Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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Is there anyone out there with this horrible rare disease/disorder called hemifacial spasms?
After 4 yrs of suffering with this nightmare illness and going through 8 doctors, RN’s, PA’s, telling me they never heard of it or that it’s anxiety, finally the 8th doctor diagnosed it as hemifacial spasms. A very rare neuromuscular nervous system disorder with no cure & what may help is Botox injections or brain surgery! I opted for Botox injections. The first one was 11/29/2021 & my 4th injection caused Botox complications to where it made my whole side of the face droop badly & I even drool some on that side of my mouth. I’ve been going every 4 months. Got my next injections set for April but not I’m thinking it’s just not for me. This 4th visit for Botox has me looking like I had a stroke!!! Anyone else dealing with these issues???

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Profile picture for hope23 @hope23

I have had this internal vibration that started March of 2022. I did have covid -19 at Xmas 2021 and a colonoscopy/endoscopy 2-2022 as my motility almost ceased. Early March I decided to go for walk and while doing some arm circles and my left arm could not be lifted laterally within a 24 hr hour period. I have 98% range of motion today but the internal vibration will not go away. It happens when I sleep and it thrusts me from my sleep anywhere from 3-5 am. I experience mine in my upper left back, near back of my arm and spine since then. Daytime I experience burning, dull ache or tightening of the muscles in my left armpit, upper left arm( in the back , underneath and sometimes pecs area) had a shooting pain in my front left thoracic from my clavicle to last rib a week ago. I am struggling with same daytime pain in my left groin, left hip, left lower back as the year progressed.
I have been to a cardiologist , rheumatologist, neurologist, orthopedic spinal specialist, 2 physical therapist, chiroprator. They are baffled. I had emg of my left side to rule out neurogenic thoracic outlet syndrome. I will have to go a vascular/thoracic surgeon to rule out arterial or vascular thoracic outlet syndrome. Out of all the dr the chiroprator reviewed a full spinal mri and suggested this diagnosis instead of cervical radiculopathy.
Other tests completed: heart holter, echocardiogram, Ana bloodwork ( inflammation markers), spinal decompression, adjustments, laser therapy, 1 prp shot in shoulder, x-rays of spine, left and right shoulder, mri of brain and spine, ct of my pelvis and abdominal area left, ultrasound or pelvis and kidneys and left shoulder.
I don’t find Muscle relaxers or gabapentin helpful as the cause constipation and tremors. I have essential tremor for years but this vibration in my back cannot been seen or felt by anyone else and only happens when I sleep. Most pain relief I have had was a 2 weeks use of meloxicam for inflammation and pain until I got a uti and had 5 day dose of ciproflaxin. The burning flanked pain in my left side, hip and groin which was radiating down my left thigh now subsided to almost 1-2 on pain scale but the vibration in my thoracic increased again.
First night on cipro I woke up with both my hands vibrating nothing visual, night 3 vibration in my left upper Middleback at the spine - all new. I reported this to my pc and he recommends I see an immunologist(waiting). I may have a problem taking quinolone class of antibiotics. This drug has black box warning of tendon damage and nerve damage. ( I have always been very physically active both my Pt and pc warned me of activity) . On top of it I got internal shingles detected by a viral panel- Stress from the drug interaction or uti itself( it was a bad one but first one detected in mutiple years)? I was given levaquin same class antibiotic in 2020 and had my first experience with internal shingles. Connection? Is anyone with this vibration used this same class of drugs and has had covid-19 exposure within 2 or 3 months and / or taking this class of antibiotics?
All of this has not found a diagnosis and or treatment. I stay active now but I cannot do high impact or stressful exercise without consequence. Yoga, tai chi, mediation, walking, cycling, swimming etc. some days or weeks lately very little at all. This has been life altering with no answers in sight.
I currently am taking valtrex for shingle suppression, and Tylenol and my vitamins. Les is more with no diagnosis. May try a week of meloxicam again. Working with a pelvic physical therapist to hopefully eliminate the need for SI joint ultrasound guided cortisone injection and pain relief. My cervical/ thoracic pt is on hold until we know the shingles is completely out of my system.
People are reporting internal vibrations on the internet yet SOME dr are still practicing with blinders on. We need dr to be more investigative after covid, vaccines, and our antibiotics not made in the US to insure quality and side effects. We need them to look at the whole person even if they are specialist. Please help… I have never posted on line before so that is the evidence of desperation and frustration.

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I have the same thing, with vibrations/palpatations waking me middle of night every night. Started taking Melatonin before sleeping. That seems to be working. It hasn't stopped it completely, but has made it much more mild. I do light exercise every morning because its the only thing that seems to relieve the palpatations/vibrations after I get up. Cancer medications I took for seven years, I am convinced caused all of it. I am set up to go t a doctor to have the brain checked out just to be safe. I stopped taking the medication. Dont believe there is a cure for all this, but am hoping that I can through exercise make it less crazy.

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I experienced this yesterday after feeling sick and like was going to pass out. As I laid down I started to experience what I call electrical buzzing that I could physically feel with my hand at any point on my body. This was not twitching. It felt like current running through body .
Is that what yall are experiencing?

