Small Cell Lung Cancer: Let's connect

Posted by Merry, Alumni Mentor @merpreb, Jan 12, 2019

Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

joe6767 | @joe6767 | Dec 25, 2022

I got lobectomie 5 week ago they dint know was carcinoma Dc told me he take everything he can see
Now I’m scare people his telling me he wasn’t supposed to do that because now it’s all spread l don’t know what to think anaymore ?
I’m 62 years old
I don’t eat to much because my billy his hurting all the time it’s 5 week fell My billy all the full l don’t know if it’s stress are something else
I’m suppose to start my chimo in January l just up it’s not to late I try to be strong but some people scare me a lot
Can somebody tell me something about that
Thank you

Colleen Young, Connect Director | @colleenyoung | Dec 27, 2022

In reply to @joe6767 "I got lobectomie 5 week ago they dint know was carcinoma Dc told me he take..." + (show)

Hi @joe6767, I can see you are very scared and want to be sure you are getting the right treatment. It sounds like you might be getting advice from people who are not medical professionals.

The lobectomy surgery did not cause the cancer to spread. Small cell lung cancer is often discovered when it has already started to spread. This may be limited spread or extensive spread. Surgery followed by chemotherapy is commonly used for patients with limited spread.

You should tell your cancer team about your worry and the pain you are experiencing in your belly. Stress can cause pain. Your cancer team can check to see what it causing the pain in your belly and even help you with managing stress.

You may wish to do this online course from Mayo Clinic. It is free and you can do it on your own time:
– Stress Management for Cancer https://connect.mayoclinic.org/blog/cancer-education-center/tab/stress-management/

joe6767 | @joe6767 | Dec 27, 2022

In reply to @colleenyoung "Hi @joe6767, I can see you are very scared and want to be sure you are..." + (show)

Thank you
My billy l think it’s stress to l start restoralax 5 days ago and it’s starting to help
That really help me what you said about spreading
My cancer was stage2b they take 18 lymph node and 7 got some cell cancer
They told me chimo prevent with spreading after surgery they told me that can be all gone just to be sure my nodule was 3.5 cm they told me was really small but start at 2 cm or 2.5 l don’t remember
Than thank you again l can sleep a little bit better tonight xo

peachie | @peachie | Feb 12, 2023

In reply to @joe6767 "Thank you My billy l think it’s stress to l start restoralax 5 days ago and..." + (show)

I HAD 11 IV CHEMO TREATMENTS & 52 RADIATION. I HAVE BEEN ON XALKORI FOR 5 YEARS NOW AND NO SIGN OF CANCER. IF I STOP TAKING XALKORI WILL THE LUNG CANCER RETURN? (NEVER SMOKED)
SHIRLEY

Colleen Young, Connect Director | @colleenyoung | Feb 13, 2023

In reply to @peachie "I HAD 11 IV CHEMO TREATMENTS & 52 RADIATION. I HAVE BEEN ON XALKORI FOR 5..." + (show)

@peachie, that is a good question to ask your oncologist. Your oncologist can talk about the risk of recurrence with Xalkori vs without treatment based on the specifics of your situation.

How are you managing the side effects?

peachie | @peachie | Feb 14, 2023

In reply to @colleenyoung "@peachie, that is a good question to ask your oncologist. Your oncologist can talk about the..." + (show)

YES, I DID TALK TO MY ONCOLOGIST .
I HAVE SO MANY SIDE EFFECTS FROM XALKORI.
THANK YOU FOR YOUR RESPONSE ARE YOU A NP?

Colleen Young, Connect Director | @colleenyoung | Feb 14, 2023

In reply to @peachie "YES, I DID TALK TO MY ONCOLOGIST . I HAVE SO MANY SIDE EFFECTS FROM XALKORI...." + (show)

I'm not an NP or a doctor, but a fellow supporter. 🙂
You're not alone in having to weigh quality of life over quantity. Since there is no evidence of disease, might it be possible to take a "treatment vacation" for a while? Sometimes this is possible so that you can get a break from the side effects.

What did the oncologist say about the risk of the cancer returning?

peachie | @peachie | Feb 14, 2023

In reply to @colleenyoung "I'm not an NP or a doctor, but a fellow supporter. :-) You're not alone in..." + (show)

HE SAID IT WOULD RETURN, DANG. I CAN TAKE A 4 DAY BREAK ONCE IN A WHILE. OTHER WISH I HAVE TO TAKE XALKORI EVERY 3 DAYS. CT EVERY 3 MONTHS & BLOOD WORK WORK UP EVERY 6 WEEKS.

THANK YOU COLLEEN AND I HOPE YOU HAVE AN OUTSTANDING VALENTINES DAY!

peachie | @peachie | Feb 14, 2023

In reply to @peachie "HE SAID IT WOULD RETURN, DANG. I CAN TAKE A 4 DAY BREAK ONCE IN A..." + (show)

RIGHT NOW I DON'T HAVE NON SMALL LUNG CANCER.

sksnow | @sksnow | Jan 26 9:13am

What happened to the sclc group/chat? I was excited to find it but theres been no activity for years

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