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How do I know if I have post interferon syndrome?
Infectious Diseases | Last Active: Mar 4 4:29am | Replies (13)Comment receiving replies
Wow! I am so excited to find this blog… sorry for the reason but people who actually understand.
1983 - diagnosed non A non B hepatitis
2001 - tested positive Hep C (it had a name)
2001 - type 1B, million per m/l, liver biopsy periportal fibrosis 2.5/4
2001 - August joined clinical trial,
ribovirin and pegalated interferon
2001 - October, removed from trial because I felt like I was losing my mind and wanted to die
2002 - gastroenteritis said I had 5-10 years to live
2002-2003 - 48 weeks of shots and my “insecticide” pills.
2002 - again 8 weeks gonna lose it. Started anti-psychotics, opioids, Xanax, Cymbalta, Lyrica, thyroid meds,
2003 - to present
Tinnitus, Fibromyalgia, white matter in my brain, Osteoarthritis facet joints c2-s1, hypthyroid, insomnia, allergies, tortuous redundant sigmoid colon (from horrible constipation from 15 years), body temp dips to 95 to 97.2 (have not had a fever since 2001)
INSOMNIA IS DANGEROUS! Help don’t know where to turn.
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I am so sorry to hear about what’s going on with you. The side effects or post interferon syndrome manifests itself in many different ways. They keep adding to the list of side effects. I was diagnosed in 1975 with non A and B By 2007 I was at stage 3-4 cirrhosis and started on the interferon and ribovan. I had all the side effects including Alopecia. I’m virus free after the treatment and most side effects except the alopecia had gone away. Fast forward ten years and all the side effects came back with a vengeance. Autoimmune symptom and lupus issues, fatigue, brain fog and more. These symptoms have similarity but again manifest themselves differently for each person. Lots of luck to you
Rob