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Connection & Conversation: We're open for the holidays

Dec 19, 2022 | Colleen Young, Connect Director | @colleenyoung | Comments (29)

 

As the year draws to a close, I look back with appreciation for the connections and community you have built on Mayo Clinic Connect – connections that offer support, hope, and healing. We hope this year’s season fills you with the things that mean the most to you and sets the course for a peaceful and healthy new year.

As always Mayo Clinic Connect is available throughout the holidays – every day, every hour.

Meet other members, share experiences and find support from people like you.

Thank you for caring together. From all of us at Mayo Clinic Connect, we wish you and yours a healthy, relaxing, and safe holiday season.

16 Reactions

Interested in more newsfeed posts like this? Go to the About Connect: Who, What & Why blog.

Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 5, 2023
In reply to @bdaniels3434 "I was diagnosed with IGA nephropathy in early 1990 and had a kidney transplant on 12/15/90...." + (show)
@bdaniels3434

I was diagnosed with IGA nephropathy in early 1990 and had a kidney transplant on 12/15/90. I just turned 54 and never had Covid and have always been super healthy and energetic and made all star teams in high school. I live in Phoenix and it has been a real shock to me regarding all the skin cancer from being a man living in Phoenix . I typically go every three months or so and my derm burns off all of my pre-cancerous AK’s. I’m currently using Effudex as a preventative measure for this and it is really unfortunate but you have to do what you have to do. Can anyone relate to this scenario? I really sucks. It would be really awesome to hear from someone and my similar situation.

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Welcome @bdaniels3434. You will find members talking about skin cancer in the Cancer Support Group here: https://connect.mayoclinic.org/group/cancer/

Here are a couple of discussions to get you connected:

- Could my skin cancer be back? https://connect.mayoclinic.org/discussion/skin-cancer-2/
- Skin cancer: Has anybody had fluorouracil treatment? https://connect.mayoclinic.org/discussion/has-anybody-had-the-fluorouracil-treatment/
- Efudex as treatment for damaged skin https://connect.mayoclinic.org/discussion/i-grew-up-out-of-doors-in-colorado-have-blue-eyes-and/

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bonnieb81 | @bonnieb81 | Jan 10, 2023

Happy New Year 2023, I start by saying how grateful I am to this website. I do want to share a 9-10 yr venture which left my husband Stan, dead now 6/09/2022, 4 diagnosed dementias..4-5 chronic illnesses. Many specialists,hospices, rehabs,respites,memory care, neuros (I’m suspect of knowledge lacking to treat ‘dementia! Me, Bonita, his wife, suffering precancer polyps 15-16 yrs..rare types of polyps, a mass in colon concerning of malignancy,polyps in appendiceal Orifice! Surgery.. but tiny mass removed from appendix ( neoplasm= ( unknown?) But not malignant??? Fecal incontinance 5 yrs!internal Hemms. Other,issues. Facing surgery again! Had surgery 7-14-21! So nearly 85.. in 3 kind of health issues.. tying yet to get answers for competent surgery or ‘treatment’ DFW Dallas area,many hospitals ..but none meeting my urgent needs..I’ve tried 3X to get an appt at Mayo/Florida ( close to my 2 daughter's. And tried for my husband with advanced dementia..me sole caregiver..9 yes..now he’s deceased..a cruel not ‘ComfortCare by hospice!!! Thus us not ‘sour grapes but a conclusive attempt at closure so I can advocate for Alzheimer’s and Dementia/Lewy Body…all in total! Thanks so much for ‘how to’ get credible help!

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9nm | @9nm | Jan 20, 2023

I have DISH. Would love to talk to others who have this condition , as I have never at least knowingly met anyone with this condition.

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1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Jan 20, 2023
In reply to @9nm "I have DISH. Would love to talk to others who have this condition , as I..." + (show)
@9nm

I have DISH. Would love to talk to others who have this condition , as I have never at least knowingly met anyone with this condition.

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Hi @9mn, Welcome to Mayo Clinic Connect. You’ve come to the right place to speak with other members who have Diffuse Ideopathic Skelital Hypertrophy.

Below is a link to a current discussion about DISH with members, @dishpain @oplove2244 @pixiesue6470
I know they’ll be happy to offer you support. It helps to share with other people with similar conditions. You don’t feel quite so alone on your journey.
Don’t hesitate to pop into the conversation!
https://connect.mayoclinic.org/discussion/dish-disese-diffuse-ideopathic-skeletal-hypertrophy-or-foresters/
How long ago were you diagnosed?

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annamariajoyful1 | @annamariajoyful1 | Jan 26, 2023

Hi, I´m interested in finding people that have had c1 c2 pannus surgery. I´ve had 2 neck, and 4 lower back surgeries. I´m scheduled to have pannus surgery on 2/13/2023. I´m very afraid of this surgery-the doctor has to open my spine from c1 to T2. First the c1 c2 for pannus, then to repair previous surgeries, and new bone disease. Is there ANYTHING else that would stop the pannus-stem cell therapy, laser?

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1 reply
shezza51 | @shezza51 | Jan 28, 2023
In reply to @mcamhi123 "How long does it take to recover from COPD exacerbation" + (show)
@mcamhi123

How long does it take to recover from
COPD exacerbation

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What is copd exacerbation ??
6hours of surgery ??
Is that why i cannot shake this congestion & cough ?

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mully | @mully | Jan 30, 2023

Is it safe to take Keto life gummies to Lise weight?

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chitacable | @chitacable | Feb 3, 2023

Yes I’ve had covid 3 times and I’m having issues and I need some answers I don’t know what to do! Thanks my name is Conchita I go by Chita Cable

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 3, 2023
In reply to @annamariajoyful1 "Hi, I´m interested in finding people that have had c1 c2 pannus surgery. I´ve had 2..." + (show)
@annamariajoyful1

Hi, I´m interested in finding people that have had c1 c2 pannus surgery. I´ve had 2 neck, and 4 lower back surgeries. I´m scheduled to have pannus surgery on 2/13/2023. I´m very afraid of this surgery-the doctor has to open my spine from c1 to T2. First the c1 c2 for pannus, then to repair previous surgeries, and new bone disease. Is there ANYTHING else that would stop the pannus-stem cell therapy, laser?

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Welcome, @annamariajoyful1. Please join the discussions in the Spine Health support group here: https://connect.mayoclinic.org/group/spine-health/

@shezza51, you may wish to join the discussions in the COPD support group: https://connect.mayoclinic.org/group/copd-chronic-obstructive-pulmonary-disease/

See this discussion:
- COPD exacerbation: How long does it take to feel better? https://connect.mayoclinic.org/discussion/copd-exasperation/

@mully, if you're interested in a low carbohydrate, healthy fat (LCHF) lifestyle, intermittent fasting, or both, join the discussions in this group:
- LCHF Living & Intermittent Fasting Support Group https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting/

Frankly, keto pills or gummis sound like one of those things that is marketed to be the silver bullet. Weight loss takes commitment and doesn't come in a pill form, in my humble opinion.

@chitacable, COVID recovery can be a long road for some people. You're not alone. Join the discussions in the Post-COVID Recovery & COVID-19 Support Group https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/

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