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Profile picture for redladyjoni @redladyjoni

Yes I was told it was anxiety also they put me on gabapentin and Valiums and I still have them 24/7 this is been going on a little over 3 months well it's hitting the four-month mark almost now no help no diagnosis ugh

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GAbapentin is terrible don't take

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Profile picture for freeassange @freeassange

I experienced this yesterday after feeling sick and like was going to pass out. As I laid down I started to experience what I call electrical buzzing that I could physically feel with my hand at any point on my body. This was not twitching. It felt like current running through body .
Is that what yall are experiencing?

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Nice username.

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Profile picture for freeassange @freeassange

I experienced this yesterday after feeling sick and like was going to pass out. As I laid down I started to experience what I call electrical buzzing that I could physically feel with my hand at any point on my body. This was not twitching. It felt like current running through body .
Is that what yall are experiencing?

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Hi there @freeassange, welcome. I'm sorry you felt poorly yesterday. How odd it must have been to feel the sensation of an electric current running through your body. I have experienced similar symptoms from neuropathy and central sensitization syndrome.

Was yesterday your first bout with these symptoms?

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Profile picture for freeassange @freeassange

GAbapentin is terrible don't take

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My father and mother both take gabapentin and receive great benefit. Why do you feel so strongly about advising others to not take it? Have you had a poor experience with this medication?

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Profile picture for luckymspenny1 @luckymspenny1

I have had these internal fluttering, vibrations, or buzzing for almost 2 and half yrs now. Started before I had Covid and I have never been vaccinated, that’s my choice for not injecting something into my body that I know nothing about, so please keep all those comments to yourself. I’m here to discuss the symptoms I experience like many others, I too experience them only when lying in my bed, upon waking or falling asleep. Once I’m awake, moving around I don’t experience the vibrational fluttering. I was very scared when they first started, talked with a few drs, heart,spine and general. All said it’s anxiety, I do not believe it because I have no anxiety or stress in my life anymore, yet they are still present. I have had several tests for heart, MRI, and nothing seems to pin point the problem. I believe it has something to do with my central nervous system. All the other drs just want to push drugs on me. I am taking gabapentin and high blood pressure meds. If anyone finds any answers as to what this is or the cause, please share with the rest of us. Thanks

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I,too, am having these symptoms. I was thinking it was connected to Covid until reading your post. Have you heard of Central Nervous System Sensation? It can be found on the Mayo Clinic web site. With so many folks experiencing this, I now think it may be a side effect of WiFi and digital transmission.

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Profile picture for potta54321 @potta54321

Hey there, my name is Tony. I am ending my second year with internal vibrations uncontrollable sweating and extreme anxiety. I thought it had something to do with the Covid vaccinations. I have been to the emergency room three times and they keep telling me I have a cute anxiety. They put me on Xanax but it does not take the vibration away from my innards. My body shakes all over and especially within my organs and my chest. It’s even hard to communicate with society with this going on. It was my birthday yesterday. We were in a 69° room. My entire family knows about this but saw it firsthand yesterday when I was dripping from my nose and my eyelids as well as my ears. I don’t know what it is and I have seen five doctors for it. I have tested for Lyme disease, Rocky Mountain spotted fever, a bad heart or failing organs. I checked out without problems. When a task at hand comes to mind I start sweating uncontrollably. Even writing this message I have begun to sweat. I’m not sure what it is but I wish somebody would figure it out. I’ve had the Covid vaccinations with the booster. I’m pretty sure that’s when it all started. If anybody has any ideas about what is going on, I begged you to tell me how to fix it. My quality of life is gone. My doctor has given up on it since he can’t figure it out. I live in Richmond Virginia. If anyone has any ideas, I will grasp at them. I’m terribly sorry for anyone else going through this because it is by far the worst thing I have ever been through. And it never ends.
Tony-
I need help. Right before this started I bought an old farmhouse do you live in but it needs an astronomical amount of work to get it there. I started out strong but when this hit me, I am unable some days to even drive out there. What is this? Honestly! We need to find out what this is. Thanks for reading my message. I hope to hear back from somebody. Cheers

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Look up CSS, Mayo Clinic doc does a YouTube video on it.

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Profile picture for rudai @rudai

Look up CSS, Mayo Clinic doc does a YouTube video on it.

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Good morning @rudai, @potta54321, @freeassange and others -

Periodically I post about Central Sensitization Syndrome (CSS) for newer members experiencing odd, annoying and somewhat unexplained symptoms.
@rudai, thank you for mentioning CSS. Allow me to post Dr. Sletten's video about chronic pain and the science behind central nervous system sensitization.

Mayo Clinic's Dr. Sletten presents on Central Sensitization Syndrome:


I hope this video brings clarity as to how and why our body's CNS can upregulate and cause confusing, disruptive symptoms like internal vibrations. The good news is that there are ways of managing, coping and working through symptoms to help quell them over time.

Here's more on Mayo Clinic's Pain Rehabilitation Center:

Mayo Clinic PRC locations and contact info -

- https://www.mayoclinic.org/about-mayo-clinic/contact

Mayo PRC Comprehensive Program -

- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

I graduated from Florida's Pain Rehab Center 2 years ago and it was a life-changing experience. I'm pleased to share more if anyone is interested.

@rudai, @potta54321, @freeassange and others - do you mind getting back to me after watching the video on CSS, and letting me know if you found the information helpful?

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