Any suggestions to alleviate Bone Pain from Multiple Myeloma?

@tristram, how are you doing? I found this article about multiple myeloma and managing bone pain:
- Multiple Myeloma Bone Pain and Lesions https://www.healthline.com/health/cancer/multiple-myeloma-bone-lesions-damage-pain

Have you talked to your cancer team about medications or treatments that might help?

Colleen, Thanks for the article. I figured out after posting that query that my pain was actually a muscle pain caused by a blood pressure sleeve that blew up way too tight. Right now I have no pains at all--and I'm hoping it continies. Tristram (Jim)

Lori, wanted to update you on my husband. He got his transplant Feb 15 followed by tough chemo this last weekend then yesterday anti rejection med, antifungal and blood. But the amazing thing is he is still an outpatient and doing well I think. Of course, the chemo this weekend took him for some good nausea but no vomiting or diarrhea. So as long as he stays fever free he gets to day home in his own bed, be active and we go back everyday for lab levels and injections for white count. I almost need to get him up a half hour early though just to take the tons of pills. Oh I failed to ever mention he has Parkinson’s as well and bladder issues so that adds at least 6-7 more pills. Crazy but so far prayers are being answered. Drs impressed since almost two weeks since his third pre transplant round of chemo. 👏🏻🙏❤️

Thank you for the update!! I was wondering how your husband was doing after his transplant! It all sounds right on course with normal…the nausea may stick around for a while but it will pass. ☺️
I was so appreciative that most of my post transplant was outpatient too. Though I did end up back in the hospital a couple times. That’s not unusual. It really helps recovery to be in ‘your own home’ whether it is your home or a hotel (my experience). That way your husband can be up and walking more, eating when he feels like it, sleeping in his own bed away from the confines of a clinical setting. It just makes for a healthier and happier recovery period.

Ah yes, the pills. Daunting isn’t it? But while your husband’s immune system isn’t fully functioning these pills substitute as a temporary immune system, keeping him safe. They won’t be forever either. Just feels like it! 😅

There’s a woman my local cancer clinic recently paired me with for mentoring. She is 69, just diagnosed with MDS and will have her transplant the end of March. I’ve encouraged her to pop into Connect when she is up to it. So hopefully at some point in time she’ll be on here too and will be able to share her story. We never know how many people all over the world we might be helping with our experiences.

Give your husband an ‘air hug’ from me! He’s doing great! I think the caregiver part might be even harder…so how are YOU holding up?

Thank you again for your support. Taking each day at a time and a lot of prayers. 🙏

Lori, did you see the report on Robin Roberts GMA on MDS. I didn’t realize she had it and her sister was her donor. 10 yrs now.

I did see the report with Robin Roberts! She was the first person I ‘knew’ (familiar face from seeing her on TV) who had a stem cell transplant. I thought she was incredibly brave and couldn’t imagine having to face such a challenge.
It was really the first time I can remember that this procedure was brought into the public spotlight! It was wonderful for her to share her story all along!

Who knew…several years later I did have to face the same fate but from a different disease!
But her story was so inspiring and encouraging, I knew I could get through it…and now you and your husband are inspired by her story too! She did the right thing in sharing her experience and we are too! We never know who will benefit or be given a positive nudge when they read our accounts. ☺️

Lori, well we made it 12 days out of the hospital since start of chemo and transplant so pretty good but had to come in yesterday for a fever and felt the worst he has yet Which I’m hopeful it is the donor cells fighting instead of infection. White count up from 0.02 to 0.08 sounds so small but in this world a big deal. Right. Hope it continues upward. 🙏

You did the right thing by going back to the hospital. Don’t fear the worst…This may just be what’s called a neutropenic fever. They happen. Sometimes it’s an infection, sometimes from an un assignable cause. In my case I didn’t have an infection that could be found, but was preemptively treated with antibiotics anyway. The hospital is the best place. They’ll keep a good eye on him.
He was also at the very lowest point in his life as far as blood counts…so he would feel just godawful. It’s an unexplainable feeling and it’s usually on that last day before engraftment! It’s like the ‘darkest hour is just before dawn’ moment.

So, that tiny rise in his white count is actually huge…considering how low it was! When there’s even a small increase in the blood test after transplant at this stage…that’s a really good sign! I know it looks like just a minuscule increase but what you’re seeing is only a tiny portion of what is already in production inside of his bones!! The white cells in his blood means there’s enough in the marrow that now they are starting to spill out and rush to the rescue!
So this is an awesome sign! It generally means engraftment of his new stem cells!! That’s a hallelujah moment!!!
Give him an air hug for me!! He’s going to start feeling a lot better tomorrow! Ok, not ready to party yet but a drastic difference that yesterday. ☺️

I read your message to him and he felt good about it. Thanks for the positivity but I agree with you I think cells are taking. But his hospitalization fears from last time are stinking in but this time we have PT already in place so we can keep this exercise fanatic busy. I think we are going in the right direction. Thanks again.🙏