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How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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mialola | @mialola | Jan 10, 2023
In reply to @jmb73 "I have dry eyes from Sjogren's and my ophomologist has put temporary plugs in my eyes..." + (show)
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I have dry eyes from Sjogren's and my ophomologist has put temporary plugs in my eyes and they work great. He doesn't like the permanent ones as he said sometimes they get infected. I also use Restasis, Systane ultra and Genteal for dry eye. Systane and Genteal are over the counter. He has me wash my eyes with Ocusoft lid scrub a minimum of twice day. Then I rinse them with cosmetic rounds. I almost lost my vision from dry eye and this doc saved it. Dry eye can be dangerous. I was at work and couldn't see out of my left eye. I called the office and they said to put Systane Ultra in my eye every 15 minutes for 2 hours and if my vision didn't come back, I had to be seen by them. It was a Sat. and the doc said he would wait until I called. My vision came back but that scared me. So be vigilant and if your eyes feel sandy or dry use drops. You can use the non preservative over the counter drops too. Take care, Joan

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Sounds like you had a great caring eye doctor. Where is he located? I am still seacrhing for a doctor in New York area.
Help please

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jip499 | @jip499 | Jan 11, 2023
In reply to @rarelybees2889 "This has been a long road of misery for me. Mine is due to Sjogren's Disease...." + (show)
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This has been a long road of misery for me. Mine is due to Sjogren's Disease. I now have all four punctal plugs cauterized, which is not a great solution and yet still have dry eye!
I think what helps best is the serum eye drops, made from your own blood, which they spin into eye drops but it must be frozen and then used only 10 days.
Its an ongoing situation that never seems to really improve.
Mine are severe dry eye...
Thanks

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Sjögren’s Disease is challenging. I have had it for over 30 years. I could manage it with preservative-free eyedrops in the daytime and eye ointment at night when I was younger, but now that I am older, managing it takes more time.

Warm compresses are helpful and a humidifier in the bedroom. I do not use serum tears. Sunglasses outside shield my eyes from wind and help my light sensitivity. Dealing with Sjögren’s is time consuming, but, for me, dealing with osteoarthritis is harder and causes more pain.

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Langold | @rarelybees2889 | Jan 11, 2023

Do you have joint damage and arthritis issues?

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applesforall5370 | @applesforall5370 | Jan 14, 2023

I have tried everything nothing works some make it worse. I have Celiac disease I read an article in Gluten Free that is a symptom of it. Does anyone know about this? The I doctor asked me if I ha e fibromyalgia which I have. So is this an autoimmune problem or they think I am nuts!
I just have to address this it is so painful.

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chilover | @chilover | Jan 15, 2023

Yes, I live in the Boston area with excellent ophthalmologists.
I use a combination of Serum Tears and Cequa. Works very well.

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cookierockwell | @cookierockwell | Jan 16, 2023

I use Systane Hydratio PF every day. I tried coconut oil, and ended up with a cyst in the corner of my eye from it. Some nights I use Systane or Genteal gel, but I really don't like the gloppy glue feel of the gel.

Warm compress for 10 minutes once a day during the afternoon, plus after I wash my face morning and night, rinse the washcloth in hot water, wring, and hold that on my eyes for a count of 10.

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teeb14 | @teeb14 | Jan 16, 2023
In reply to @maryy "Thanks . I have Sjogrens Syndrome too, unfortunately. Do you take any medication for Sjogren? Methotrexate..." + (show)
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Thanks . I have Sjogrens Syndrome too, unfortunately. Do you take any medication for Sjogren? Methotrexate or Azathioprine?

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I take pilocarpine it seems to help some.

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vlevine | @vlevine | Jan 17, 2023

I have very dry eyes and have tried almost everything. The best thing that works for me now is a nasal spray called Tyrvaya nasal spray. There is a nerve in your nasal mucosa that stimulates the production of tears. I also use Cequa, but the nasal spray has truly been a godsend at night I put in Muro 128 ointment .
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valmara | @valmara | Jan 18, 2023
In reply to @isaosunagatty "@tennisgolf Sorry to hear about your experience, I also suffer from dry eyes and as you,..." + (show)
Profile picture for isaosunagatty @isaosunagatty

@tennisgolf Sorry to hear about your experience, I also suffer from dry eyes and as you, they got worse after cataract surgery. I use herbal tea bags warmed in water, and I find them very soothing. All the best, Isabel

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I'm going to try that. My Dr told me to use Systane lubricant eye drops and his aide told me to heat water and dip a hand towel in it and put that over my eye for a few minutes 2 or 3 times a day That it helps to unclog some tiny ? located in the lower eyelid. Sounds like something in the lower eyelid can get clogged & the heat helps loosen it. Not too hot.

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SusanEllen66 Susan McMichael | @SusanEllen66 | Jan 21, 2023

I POSTED THIS A WHILE AGO STILL LOOKING FOR SOMEONE ELSE WITH SLK

Superior Limbic Keratoconjunctivitis. I have been plagued with this condition for about 10 years. Anyone else?
My eyes are sometimes so dry my eyelid literally sticks to my eyeball. Horrible disease! In the past I have worn “bandage” contacts so the eyelid doesn’t scrape my eye too much when I blink. It’s gotten better the last few years. I notice that it is almost seasonal now. Ugh!

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