Hi Rosy..thank y for thinking about me during my second crappy trip to the OR!!!!
How r u? How did your ck up go? Mine went well.dr.keeps an eye on kidneys.they don't like
Tacrolimus..oh well ! I hope all members r doing well....still want to get that bus trip going!!u take care...😁
@jackie421blfdgurl I’ve been on Tacrolimus for nearly 17 years for pancreas transplant. I also have Chronic Kidney Disease stage 4. Tacrolimus is toxic to kidneys. I have biopsy verified evidence of kidney damage due to Tacrolimus.
I just realized this thread started a few years back and pertained to incisional hernias after transplant. I had a pancreas transplant in 2005. In 2006 I had an enteric conversion surgery (everything was taken apart, put back together and hooked up differently). In 2011 I noticed a small bulge. My doctor diagnosed an incisional hernia but said it was best not to treat unless it changed in size & shape or became uncomfortable. In 2012 I had a bowel obstruction and I got scared that the pain I was experiencing had something to due with the hernia. I ended up having hernia surgery (2012?) and have piece of surgical mesh where the hernia was.
@jackie421blfdgurl I’ve been on Tacrolimus for nearly 17 years for pancreas transplant. I also have Chronic Kidney Disease stage 4. Tacrolimus is toxic to kidneys. I have biopsy verified evidence of kidney damage due to Tacrolimus.
I am so sorry to hear your news. As I always start out..they can put a man on the moon..why the hell do they make drugs that r toxic to our bodies..take a pill for one then take two more
To counteract the first pill what a bunch of bullshit..I pray for u.
My husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.
Hello Jackie here..my liver transplant was
November 2020. In June
2021, incisional hernia was discovered right on liver spot. It was uncomfortable. And a
Good buldge. Had the surgery.it was tough since 6 mins ago had the transplant. I was on the drug sirolemus, and a Mercedes liver surgery
Scar. WHO ..the hell knows. The whole experience was a nightmare from transplant..I had some kind of complications and did not wakeup from surgery till 5 days later stayed in ICU for over two weeks...so while that was trying to heal.here comes the hernia surgery .whoopie
Good morning
I had my liver transplant in October 2020. In April 2021 I noticed a small golf ball sized lump on the right side lower surgical site. My incision is an upside down hockey stick. I contacted my gastroenterologist and she said it was a hernia and that we'll keep an eye on it. After a couple of months it started getting bigger. I then contacted my transplant Dr and he said it might be best to have surgery to decrease the risks of infection. I was referred to a surgeon and waited for a surgery date. Our dear friend COVID-19 again reared it's ugly head, and elective surgeries were put on the back burner. I had my hernia surgery last March 2021, after waiting a year. When the surgeon got in there it turned out my entire incision site had ripped open and I required a complete abdominal wall reconstruction. One year out and I feel amazing. My liver is functioning at 100% and the incision has healed nicely. I now have to watch my weight as my abdominal wall is very thin. Just hang in there. Kermit the frog had a saying "It's hard being 💚 green ", I now say "It's hard being transplanted. I want to wish you well and whoever your God is I wish him to continue to bless you🙏
I am 1yr 3months post kidney transplant and have a large- 7-8 centimeter incisional hernia. I look like I am pregnant on my right side. I see the surgeon next month. As I eat and drink throughout the day it grows and I can feel my skin pulling apart. My scar has started pulling apart and is growing in width. I believe this hernia occurred shortly after transplant but didn’t show for some reason on the scans. They gave me a support band and told me to wear it. I noticed my side growing and mentioned it a few times to the doctors with no remark from them. My nephrologist saw it and said oh you have a hernia but did not refer me to anyone. My last visit I showed the doctor, because it had grown so much and pain really started up, she scheduled a CT scan that shows a 7-8 centimeter incisional hernia.
I am 1yr 3months post kidney transplant and have a large- 7-8 centimeter incisional hernia. I look like I am pregnant on my right side. I see the surgeon next month. As I eat and drink throughout the day it grows and I can feel my skin pulling apart. My scar has started pulling apart and is growing in width. I believe this hernia occurred shortly after transplant but didn’t show for some reason on the scans. They gave me a support band and told me to wear it. I noticed my side growing and mentioned it a few times to the doctors with no remark from them. My nephrologist saw it and said oh you have a hernia but did not refer me to anyone. My last visit I showed the doctor, because it had grown so much and pain really started up, she scheduled a CT scan that shows a 7-8 centimeter incisional hernia.
