Hi @aussiefrankie, You mentioned having type 2 diabetes. Just wondering if your diabetes might be the cause of your neuropathy. My sister had issues with her feet before she passed and she also had type 2 diabetes. Living in small remote areas does make it more difficult for healthcare access. There is no cure for neuropathy, so we end up having to try and find something that provides relief for our symptoms.
Have you done any research on diabetic neuropathy? Here's a webinar you might find helpful: https://youtu.be/WAzI0mK4cyk
Hi, I watched the video very good advice, but for me it's numb feet no pain. Nothing for numb feet just have to live with it and it's very depressing. But thanks for the video!!
I am suffering from what I believe is Neuropathy.... Have told my doctor on a phone apt, and he did not seem to concerned... When I bend my toes I feel like there is paper in between them, and they are numb, it started with my toes, and now seems to have progressed to my ankles. I am not in any pain from this, and do not have diabetes. Just wondering if this can become a real problem and if anything I can do about it??
Hi, I too have numb toes and half of my feet on both. I have diabetes and I also take a chemo pill. I'm thinking about acupuncture too. Glad it helped for you, and great you don't have diabetes! I go to a Podiatrist every 2 months for toenail clipping and she and other DR.s have told me nothing I can do for numbness, what a shame and that's depressing too!! Good luck to you I hope they do not get any worse!!
@Debbie
I had acupuncture treatments, although at the moment, I don’t remember what it was for. It didn't help. Did your acupuncturist want you to drink an intolerable substance also?
Jake
Jake - I did not drink anything. just had to be still and "relax" for 40 minutes, which is hard for me to do during the day. Mentally I was absorbed with trying to figure out how many minutes I had left because I wanted to move. I guess I should have brought ear buds or something for music like some people do. But, no drink fortunately.
I am suffering from what I believe is Neuropathy.... Have told my doctor on a phone apt, and he did not seem to concerned... When I bend my toes I feel like there is paper in between them, and they are numb, it started with my toes, and now seems to have progressed to my ankles. I am not in any pain from this, and do not have diabetes. Just wondering if this can become a real problem and if anything I can do about it??
Hello @sheilarob116, Welcome to Connect. Your story sounds a lot like mine which started close to 30 years ago in my late 40s. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. The best thing you can do for yourself is to learn as much as you can about your condition and what treatments are available to help relieve any symptoms that might popup.
Hello @sheilarob116, Welcome to Connect. Your story sounds a lot like mine which started close to 30 years ago in my late 40s. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. The best thing you can do for yourself is to learn as much as you can about your condition and what treatments are available to help relieve any symptoms that might popup.
Had not thought about appointment with neurologist, my GP didnt seem to interested and did not even want to see me when I told him, and he is in Kingsville, ON, and we have moved to Chatham which is over an hour away and have not found a doctor here yet.....will follow up on sites you gave me & thank you for your response..
I am suffering from what I believe is Neuropathy.... Have told my doctor on a phone apt, and he did not seem to concerned... When I bend my toes I feel like there is paper in between them, and they are numb, it started with my toes, and now seems to have progressed to my ankles. I am not in any pain from this, and do not have diabetes. Just wondering if this can become a real problem and if anything I can do about it??
I would talk to your doctor again. My neuropathy also started with just numbness, now I have pain in my toes and upper foot. If your doctor still doesn't pay attention, I would insist on a referral to a neurologist. The neurologist will be a better choice to determine what the problem is. For me, it was a neurologist that diagnosed my neuropathy and manages my meds.
Don't let your doctor dismiss your symptoms. It could be something else. I would want to know.
Hello @sheilarob116, Welcome to Connect. Your story sounds a lot like mine which started close to 30 years ago in my late 40s. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. The best thing you can do for yourself is to learn as much as you can about your condition and what treatments are available to help relieve any symptoms that might popup.
Thanks for links. I went to the neuropathy commons site and read about Nerve Ultrasound.
It sounds like a procedure that may lead to a more precise diagnosis in addition to the conventional EMG test.
Does anybody know who performs nerve ultrasound tests? The only high-definition ultra sound equipment I could find in Mpls MN is Fairview Clinic. I would think Mayo in Rochester should do this??
Thanks again
Hi, I watched the video very good advice, but for me it's numb feet no pain. Nothing for numb feet just have to live with it and it's very depressing. But thanks for the video!!
