Kidney stones and drinking 80 to 100 ounces daily.

Yes I create calcium oxide stones: I'll get a few every so many years. So far I've either passed them normally with a little Flowmax help or go through lithotripsy. To make a long story short...I learned that I had CKD by reviewing my medical records one day. No Dr ever told me & I had been this way for years. So I went to a larger medical system in a larger community 2 hrs away to start being under the care of a Nephrologist. Not what I expected!! I came away with a mindset that what I had been told to eat for decades was what the problem for my particular body. He told me to remain on my same exercise & activity level but alter a few eating habits such as 1) stop sugar & certain chemical sweeteners: I only use Monk Fruit or pure Stevia now. 2) no more wheat ..period! But I'm ok with making my own biscuits or sheet cakes if I want with gluten & sugar free flours. I don't eat that much of those things anyway. 3) lower potassium is much better for me...stop bananas & flax seed for example. Keep my water baseline I take of four, 32 oz cups of water daily. Don't drink within 2 hrs of bedtime. I eat all the natural protein & colored vege's that I want & once in awhile I do eat corn tortillas or gluten free wraps. Lost 30 lbs in 4 months & more labs are the best in my life. Kidney filtration rate improved significantly. Well, that's just me...may not be advisable for most. Best wishes

Yes. Early Jan showed CKD and was told to increase my water intake to like 120 ounces. I did it for a week and my PCP said that much wasn't necessary so I'm doing about 80. I go to my 1st nephrology appt Feb 2.

Your comment "what I had been told to eat for decades" caught my interest. I've asked several times on this site if anyone knew about oxalate toxicity caused by high oxalate foods: spinach, sweet potatoes, most of the "healthy foods", but never received any answers. It's been known for some time that these foods contribute to kidney stones, but not much is being done about the effects on the rest of the body. If they're toxic to kidneys, why not to other organs. My super healthy eating daughter has been in agony for the last 5+ years and gets no answers from her highly rated doctors. Please check out Sally Norton's new book on toxic foods.

I was told I had CKD when I had my first Calcium Oxide stone 6 years ago. I was given a diet and I recall Spinach was on top of the list of no no's. I had the same reaction as you. A good part of the list was typically everything that was supposed to be good for you and it was easy to follow. I was never a big water drinker but started consuming more and went at least a couple of years squeezing fresh lemon juice into each glass. I fell off the diet train after a couple of years but I still do not eat spinach, sweet potatoes and a few others but here we are again 6 years later with 2-more stones, one very large that required lithotripsy. I will dig up the diet again and give it another go. After a rough start, I'm finally clear. My kidney is still inflamed but other than that everything else is ok. Acetomenaphin every day until the inflammation disappears.

Yes, drinking sufficient fluids to preempt stone formation is a challenge. Your intake should be based on your weight. I keep a water bottle with amount and time markings always close by. You can make water intake more amenable via soups (low sodium) and an herbal tea.

Hi Raf. Yes, drinking a lot of water daily can be an issue if you're not used to it. Remember, there is not necessarily one amount that fits all. Some bodies are larger and some smaller. Therefore look for a range that fits your size and condition. One to two liters daily depending on size. Also make sure you don't sip all day and then consume a liter in an hour. That will put too much pressure on the poor little kidneys. Johnmacc

When I was experiencing some a.m. voice issues related to acid reflux the ENT doctor I saw recommended drinking warm water. I actually found it easier to consume more water throughout the day by drinking warm water. Sally Norton (Who was mentioned in a earlier post here) says she breaks out spring water to drink in the afternoons, as I recall from hearing her talk. Sometimes I find this can help with water intake too, provided the product has a limited salt and nitrate content (or whatever you personally need to monitor).

Has anyone had a Cat Scan and seen small cysts on a kidney and crystals found on a urine culture. Not sure what this all means. Still have bladder pain.Waiting for appointment with a urogynecologist and nephrologist.

Wonderful news. So relieved to hear you switched doctors. Maybe over time your CKD will reverse. Your diet is very similar to what i am on. I am at the beginning of possible kidney stones. Crystals in the urine, small renal cysts on one kidney, recurrent UTI's.
Now i am a vegetarian.
No alcohol, no wheat, lots of oatmeal, basmati rice, beans, and vegetables. Oat milk, no dairy, only nonfat greek yogurt. Praying bladdet pain subsides. Have appointment with urogynecologist then a nephrologist.
Good luck to you.
Take care.

Hello @deyo5656, Just read your posting, I am a kidney transplant recipient and my wife - the donor- my wife was close to be turned down for the donating her kidney - as she had too many oxalates ... but my super thanks to a brilliant nephrologist who was evaluating my wife as kidney donor ... she put her on a low oxalate /purine diet and also in the process noticed she was taking calcium supplement that exceeded 1000% of RDA, stopping the supplements and following the low oxalate/purine - In 40 days my wife was deemed fit for kidney donation to me. Best