@janeent, that sounds terribly uncomfortable and it must be frustrating to be left wondering about any medical response.
How long ago was this CT performed? Did you have a follow-up conversation with the doctor who ordered the scan?
@janeent, that sounds terribly uncomfortable and it must be frustrating to be left wondering about any medical response.
How long ago was this CT performed? Did you have a follow-up conversation with the doctor who ordered the scan?
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@jackie421blfdgurl I’ve been on Tacrolimus for nearly 17 years for pancreas transplant. I also have Chronic Kidney Disease stage 4. Tacrolimus is toxic to kidneys. I have biopsy verified evidence of kidney damage due to Tacrolimus.
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1 ReactionI just realized this thread started a few years back and pertained to incisional hernias after transplant. I had a pancreas transplant in 2005. In 2006 I had an enteric conversion surgery (everything was taken apart, put back together and hooked up differently). In 2011 I noticed a small bulge. My doctor diagnosed an incisional hernia but said it was best not to treat unless it changed in size & shape or became uncomfortable. In 2012 I had a bowel obstruction and I got scared that the pain I was experiencing had something to due with the hernia. I ended up having hernia surgery (2012?) and have piece of surgical mesh where the hernia was.
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Hug
2 ReactionsI am so sorry to hear your news. As I always start out..they can put a man on the moon..why the hell do they make drugs that r toxic to our bodies..take a pill for one then take two more
To counteract the first pill what a bunch of bullshit..I pray for u.
-
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Helpful -
Hug
2 ReactionsHello Jackie here..my liver transplant was
November 2020. In June
2021, incisional hernia was discovered right on liver spot. It was uncomfortable. And a
Good buldge. Had the surgery.it was tough since 6 mins ago had the transplant. I was on the drug sirolemus, and a Mercedes liver surgery
Scar. WHO ..the hell knows. The whole experience was a nightmare from transplant..I had some kind of complications and did not wakeup from surgery till 5 days later stayed in ICU for over two weeks...so while that was trying to heal.here comes the hernia surgery .whoopie
Good morning
I had my liver transplant in October 2020. In April 2021 I noticed a small golf ball sized lump on the right side lower surgical site. My incision is an upside down hockey stick. I contacted my gastroenterologist and she said it was a hernia and that we'll keep an eye on it. After a couple of months it started getting bigger. I then contacted my transplant Dr and he said it might be best to have surgery to decrease the risks of infection. I was referred to a surgeon and waited for a surgery date. Our dear friend COVID-19 again reared it's ugly head, and elective surgeries were put on the back burner. I had my hernia surgery last March 2021, after waiting a year. When the surgeon got in there it turned out my entire incision site had ripped open and I required a complete abdominal wall reconstruction. One year out and I feel amazing. My liver is functioning at 100% and the incision has healed nicely. I now have to watch my weight as my abdominal wall is very thin. Just hang in there. Kermit the frog had a saying "It's hard being 💚 green ", I now say "It's hard being transplanted. I want to wish you well and whoever your God is I wish him to continue to bless you🙏
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2 ReactionsSorry it should have read March 2022.
I am 1yr 3months post kidney transplant and have a large- 7-8 centimeter incisional hernia. I look like I am pregnant on my right side. I see the surgeon next month. As I eat and drink throughout the day it grows and I can feel my skin pulling apart. My scar has started pulling apart and is growing in width. I believe this hernia occurred shortly after transplant but didn’t show for some reason on the scans. They gave me a support band and told me to wear it. I noticed my side growing and mentioned it a few times to the doctors with no remark from them. My nephrologist saw it and said oh you have a hernia but did not refer me to anyone. My last visit I showed the doctor, because it had grown so much and pain really started up, she scheduled a CT scan that shows a 7-8 centimeter incisional hernia.
@janeent, that sounds terribly uncomfortable and it must be frustrating to be left wondering about any medical response.
How long ago was this CT performed? Did you have a follow-up conversation with the doctor who ordered the scan?
The first was in Feb 2022. The recent scan was 2 weeks ago. I see the general surgeons April 13th.
@janeent, I hope your appointment goes well next week 🤍