Hi, I seem to share the same problem. I have PAD and Neuropathy?? no diabetes. I have numb feet, ankles, and bad balance?? trying to "live with it" also. But as you say, very depressing. Any one have a solution???
Sharon
Hi, I seem to share the same problem. I have PAD and Neuropathy?? no diabetes. I have numb feet, ankles, and bad balance?? trying to "live with it" also. But as you say, very depressing. Any one have a solution???
Sharon
Hi, I also have just numb feet no pain. I go to a Podiatrist every 2 months for toenail cutting, I have Diabetes now for about 12 years and on Chemo pills for 3 years. it is much worse taking the Chemo. I was give, Gabapentin n Lyrica made me swell and with the Gab I became delirious. I'm told there is nothing for numbness, it's very hard to live with! I have a hammertoe that developed a small ulcer on the tip of my toe so after that heals I'm going to have my Dr. fix that. it's always something. Good luck everyone and if you find a Dr. that can cure numbness please let me know.
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Hi, I watched the video very good advice, but for me it's numb feet no pain. Nothing for numb feet just have to live with it and it's very depressing. But thanks for the video!!
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Hug
2 ReactionsHi, I too have numb toes and half of my feet on both. I have diabetes and I also take a chemo pill. I'm thinking about acupuncture too. Glad it helped for you, and great you don't have diabetes! I go to a Podiatrist every 2 months for toenail clipping and she and other DR.s have told me nothing I can do for numbness, what a shame and that's depressing too!! Good luck to you I hope they do not get any worse!!
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Helpful -
Hug
3 ReactionsJake - I did not drink anything. just had to be still and "relax" for 40 minutes, which is hard for me to do during the day. Mentally I was absorbed with trying to figure out how many minutes I had left because I wanted to move. I guess I should have brought ear buds or something for music like some people do. But, no drink fortunately.
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Like -
Helpful -
Hug
3 ReactionsHello @sheilarob116, Welcome to Connect. Your story sounds a lot like mine which started close to 30 years ago in my late 40s. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. The best thing you can do for yourself is to learn as much as you can about your condition and what treatments are available to help relieve any symptoms that might popup.
Here are a few sites if you want to learn more about neuropathy:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/understanding-peripheral-neuropathy/
Do you plan to setup an appointment with a neurologist to get a diagnosis?
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2 ReactionsHad not thought about appointment with neurologist, my GP didnt seem to interested and did not even want to see me when I told him, and he is in Kingsville, ON, and we have moved to Chatham which is over an hour away and have not found a doctor here yet.....will follow up on sites you gave me & thank you for your response..
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Like -
Helpful -
Hug
2 ReactionsI would talk to your doctor again. My neuropathy also started with just numbness, now I have pain in my toes and upper foot. If your doctor still doesn't pay attention, I would insist on a referral to a neurologist. The neurologist will be a better choice to determine what the problem is. For me, it was a neurologist that diagnosed my neuropathy and manages my meds.
Don't let your doctor dismiss your symptoms. It could be something else. I would want to know.
-
Like -
Helpful -
Hug
3 ReactionsThanks for links. I went to the neuropathy commons site and read about Nerve Ultrasound.
It sounds like a procedure that may lead to a more precise diagnosis in addition to the conventional EMG test.
Does anybody know who performs nerve ultrasound tests? The only high-definition ultra sound equipment I could find in Mpls MN is Fairview Clinic. I would think Mayo in Rochester should do this??
Thanks again
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Like -
Helpful -
Hug
1 ReactionHi, I seem to share the same problem. I have PAD and Neuropathy?? no diabetes. I have numb feet, ankles, and bad balance?? trying to "live with it" also. But as you say, very depressing. Any one have a solution???
Sharon
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2 ReactionsSee a good neurologist. Don't just "live with it"
You need to get a diagnosis and treatment.
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2 ReactionsHi, I also have just numb feet no pain. I go to a Podiatrist every 2 months for toenail cutting, I have Diabetes now for about 12 years and on Chemo pills for 3 years. it is much worse taking the Chemo. I was give, Gabapentin n Lyrica made me swell and with the Gab I became delirious. I'm told there is nothing for numbness, it's very hard to live with! I have a hammertoe that developed a small ulcer on the tip of my toe so after that heals I'm going to have my Dr. fix that. it's always something. Good luck everyone and if you find a Dr. that can cure numbness please let me know.