Oh my, painful symptoms, could you suggest a CT, and or a MRI. with CONTRAST? Maybe a different doctor would be willing to explore your situation.,
Usually a hysterectomy solves issues not causes them. Best wishes for you to get a diagnosis to have peace of mind.

@cherelle Welcome to connect ,we all care for each other Has your surgeon suggested to you about adhesions?Have you talked to your surgeon? I never had any other surgery but heart but I know adhesions can cause a lot of problems for people.just a thought

Hello, @cherelle. Welcome to Mayo Clinic Connect. I can imagine having such bad abdominal pain and cramps would be very hard, and you'd want to figure out what is going on.

Glad you've connected with @lioness and @pattitoo. I'm also hoping @bongs who started this conversation will return and @smot73 @nurseheadakes @sandytoes14 @judibutter @gingerw who've mentioned full or partial hysterectomy will return to share their experiences post-hysterectomy with any symptoms a year-plus post surgery and also provide some support. @baxtersmom may also have some input.

Thus far, @cherelle, has the glycopyrrolate the gastroenterologist prescribed helped at all with the abdominal pain and cramping?

Oh my word! I'm sorry you are going through this. I am two years out, and I still cannot wear a waistband in a certain area. The waistband on my pants has to be higher or lower or I get a weird pressure pain/cramp, but nothing that causes such severe pain. I also had a prolapse repair so often after a bowel movement I will have pretty bad cramping (somewhere down there) that requires me to sit and be still for a bit. It typically only last a few minutes. I also still get "swelly belly", where your abdomen swells and gets hard after heavy activates or exercise. It used be everyday, by evening, I would be swollen. Now it is only when I'm super active. I say that only to let you know, I believe after two years I am still not 100% healed. I don't have any new issues, but the old ones are still hanging around. You may want to make a fuss with your doctors to see if they can get to the bottom of what is causing your cramping, especially if it wasn't there before. Keep us posted- @cherelle All the best!

@lisalucier

Hello, @cherelle. Welcome to Mayo Clinic Connect. I can imagine having such bad abdominal pain and cramps would be very hard, and you'd want to figure out what is going on.

Glad you've connected with @lioness and @pattitoo. I'm also hoping @bongs who started this conversation will return and @smot73 @nurseheadakes @sandytoes14 @judibutter @gingerw who've mentioned full or partial hysterectomy will return to share their experiences post-hysterectomy with any symptoms a year-plus post surgery and also provide some support. @baxtersmom may also have some input.

Thus far, @cherelle, has the glycopyrrolate the gastroenterologist prescribed helped at all with the abdominal pain and cramping?

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@lisalucier Thank you for inviting me into this conversation. @cherelle Welcome to Mayo Clinic Connect! Looking up the medication your Dr prescribed, it shows the main reason to use it is to decrease secretions. Why was that prescribed?May I ask, what was the reason for the total hysterectomy? [When I had mine Jan 1999, it was for fibroid tumors; they removed more than 7 pounds of tumor. I had no aftereffects, and no negative post-op issues.] If the reason for your surgery was endometriosis, might there be some scarring internally that is irritated during intercourse? Might there be some endometrial tissue regrowing? Also, thinking off the top of my head, might there be a shift of some internal organs that has occurred slowly in these three years, so that nerves are being triggered or moved? Have you had abnormal weight gain, or loss? It seems some further testing/imaging by your doctor is in order. Please let us know what course of action you decide to follow, and the results. We care here at the cyber table, about your well-being.
Ginger

@lisalucier

Hello, @cherelle. Welcome to Mayo Clinic Connect. I can imagine having such bad abdominal pain and cramps would be very hard, and you'd want to figure out what is going on.

Glad you've connected with @lioness and @pattitoo. I'm also hoping @bongs who started this conversation will return and @smot73 @nurseheadakes @sandytoes14 @judibutter @gingerw who've mentioned full or partial hysterectomy will return to share their experiences post-hysterectomy with any symptoms a year-plus post surgery and also provide some support. @baxtersmom may also have some input.

Thus far, @cherelle, has the glycopyrrolate the gastroenterologist prescribed helped at all with the abdominal pain and cramping?

