Has anyone experienced internal vibrations?

Hello,
Im 40 years old and been living with these issues for several years now becoming worse with time.
Currently is call it a flare up but I get severe internal vibrations through out my entire body. The vibrations do not stop I get severe muscle spasms in legs, feet(feels like toes are going to pry foot apart) and hands that often cause me to drop things or fall. I get muscle jerks which feel very different more like a rubber band snap but my muscle pulling inward ( abdomen, arms and legs). I have joint pain in hips, wrist, elbos and feet. I cant sleep constantly in pain or movement. Im beyond fatigued unsure from sleep loss or pain. My brain is a mess with migraines and liss of attention and retention of memory.
2017 I had Valley Fever pretty bad and it was dormants. My vibrations and pain started in 2018 and infectious disease docs at VA hospital declared not related. It took till 2021 for VA to get me into neurologist that found some brain lesionsin frontal left lobe and labs showing I had internal shingles. I was medicated and felt great for about 6 months then back again while I was pregnant and increased with issues and pain after pregnancy. I currently am waiting to see a diff neurologist but appointments keep getting pushed back. I am on duloxetine60mg for depression and hopes would help pain and vibrations. It seems that i will get about 2 month gaps when feel pretty good then one day it all flares up again for months. It calms as fast as it comes on but been this way for several years. Only thing that mildly help is very and I mean very hot baths. Any insight or valudation Im not crazy and what Im going through would be great!

Hi. I am sorry you are faced with this and no answers to date.
I did find your post interesting. I have had an internal vibration that wakes me from my sleep only since March 2021. I feel mine in my thoracic area. However, I too had INTERNAL shingles in oct of 2020 continued suppression therapy until dec of 2020. I have experience 2 more upticks of internal shingles suspected on my part then confirmed with IGM and IGg testing for shingles. My PC has recommend I see an neuroimmunologist to evaluated the reoccurrence of shingles. Could you be having a reoccurrence of shingles? Are the lesions suspect of MS? This was another diagnosis that my rheumatologist has ruled out autoimmune disease now with blood tests of your ANA tiger which is markers to evaluate inflammation in your body. I do experience hip and groin pain, fatigue, and lots of burning( working with a pelvic physical therapist right now) on left side only as well as left thoracic pain and pulling and nightly vibration. I would be interested to know if shingles is playing a part in this vibration. No muscle relaxer or gabapentin is a help. Valacyclovir to for suppression of shingles. Only antibiotic ciproflaxin and doxcycline has almost eliminated the burning pain in hips, lower back, groin but not the vibration in my thoracic. ( cipro made it worst in my hands at night thrust awake). In the middle of 14 day dose of doxicycline for overgrowth of ureaplasma which can spread beyond the pelvis I just found out. I hope they have checked your magnesium levels with muscle cramping too. Hope you get some answers. My sanity comes from the app “Insight timer” meditations, talks, music for sleep and calming the sympathetic nervous system. It’s got 195000 free mediations to try! Don’t give up!

Hi, I have those internal vibrations and it raises my blood pressure. It gives me bad headaches and I am going crazy, neurologist don't know what is but I have white matter brain disease that I found on MRI wish I could find a resolution because it 's very bad.

Thank you for the support! I know the burning your talking about I get I have it also but no else enderstoood when I tell them there are days it feels like my skin is burning from the inside. Shoot I have wondered if it was internal shingles AGAIN but getting VA to check is impossible as my Dr Zarnik advised thats not real... idiot!!! Any way I. Sorry you are going through similar I know how bad the sleep deprivation makes it. I do not have my neuro apt until end of March so hopefully I can give some updates.

Im sorry you are dealing with this also and the unknown of what doctors offer. I will keep posted as I get answers.

Hello, I’m still having internal Vibrations as I describe them. Others may call it tremors. I started having them back in mid Sept. of 2020of the second week. Been to numerous Drs. Had many tests along with MRIs to CTs. Drs sees nothing that can be cause them except 1 area n my mid back where I have a cyst in my spine that may be causing fluid from going through normally. So I did some research in my prescriptions. Starting with something that was my latest meds that I could remember back then that I started. I called my Pharmacist over this past weekend after I googled” can Tremors and Serotonin leveled when taking Tramadol “ and it listed 9 out of 10 symptoms that I’ve been having all this time. Drs know what meds I’m on so I don’t understand how they couldn’t pick up on this. I have a appt in Ann Arbor hosp to start going through a bunch of tests next month, in March that I’ve been on that waiting list for the past year. But after talking a good while w my Pharmacist Saturday along w my family listening n he suggests I see my Family Dr which I do have my appt this Friday to get my next script for my meds. But Pharmacy says it can be very dangerous situation n needs addressed. So I’ve been reading from here for a good couple years from this problem n it seems a lot of you also seeing Drs for having the tremors n I never seen a response from anyone if whatever they done or seen a Dr for these has been resolved. My vibrations started mid Sept in 2020. It started in my left foot and on Nov. of that year it moved up to to my left knee, by December it had moved up both legs up to my waist. I’m anxious near panic attack n so nauseous. I started seeing a Neurologist, to a Neurosurgeon to a foot Dr. And all I got was don’t know. Could be the brain or spinal issue. It’s so uncomfortable I can’t sleep. I’m lucky I sleep 4 hrs a nite. Sometimes 1-2hrs. I do have tinnitus, my head is ringing loud. That’s another dr I’ll be seeing. But w these vibrations, it feels like a motor in my body where I can hear it nearly. It may have something to do w the tinnitus but that’s another time. I can’t rest or sit w out this rumbling going through my body. I’ll lay n then it rumbles all in my lower back and belly and legs. It may slow down to a 5 for couple hours but it’s constantly rumbling n my body like an engine. I don’t know how else to describe this. But I’m really praying it may be a Serotonin level situation. From what I’ve read it can be dangerous n also Gabapentin may be related to. I started that In maybe year and half ago due to nerves making my arms twitch. One Neurologist said I don’t have a Parkinson’s issue. My mom passed in 2017 n she had PD for a few years. So if anyone can comment on their results or Diagnose of Tremors or internal Vibrations I’d appreciate any note’s relating to this subject. I started having the nervy feelings in my arms just shortly after having a Cervical Fusion on my C4-C5-C6-C7 and that’s why they gave me the Gabapentin. But the tremors r all inside from waist to bottom of my feet. So I hope this can lead to some insight of what maybe some meds might be responsible to causing Silent Tremors inside. Hope I hear any replies relating to this matter. Good luck and God Bless all! Thank You much for allowing me to post this.

Hello, I’m still having internal Vibrations as I describe them. Others may call it tremors. I started having them back in mid Sept. of 2020of the second week. Been to numerous Drs. Had many tests along with MRIs to CTs. Drs sees nothing that can be cause them except 1 area n my mid back where I have a cyst in my spine that may be causing fluid from going through normally. So I did some research in my prescriptions. Starting with something that was my latest meds that I could remember back then that I started. I called my Pharmacist over this past weekend after I googled” can Tremors and Serotonin levels be

Replied elsewhere.

Hello @cez1981 and welcome to Mayo Clinic Connect. I saw you were looking to connect with other members on internal vibrations, so you will notice that I have moved your post into an existing discussion you can find here:
- Has anyone experienced internal vibrations?: https://connect.mayoclinic.org/discussion/internal-viberations/

It is great to see that @hope23 @khali and others have joined you already! I will let you all compare your experiences.

Yes, I have them too and is because the White Matter Brain disease. I get all day headaches, high blood pressure which I have not have before, nausea, dizziness