Grover's Disease: What works to help find relief?

Would be grateful to hear if anyone has experienced an outbreak of Grover’s Disease which was triggered by (i) a CT scan, (ii) a PSMA/PET scan or (iii) X-rays?

Don't know about the X-rays or scan as triggers; I was going to ask whether anyone has scalp lesions? I've been dyeing my hair for many years and now have a sensitivity that was just itching at first, but now is large bumps. This is my second bout with GD (last year it resolved quickly with a small amount of steroid cream) and it is on my back, abdomen and head. Steroid cream isn't cutting it; I'm making poultices of cider vinegar and clay, or cider v. and finely ground oatmeal. Able to sleep! Trying the cilantro smoothie as well.

May I ask where you found the info about the sulfite trigger? This is upsetting to me, as I love most of the foods you list. I've been eating organically for many years, but have to consider this. Thank you.

I am 42 year old male, lots of sun exposure over years. My disease progressively got worse over coarse of 3-4 years. Finally diagnosed in 2022. I have extremely painful flare ups around abdomen and mid back along with total body formication/ sensations. It’s really difficult to deal with. I recently discovered and believe alcohol is directly related to flare ups. I went all of January and February without drinking and the rash/burning/sensations went away almost completely

FYI - I stopped drinking alcohol in 2009, however was diagnosed with GD (Biopsy) in 2018. Dermo says due to
too much exposure to sun during years of playing golf and holidaying in the Pacific Islands. Still have problem with itch at night when skin temperature rises due to bedding, very little problem during day.
It seems to me that different things help different people and this is the most frustrating thing for me regarding GD.

I believe I may have. In Sept I had a bad back injury and within a period of 2 months had close to a dozen different exposures to X-rays, MRIs ,Ct scans with contrast. In Nov I was diagnosed with GD. The burning and itching was unbearable. It felt like poison ivy, oak , scabies, shingles and a bad sunburn with blisters wrapped up with a bow on top! No way to sleep at night for months . I think I may be eating cilantro for the rest of my life finally in Feb the symptoms subsided . Still have some itching and lesions but I can sleep now

My GD is pretty much under control after Gabapentin use. Now off Gabapentin, but have mild itching at night.
I use Triaminicine sometimes, but mostly over the counter CERAVE or Eucerine.
Best thing I do as have a small cube air conditioner ($40) aimed at me all night. The cooled air feels awesome & relieves the itching.

I was diagnosed in 1976 after suffering a severe sunburn. I have never doubted that this disease's onset was caused by this trauma. Luckily, photo therapy has worked well for me, keeping my outbreaks at bay for several years now.

I've heard that Grover’s is caused by sweating, nerves, diet, alcohol consumption…but skin trauma is still the only thing that makes sense to me.

Thanks Candace! Would you happen to know which contrast agents you received? Gadolinium? Others?

Thanks for your comment. It seems the more I have read and researched there are many things people have tried to add or eliminate to see what works for them. Lots of trial and error. I now use cilantro drops in orange juice for a quicker and cost effective way to get that in vs making a smoothie. I'm 100% certain for myself that high levels of alcohol consumption causes flareups just about every time for me.