal and really messes with your perception of things. I had to throw out so much food because it all tasted like dirty musty socks smell, milk smelled sour, EVERYTHING that was scented was 1000× magnified. I'm slowly reducing the amount, was only 1 mg daily anyway, I'm at 3/4 mg now and getting ready to go to 1/2. You should NEVER stop meds that affect your central nervous system. As for your issues being a side effect of that, my internal vibrations, which I've had since 2019, stopped for a week and a half after I did a sleep study wearing nasal mask. I have mild sleep apnea, my pressure is set lowest it will go at 4, and now have the machine that I wear nightly BEFORE I go to sleep. It has helped tremendously. The ER nurse did ask if I'd been tested for covid or had covid because the issue with smells seemed to be the new thing with that. I said no to either and had a covid test. It was negative. Hope you get your problem straightened out as I'm still trying to figure out the cause of these vibrations.

Hello all,

I'm pretty confident that the cause for these vibrations is anxiety. I've mentioned before that I've had these for many years. I have found that I can affect the severity by doing Qi Gong before bed, and, using a THC cream at pressure points. Try it!

For me I felt as if I needed to just get off the Klonopin. Luckily at .5mg once a day I felt it wasn't a large dose so would not be too threathening, however, I did experience significant insomnia along with ongoing body buzzing even after tremors subsided. The buzzing is pretty much 95% gone, very slight feeling of this at times but going to be gone shortly I'm certain. I read the withdrawal symptoms normally peak at 2 weeks but can last up to a month. Seems like it's definitely accurate from what I have noticed. I feel bad for folks who have been on this for significant time but for me, it's an absolute NEVER again! BTW, I tried the cpap with absolutely no luck. My overnight study said I don't have apnea.

Has anyone on this thread seen their sleep tremors disappear? If so, what did you do to stop them (other than stopping Klonopin)? There are many people whose sleep tremors stopped on two Facebook groups, "Internal Vibrations/Sleep Tremors" and "Internal Tremors," but they generally don't know why their symptoms have stopped happening. I am still looking for clues, so please share. The cause of my own sleep tremors is not covid or any of the covid vaccines.

Also, why are the body vibrations or tremors tied uniquely to sleep? We all feel them whenever we are waking up, but then they suddenly stop. My doctors have no idea what this condition is. This is different from other sleep movement disorders. With so many more cases popping up due to covid and vaccine side-effects, maybe doctors will finally start to know what this condition actually is. Has anyone's doctor here actually diagnosed sleep tremors as tied to some other medical condition?

It’s so interesting that we are mostly all experiencing the exact same symptoms but in different parts of the body. This tells me it must be a nervous system thing.

I am scheduling a sleep study soon since my take-home sleep study showed signs of sleep apnea. Although my husband maintains that I absolutely do NOT snore, which is strange.

I had been convinced that mine were related to COVID infection or even having taken Paxil some 20 years back. My vibrations are in the back of my head/upper neck & so I was even thinking they had something to do with hormones or seratonin production.

They now occur with such frequency that I barely notice them. Just turn my head & they stop temporarily. I don’t know if they are happening while I’m fully asleep or not, but when I get up with an alarm, I don’t notice them at all. Maybe because I’m immediately awake, & wakefulness is what seems to stop them.

I had them once recently (while sleeping on my side, which I rarely do) in my hand, as it was laying on top of my cheek. Instead of my hand “falling asleep,” it vibrated along with my head vibrations. That confused me but may provide another piece to the puzzle.

Some on here have said their vibrations disappear after using c-paps or oxygen treatment, so maybe there is something about not getting enough blood/oxygen that is causing these.

My sleep vibrations are worse when sleeping on my side too. I rarely notice then when sleeping on my back. I wonder why.