Small Cell Lung Cancer: Let's connect

Posted by Merry, Alumni Mentor @merpreb, Jan 12, 2019

Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

I was diagnosed with limited SCLC on 6/21/2022. I started treatment on 7/25/20022 and completed 4 cycles of carboplatin and etoposide as wee as 33 radiation. After the 4th series of carboplatin/ etoposide + 10 radiation treatments,my peripheral neuropathy symptoms were worse than after previous infusions when symptoms diminished with time. It has been three weeks after completion and the symptoms have not subsided. In addition, I now have significant shortness of breath with minimal exertion. Is this a normal consequence of the treatment? What can help mitigate these symptoms. Should I notify my treating physician at this time? Any and all recommendations are welcome.
Timothy T.

REPLY
@tymish17

I was diagnosed with limited SCLC on 6/21/2022. I started treatment on 7/25/20022 and completed 4 cycles of carboplatin and etoposide as wee as 33 radiation. After the 4th series of carboplatin/ etoposide + 10 radiation treatments,my peripheral neuropathy symptoms were worse than after previous infusions when symptoms diminished with time. It has been three weeks after completion and the symptoms have not subsided. In addition, I now have significant shortness of breath with minimal exertion. Is this a normal consequence of the treatment? What can help mitigate these symptoms. Should I notify my treating physician at this time? Any and all recommendations are welcome.
Timothy T.

Jump to this post

Hello Timothy! My name is Dee. I was diagnosed limited in July 2021. NED at present soon to scan again praying still same. I have finished treatments in October last year and still have some shortness of breath. I had horrible neuropathy for which I was prescribed Neurontin. Not liking the way it made me feel I just suffered it out. My neuropathy slowly started to subside and everything seems to be back to normal. If your shortness of breath continues to bother you tell your oncologist. They have pulmonary therapy and other things to help. I’m sorry you are going through this but we caught our cancer early so we will have a better outcome. Hugs talk anytime you need.

REPLY
@vlpr

How do you feel about that? I still have that decision to face after my 2 remaining Chemo sessions. So far I've tolerated the 2 previous sessions ok. I'm a little concerned about the next 2 sessions (3 days each). Nothing to do but get on with them. Enjoy the days before.
VLPR

Jump to this post

Just finished my 10 sessions of preventative brain radiation. I had no problems. So glad it is over with though.

REPLY

I was diagnosed with sclc stage 1, then 6 months later I was diagnosed with brain cancer. Now, two years later I was diagnosed with liver cancer. I’m very depressed.

REPLY
@mustangdee64

I was diagnosed in July 2021 with limited small cell. 5cm tumor in left chest and three nodes. I went through standard treatment and have been NED since. This coming 15th will be a year since chemotherapy was completed. I am suffering some radiation side effects but mostly mental pain.

Just waiting for it to return and living in three month increments, scans and repeat. I lost my ability to work and basically my livelihood. Two adult children live with me they never left home. I supported everyone until I got sick.

There are three small children here, one is mentally disabled. I have been unable to find peace, let alone have a silent moment for a thought.

There’s no where else for them to go. I centered my life around them so I am spouse less and friend less. They have no one too.

Life really sucks now.

Jump to this post

I’m not exactly in the same boat, but I also had sclc, a few months later it went to my brain. This was in 2020 & 2022. Living life in 3 month increments is not fun. I had a seizure, then they removed the tumor in my brain. That was a year ago. Now they just found a lesion in my liver.

REPLY
@daisy9460

I’m not exactly in the same boat, but I also had sclc, a few months later it went to my brain. This was in 2020 & 2022. Living life in 3 month increments is not fun. I had a seizure, then they removed the tumor in my brain. That was a year ago. Now they just found a lesion in my liver.

Jump to this post

I’m so sorry to hear this. Are you taking immunotherapy?

REPLY
@mustangdee64

I’m so sorry to hear this. Are you taking immunotherapy?

Jump to this post

Yes

REPLY

Was anyone treated at Moffit for lung cancer

REPLY
@amatics

Was anyone treated at Moffit for lung cancer

Jump to this post

Welcome @amatics. I believe fellow lung cancer members @remi @popkorhn @dedehans @cwm1 @shamrock5jeg @seaspray have experience with treatment at Moffit.

Amatics, do you have small cell lung cancer?

REPLY
Please sign in or register to post a reply.