How long have you had post-covid?

Posted by eyja @eyja, Jan 25, 2023

I´m hopin that my son and I recover soon. Of course. We´ve had it for six months now.
How long have you had it?
Would love to hear from those who are still as ill, as well as those that have started recovering and those who have recovered.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for lynnryan @lynnryan

I got mild COVID in the very beginning, March 2020. LC symptoms developed 6/2020, all neurological in nature: vision problems, light/sound sensitivity, tremors, muscle and joint pain, fatigue, light-headed/dizziness, nausea, migraines. Unfortunately my symptoms have never improved, and I haven’t been able to work since. Have been to multiple specialists, including Mayo. They have tried numerous medications and treatments to no avail. The one thing that did help is the 3 week Mayo Clinic Pain Rehab. It doesn’t fix you, but rather help you understand what is going on in your body, with tools and practices to help you live with it.
Good/Bad news is that I finally got approved for Social Security Disability last October. Happy to have finally been approved, but sad this illness changed my life so drastically.

I have heard that people who got LC in the beginning have the worst of it, since we got the full viral load and no vaccines, etc, had been developed. I pray you and your son have a solid recovery soon. 💗

Jump to this post

Congrats on getting disability. I was told I need to work another two years before I can apply again. I am a teacher/tutor, right handed with a right hand and right leg tremor. Writing is not fun.

REPLY

I HAVE HAD POST COVID FOR. 7 MONTHS. NO RELIEF

REPLY

Had Covid last week in October 2022. Took me about 3 1/2 months to feel normal again. Was very tired and needed to stop whatever I was doing.
I walked whenever I could and increased my distance. I believe that this helped in my recovery. My PCP was ok with what I was doing.
Good luck to you both.

REPLY

So sorry to hear that! Did you have an attorney help you? After I got denied the first time, I got one, and it helped a lot. By law, they can only charge a flat fee, which would come out of any back pay. I believe it’s like $3-4k. Best of luck to you! ❤️‍🩹

REPLY

Had covid in Dec 2019 and have been in long covid since Jan 2020...internal tremors have been 24/7 since summer of 2021 and though the fog has lifted somewhat the lack of sleep makes daily living a challenge.

REPLY
In reply to @bettyjackson "3 yrs this March." + (show)
Profile picture for bettyjackson @bettyjackson

3 yrs this March.

Jump to this post

Going on 2 years. Like a roller coaster- start to get better and then regress. Warm weather has helped me. To anyone experiencing the LC roller coaster- keep fighting- we are all warriors and it takes alot of time, patience and self love/care. Its ok to feel like a defeated warrior sometimes- but every time you fall and get back up- you continue to be a strong, brave person- who is not defined by LC. This will pass. Sending hope out.

REPLY

Since November 2020 slowly getting better

REPLY
Profile picture for bereese @bereese

Had covid in Dec 2019 and have been in long covid since Jan 2020...internal tremors have been 24/7 since summer of 2021 and though the fog has lifted somewhat the lack of sleep makes daily living a challenge.

Jump to this post

Same here...Got Covid late Feb-early March 2020. Then had to have my gangrenous gall bladder removed April 1st. So, between recovery from that and covid LC symptoms, I'm not sure when LC set in but, here it is close to 3 years later and am still dealing with LC "normals" ...extreme fatigue, brain fog, complete exhaustion following a simple 20 minute walk...But the internal tremors are truly disturbing...frightening actually, as my wildly creative imagination visualizes the tremors as the covid virus nibbling at my central nervous system.

REPLY
Profile picture for fiddlesticks @fiddlesticks

Same here...Got Covid late Feb-early March 2020. Then had to have my gangrenous gall bladder removed April 1st. So, between recovery from that and covid LC symptoms, I'm not sure when LC set in but, here it is close to 3 years later and am still dealing with LC "normals" ...extreme fatigue, brain fog, complete exhaustion following a simple 20 minute walk...But the internal tremors are truly disturbing...frightening actually, as my wildly creative imagination visualizes the tremors as the covid virus nibbling at my central nervous system.

Jump to this post

I share so many of your symptoms! Scary to read that the lc vibration is damaging your organs...and the tremor is so constant is worrying...and my lc is messing with my thyroid, up and down with the dosage, but many have it worse, so hang in there and get some sleep!

REPLY

I never heard of post or long COVID until my friend, a nurse, told me she thinks that is what I'm experiencing. I had COVID the end of September into October of 2022. Now I get horrible, migraine type headaches, shortness of breath, achy joints and fatigue like I've never had before. I'm almost relieved that it has a name. But, I hope it goes away soon. I can't imagine how long this will last.

REPLY
Please sign in or register to post a reply.