Wow! I am so excited to find this blog… sorry for the reason but people who actually understand.
1983 - diagnosed non A non B hepatitis
2001 - tested positive Hep C (it had a name)
2001 - type 1B, million per m/l, liver biopsy periportal fibrosis 2.5/4
2001 - August joined clinical trial,
ribovirin and pegalated interferon
2001 - October, removed from trial because I felt like I was losing my mind and wanted to die
2002 - gastroenteritis said I had 5-10 years to live
2002-2003 - 48 weeks of shots and my “insecticide” pills.
2002 - again 8 weeks gonna lose it. Started anti-psychotics, opioids, Xanax, Cymbalta, Lyrica, thyroid meds,
2003 - to present
Tinnitus, Fibromyalgia, white matter in my brain, Osteoarthritis facet joints c2-s1, hypthyroid, insomnia, allergies, tortuous redundant sigmoid colon (from horrible constipation from 15 years), body temp dips to 95 to 97.2 (have not had a fever since 2001)
INSOMNIA IS DANGEROUS! Help don’t know where to turn.
Wow! I am so excited to find this blog… sorry for the reason but people who actually understand.
1983 - diagnosed non A non B hepatitis
2001 - tested positive Hep C (it had a name)
2001 - type 1B, million per m/l, liver biopsy periportal fibrosis 2.5/4
2001 - August joined clinical trial,
ribovirin and pegalated interferon
2001 - October, removed from trial because I felt like I was losing my mind and wanted to die
2002 - gastroenteritis said I had 5-10 years to live
2002-2003 - 48 weeks of shots and my “insecticide” pills.
2002 - again 8 weeks gonna lose it. Started anti-psychotics, opioids, Xanax, Cymbalta, Lyrica, thyroid meds,
2003 - to present
Tinnitus, Fibromyalgia, white matter in my brain, Osteoarthritis facet joints c2-s1, hypthyroid, insomnia, allergies, tortuous redundant sigmoid colon (from horrible constipation from 15 years), body temp dips to 95 to 97.2 (have not had a fever since 2001)
INSOMNIA IS DANGEROUS! Help don’t know where to turn.
I am so sorry to hear about what’s going on with you. The side effects or post interferon syndrome manifests itself in many different ways. They keep adding to the list of side effects. I was diagnosed in 1975 with non A and B By 2007 I was at stage 3-4 cirrhosis and started on the interferon and ribovan. I had all the side effects including Alopecia. I’m virus free after the treatment and most side effects except the alopecia had gone away. Fast forward ten years and all the side effects came back with a vengeance. Autoimmune symptom and lupus issues, fatigue, brain fog and more. These symptoms have similarity but again manifest themselves differently for each person. Lots of luck to you
Rob
I did the interferon and ribavirin combination therapy in 2007-2008. I did the shots once a week in addition to the pills every day for 11 months. This was recommended as I had the worst genotype with a viral load in the millions. The treatments did work and I have been undetectable since 2007 (during the treatment) with no recurrence of the hep c. Over the years I have developed a lot of medical issues that I just recently put together as possibly being caused by the the interferon and ribavirin. Chronic fatigue, muscle and joint pain in numerous parts of my body (but primarily in hips, legs, back and neck), memory loss, I have trouble staying organized where before the treatment I was obsessively organized, low grade headaches, vision problems (vasculitis, retinal hemorrhage and a stroke in one eye resulting in vision loss, floaters in both eyes, etc), sleep apnea, high blood pressure, thyroid issues, gastroparesis, and a brain tumor/lesion. Additionally, I am constantly sick with sore throat, laryngitis, ear infections, colds, flu and pneumonia (and yes I get the flu, covid and pnuemonia vaccines).....it seems like I have a very poor immune system and catch every "bug" coming and going. I have had many doctors over the years and have been tested for everything imaginable to determine what could be causing some of these issues but nothing has been determined. I know my doctors all think I am a hypochondriac but these symptoms are very real. Does any of this sound like post interferon syndrome? The link provided seems more for symptoms of recent treatments rather than for people that did the treatment a long time ago.
I'm not sure if anybody ever actually gets diagnosed with post interferon syndrome or not. I know that it sounds like u should be able to be diagnosed with it but getting a doctor to say so seems like only a dream
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Wow! I am so excited to find this blog… sorry for the reason but people who actually understand.
1983 - diagnosed non A non B hepatitis
2001 - tested positive Hep C (it had a name)
2001 - type 1B, million per m/l, liver biopsy periportal fibrosis 2.5/4
2001 - August joined clinical trial,
ribovirin and pegalated interferon
2001 - October, removed from trial because I felt like I was losing my mind and wanted to die
2002 - gastroenteritis said I had 5-10 years to live
2002-2003 - 48 weeks of shots and my “insecticide” pills.
2002 - again 8 weeks gonna lose it. Started anti-psychotics, opioids, Xanax, Cymbalta, Lyrica, thyroid meds,
2003 - to present
Tinnitus, Fibromyalgia, white matter in my brain, Osteoarthritis facet joints c2-s1, hypthyroid, insomnia, allergies, tortuous redundant sigmoid colon (from horrible constipation from 15 years), body temp dips to 95 to 97.2 (have not had a fever since 2001)
INSOMNIA IS DANGEROUS! Help don’t know where to turn.
I am so sorry to hear about what’s going on with you. The side effects or post interferon syndrome manifests itself in many different ways. They keep adding to the list of side effects. I was diagnosed in 1975 with non A and B By 2007 I was at stage 3-4 cirrhosis and started on the interferon and ribovan. I had all the side effects including Alopecia. I’m virus free after the treatment and most side effects except the alopecia had gone away. Fast forward ten years and all the side effects came back with a vengeance. Autoimmune symptom and lupus issues, fatigue, brain fog and more. These symptoms have similarity but again manifest themselves differently for each person. Lots of luck to you
Rob
I'm not sure if anybody ever actually gets diagnosed with post interferon syndrome or not. I know that it sounds like u should be able to be diagnosed with it but getting a doctor to say so seems like only a dream