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@jrwilli1

Lori, wanted to update you on my husband. He got his transplant Feb 15 followed by tough chemo this last weekend then yesterday anti rejection med, antifungal and blood. But the amazing thing is he is still an outpatient and doing well I think. Of course, the chemo this weekend took him for some good nausea but no vomiting or diarrhea. So as long as he stays fever free he gets to day home in his own bed, be active and we go back everyday for lab levels and injections for white count. I almost need to get him up a half hour early though just to take the tons of pills. Oh I failed to ever mention he has Parkinson’s as well and bladder issues so that adds at least 6-7 more pills. Crazy but so far prayers are being answered. Drs impressed since almost two weeks since his third pre transplant round of chemo. 👏🏻🙏❤️

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Replies to "Lori, wanted to update you on my husband. He got his transplant Feb 15 followed by..."

Thank you for the update!! I was wondering how your husband was doing after his transplant! It all sounds right on course with normal…the nausea may stick around for a while but it will pass. ☺️
I was so appreciative that most of my post transplant was outpatient too. Though I did end up back in the hospital a couple times. That’s not unusual. It really helps recovery to be in ‘your own home’ whether it is your home or a hotel (my experience). That way your husband can be up and walking more, eating when he feels like it, sleeping in his own bed away from the confines of a clinical setting. It just makes for a healthier and happier recovery period.

Ah yes, the pills. Daunting isn’t it? But while your husband’s immune system isn’t fully functioning these pills substitute as a temporary immune system, keeping him safe. They won’t be forever either. Just feels like it! 😅

There’s a woman my local cancer clinic recently paired me with for mentoring. She is 69, just diagnosed with MDS and will have her transplant the end of March. I’ve encouraged her to pop into Connect when she is up to it. So hopefully at some point in time she’ll be on here too and will be able to share her story. We never know how many people all over the world we might be helping with our experiences.

Give your husband an ‘air hug’ from me! He’s doing great! I think the caregiver part might be even harder…so how are YOU holding up?