Problems After Hysterectomy: Abdominal Pain & Cramps

Hi Patram,

I'm afraid that my reply won't be very helpful but I wanted to let you know that someone has seen it (me).

If I were you, I would call the doctor's office or contact them through the patient portal (get their answer in writing). That's what they get paid for, and they probably got paid a lot for your treatment. I'm just encouraging you to call. You have the right to their attention. Don't hesitate.

If you bought a new appliance and it stopped working, then you would call the seller, right? Then call your doctor. (Sorry if this sounds witchy, but a lot of times women hesitate...)

Best of luck to you!

Thank you 😊

Yes but no one including my urologist says anything is wrong but I can’t believe that because of all the symptoms and pain.

I have seen a gyno and a urologist. It’s been a couple of years ago and they said, sometimes that happens, talking about the blood in the urine. Back then it was maybe once a month now I have blood in my urine daily and the cramping is getting really bad. I’m trying to get another urologist now. My gyno said that all my symptoms were with urology.

Have you ever been told you have pelvic congestion syndrome? I have it plus endometriosis and cysts I just had a hysterectomy 2 weeks ago, but I also had coils placed a year ago for pelvic congestion syndrome. I'd look into it if I were you.

Hi- I know it’s been a while since your post, but I came across it searching for references to pelvic congestion syndrome. I was wondering if you might be willing to share anything your experience…how you were diagnosed or your experience with treatment?

A Mayo doctor ordered a pelvic CT for me, because I have POTS, hypermobility, and pelvic pain, and there may be signs of pelvic congestion. I have an appointment to discuss findings with interventional radiology. But I haven’t been screened for endometriosis or fibroids yet (exams and imaging are very difficult for me). I’m worried about how to know with more certainty pelvic congestion could be a cause of my pain, when there are also so many other potential causes that are also difficult to diagnose, so just wanted to reach out if you were willing to share anything about your experience. Thanks so much!

So I am almost a week post ovaries removed and am having a lot of pain in my right hip and leg...

Since I was younger my periods were always the worst, as were my sisters, my sister was diagnosed with pcos and endometriosis. Eventually I too was diagnosed with both of those. After having my son and getting close to age 30 I decided I can't take the painful periods, so at first my ob did my tubes, but that didn't help so I started lupron depo to enduce menopause... and for the 1st time I didn't have pain it was wonderful! After 6 months on that he decided a partial hysterectomy was for the best...then covid hit...so eventually they were able to do my surgery may of 2020. He said he removed all the endometriosis and left both ovaries...I was so happy it was over...fast forward to September 2022 pain on my right side started doctors kept saying I had kidney stones and infections, I had a CT scan saw a kidney doctor he told me that isn't causing my pain, I was so frustrated finally may 2023 after months of doctors not listening saying it was nothing, I had an ultrasound..they found not 1 but 2 masses inside my left ovary...I was sent to see an ob cancer doctor, we talked for hours at my appointment he said when I was on the lupron and had no pain it should have been determined to do a full not just a partial. He also said he didn't believe it to be cancer but my endometriosis...so only july 14 2023 he removed both ovaries and it was infact my endometriosis...

they made 5 cuts on my stomach and my right hip and back and leg have been killing me...is this normal or should I be worried?

I don't know, but I am sending hugs and sympathy! (and this post should keep your original post in the Daily for tomorrow, too, for more people to see.)

Call the surgeon? or your primary doctor? or your health insurance nurse line? Maybe all of them? It doesn't sound right to me, but I don't have experience with it.

You shouldn't have to suffer, especially not with new symptoms.

annewoodmayo | @annewoodmayo

Like you, I suffered with endrometerious for teen years till 40, one ovary removed at 18, many laparoscopy and finally total hystrictomy at 40.

I wonder seeing so soon after surcery if just your body healing. They proably had to cut through some muscle / fat to get to the ovary. But like previous response, call the surgeon and ask if that is normal.

Make sure you watch for any sign of infection ( redness).

Laurie