Jump to this post

The medication my gastro Dr gave me is helping but now I am having the cramps more often

@gingerw

@lisalucier Thank you for inviting me into this conversation. @cherelle Welcome to Mayo Clinic Connect! Looking up the medication your Dr prescribed, it shows the main reason to use it is to decrease secretions. Why was that prescribed?May I ask, what was the reason for the total hysterectomy? [When I had mine Jan 1999, it was for fibroid tumors; they removed more than 7 pounds of tumor. I had no aftereffects, and no negative post-op issues.] If the reason for your surgery was endometriosis, might there be some scarring internally that is irritated during intercourse? Might there be some endometrial tissue regrowing? Also, thinking off the top of my head, might there be a shift of some internal organs that has occurred slowly in these three years, so that nerves are being triggered or moved? Have you had abnormal weight gain, or loss? It seems some further testing/imaging by your doctor is in order. Please let us know what course of action you decide to follow, and the results. We care here at the cyber table, about your well-being.
Ginger

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I had the hysterectomy because of fibroids and my cycle lasted 2 weeks but of late I get the cramps after sex and after my hysterectomy I gained weight but now I am losing and its after sex I'm sore and low sex drive

I looked up glycopyrrolate on WebMD and a side effect is cramps.
I had a total robotic hysterectomy for endometriosis and still kept having crampy pain but no one could find anything. Then last summer started having unnatural bleeding, but still no one could find anything. Finally my GP found it and said it was possibly an endometriosis breakthrough. She had my ob/gyn
cauterize it

@cherelle

I had the hysterectomy because of fibroids and my cycle lasted 2 weeks but of late I get the cramps after sex and after my hysterectomy I gained weight but now I am losing and its after sex I'm sore and low sex drive

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@cherelle There is a natural hormone reduction when a hysterectomy is performed. If you are or are not on hormones, you might want to have the hormone levels checked. Certainly keep after the doctor until your concerns are answered in a manner that you are satisfied with. Get a second opinion if need be. We shouldn't have to suffer needlessly.
Ginger

@pattitoo

Oh my, painful symptoms, could you suggest a CT, and or a MRI. with CONTRAST? Maybe a different doctor would be willing to explore your situation.,
Usually a hysterectomy solves issues not causes them. Best wishes for you to get a diagnosis to have peace of mind.

Jump to this post

I am going to see another doctor because I can't take the pain and suffering thanks

@lioness

@cherelle Welcome to connect ,we all care for each other Has your surgeon suggested to you about adhesions?Have you talked to your surgeon? I never had any other surgery but heart but I know adhesions can cause a lot of problems for people.just a thought

Jump to this post

I just heard about it and my Dr on leave so I am going to another dr

@airey2

I looked up glycopyrrolate on WebMD and a side effect is cramps.
I had a total robotic hysterectomy for endometriosis and still kept having crampy pain but no one could find anything. Then last summer started having unnatural bleeding, but still no one could find anything. Finally my GP found it and said it was possibly an endometriosis breakthrough. She had my ob/gyn
cauterize it

Jump to this post

Same thing going on with me thanks so much I appreciate the information I will go back to my 800 mg ibuprofen

@gingerw

@cherelle There is a natural hormone reduction when a hysterectomy is performed. If you are or are not on hormones, you might want to have the hormone levels checked. Certainly keep after the doctor until your concerns are answered in a manner that you are satisfied with. Get a second opinion if need be. We shouldn't have to suffer needlessly.
Ginger

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YES I will thanks

I had a total hysterectomy April 24 2019. Lap and vaginal. after 3 weeks I started having leg, knee, hip, arm, shoulder and even hand pain. It is every day. Has anyone had this and found any relief? frustrating when my MD does not care about much except my incisions…. I have never had any pain like this prior. Any advice would be most appreciated.

@tinakoprek

I had a total hysterectomy April 24 2019. Lap and vaginal. after 3 weeks I started having leg, knee, hip, arm, shoulder and even hand pain. It is every day. Has anyone had this and found any relief? frustrating when my MD does not care about much except my incisions…. I have never had any pain like this prior. Any advice would be most appreciated.

Jump to this post

@tinakoprek – wanted to let you know I moved your post here so you could connect with others in this existing discussion on problems after hysterectomy. Having leg, knee, hip, arm, shoulder and even hand pain every day sounds very challenging.

Has the surgeon addressed this at all and whether it could be connected to the surgery?