1. < Heart Rhythm Conditions

Heart Rhythm Conditions – Welcome to the group

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Feb 14, 2018

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

kancha | @kancha | Feb 8, 2023
In reply to @dj5484 "Hi, I am new to the group and this is my first post. I am 61..." + (show)
@dj5484

Hi, I am new to the group and this is my first post. I am 61 woman. I have had four ablations, the last one was Nov 28,22 I have developed PVC's and PAC's and continue to have some mild SVT's but NO afib, or other arrhythmias I was having. I asked to try verapamil again, and have been on it for two weeks, the SVT's have stopped but not the PVC and PAC's which are very symptomatic. My EP has suggested I go in the hospital and start Tikosyn. I don't want to. There must be another choice....and if PAC and PVC are not dangerous why would he suggest such an aggressive treatment? HELP

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Hi, I understand your concern. I was suggested Tikosyn three years back and my immediate reaction was same. But then after thinking more I agreed to take it. BP jumped to 180 after first dose but nurse and doctor were alert. I was okay. I was on Tikosyn for two years then after Pfizer vaccine I was again in Afib so I agreed to go for ablation. For a year and half I was okay without Tikosyn but then with Afib recurrence I was admitted to hospital and took it again with lesser dose. It is going to be two months and except for few small episodes I am okay. I do not have any visible side effects and continue with Dofetilide 1.5 mcg and Eliquis 5 mg both twice a day.
You can try if your medical group is trust worthy.

REPLY
hunby2blas | @hunby2blas | Feb 8, 2023
In reply to @dj5484 "Hi, I am new to the group and this is my first post. I am 61..." + (show)
@dj5484

Hi, I am new to the group and this is my first post. I am 61 woman. I have had four ablations, the last one was Nov 28,22 I have developed PVC's and PAC's and continue to have some mild SVT's but NO afib, or other arrhythmias I was having. I asked to try verapamil again, and have been on it for two weeks, the SVT's have stopped but not the PVC and PAC's which are very symptomatic. My EP has suggested I go in the hospital and start Tikosyn. I don't want to. There must be another choice....and if PAC and PVC are not dangerous why would he suggest such an aggressive treatment? HELP

Jump to this post

try metropolol see which one tartrate or the succinate which either works best for you, this works for me

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bbeebe1943 | @bbeebe1943 | Feb 9, 2023

It's not supposed to be a common side effect but I experienced hair loss while on Metropolol, so I stopped taking it and condition improved.

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fine | @fine | Feb 10, 2023

Hello, New to this group and have questions about ablation.
My 73 yr old husband is considering ablation for paroxysmal afib. The afib was discovered during pre-eval testing for autogulous SCT. The transplant took place in September 2022. During the high dose chemo of the inpatient stay he was placed on metropolol for ventricular RVR. Currently he is taking diltiazem due to side effects from metropol.
The EP indicated that it is common to continue to take antirhymic drugs after ablation. We understood that the Eliquis would be continued but were surprised to hear about the continuation of the antirhythmic drug.
In addition we were informed about clinical trials of a new technique of ablation called PFA - pulsed field ablation - with higher success rate and lower adverse events.
Would like to hear about others experiences. THANKS !

REPLY
1 reply
hunby2blas | @hunby2blas | Feb 12, 2023
In reply to @fine "Hello, New to this group and have questions about ablation. My 73 yr old husband is..." + (show)
@fine

Hello, New to this group and have questions about ablation.
My 73 yr old husband is considering ablation for paroxysmal afib. The afib was discovered during pre-eval testing for autogulous SCT. The transplant took place in September 2022. During the high dose chemo of the inpatient stay he was placed on metropolol for ventricular RVR. Currently he is taking diltiazem due to side effects from metropol.
The EP indicated that it is common to continue to take antirhymic drugs after ablation. We understood that the Eliquis would be continued but were surprised to hear about the continuation of the antirhythmic drug.
In addition we were informed about clinical trials of a new technique of ablation called PFA - pulsed field ablation - with higher success rate and lower adverse events.
Would like to hear about others experiences. THANKS !

Jump to this post

Everyone is different I can take merropolol but not diltiazem I get a bad reaction from it, study the drug when taking it find a drug that works for you then I find a Dr to give it to me

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deborah67 | @deborah67 | Feb 21, 2023

Hi my heart rate is low but when I stand up it goes too high. I have low blood pressure which has dropped to 50 over 42 when I stand up. Some times I fall down. I am on meds now though. Just a couple of weeks ago my heart started to feel weird and it felt like there was so much pressure in my head. When I went to the hospital, I was driving when it happened, my blood pressure was 245 over 145. They hooked me up and just caught the end of it. Was sent to do a cardio stress test which was fine except for the low blood pressure. My heart went into a abnormal heart rhythm when I was in the hospital, which was for something else. These abnormal rhythms only happen when I am not doing anything. The Dr in the hospital wants my Dr to send me to see a cardio Dr. The low blood pressure only started happening after I recovered from septic shock. Anyone have any ideas what could be going on? Also my mother died of cardiac arrest when she was 57.

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1 reply
Mentor
Dana, Volunteer Mentor | @danab | Mar 17, 2023
In reply to @deborah67 "Hi my heart rate is low but when I stand up it goes too high. I..." + (show)
@deborah67

Hi my heart rate is low but when I stand up it goes too high. I have low blood pressure which has dropped to 50 over 42 when I stand up. Some times I fall down. I am on meds now though. Just a couple of weeks ago my heart started to feel weird and it felt like there was so much pressure in my head. When I went to the hospital, I was driving when it happened, my blood pressure was 245 over 145. They hooked me up and just caught the end of it. Was sent to do a cardio stress test which was fine except for the low blood pressure. My heart went into a abnormal heart rhythm when I was in the hospital, which was for something else. These abnormal rhythms only happen when I am not doing anything. The Dr in the hospital wants my Dr to send me to see a cardio Dr. The low blood pressure only started happening after I recovered from septic shock. Anyone have any ideas what could be going on? Also my mother died of cardiac arrest when she was 57.

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Hi Deborah, just checking in, were you able to get scene about you blood pressure problems? Were you successful in getting that cardio appointment?

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1 reply
lorrainej | @lorrainej | Mar 18, 2023

Mary. I have mitral valve regurgitation with irregular heartbeat. Last summer my cardiologist put me on Eliquis. I don't like talking it. I read that blood thinners are not as effective in preventing a stroke in women.

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1 reply
windyshores | @windyshores | Mar 18, 2023
In reply to @lorrainej "Mary. I have mitral valve regurgitation with irregular heartbeat. Last summer my cardiologist put me on..." + (show)
@lorrainej

Mary. I have mitral valve regurgitation with irregular heartbeat. Last summer my cardiologist put me on Eliquis. I don't like talking it. I read that blood thinners are not as effective in preventing a stroke in women.

Jump to this post

@lorraine do you have afib? Continuous or sporadic? How frequently?

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mbeck5 | @mbeck5 | Mar 18, 2023

Good morning. I have been in and out of AFIB for over a year, have a sleep study scheduled in April and an ablation procedure scheduled for July. Taking Eliquis(5mg 2xday) and Losartan(50mg 1 x perday). I am interested in the type of magnesium recommended by anyones doctor. I was taking magnesium citrate and have switched to magnesium taurate which had a lot of positive anecdotal reviews about managing AFIB but curious if anyone has an opinion. Also my Cardiologist with VCU uses cryo for ablation. Will ask him about PFA. I did see a positive article on the PFA procedure dated Dec, 2019 so will be asking him about Cryo vs PFA.

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