Post COVID: Anyone experiencing internal vibrations?

Thanks Jill for your post. I had Covid in July 22 and then received booster only 3 weeks later which made me question - Was it Covid or booster that has caused these vibrations for 4 months now. Driving me crazy as I just wish I knew. I guess Covid as other shots never seemed to bother me. It's good to read from some that these tend to subside or dissappear gradually over time. Doctor just looks at me like I'm from Mars when I mentioned it. A lot of primaries and specialists know nothing about this.

I hear you and it’s all internal nothing shows on the outside. In the beginning one of my episodes set off an arrhythmia that’s why I wore a heart monitor for three days and nothing showed. I think maybe doctors are hearing more about these issues maybe not documenting or Big Pharma is being quiet.

I am in the same boat, it's been 3 years now and the internal vibrating sensations are really unbearable. Like a giant tuning fork vibrating my entire body from brain to face/jaw/head down through the center of my chest, into abdomen and down to my legs. Any moment that I relax it starts. I can't lie down to rest without it and have to fall asleep into it. The longer I sleep, the worse it is upon waking.

At first it was so violent it felt like I was being shaken out of bed. Now it is just a constant buzzing that I can never get rid of. I've had several neurologists but none of them seem to take this symptom seriously. I'm sure it's hard to imagine if you haven't experienced it. After 3 years I am losing my resilience and feeling like it isn't worth trying to live like this. I have been diagnosed with autonomic disorder and probably small-fiber neuropathy, but that isn't really helping me get to any kind of solution or hope that this will ever go away. Just when I thought it was getting a little better a few months ago, a COVID booster knocked me right back to what felt like severe brain inflammation and shaking.

I see quite a bit of discussion here of similar symptoms but what I am really looking for is 1) understanding of what's causing it and 2) any kind of help at all - anything that lessens it or improves over time. Anyone have anything to share on that?

Thank you in advance...

I first put this in another thread but seems like it may belong here...

I am in the same boat, it's been 3 years now and the internal vibrating sensations are really unbearable. Like a giant tuning fork vibrating my entire body from brain to face/jaw/head down through the center of my chest, into abdomen and down to my legs. Any moment that I relax it starts. I can't lie down to rest without it and have to fall asleep into it. The longer I sleep, the worse it is upon waking.

At first it was so violent it felt like I was being shaken out of bed. Now it is just a constant buzzing that I can never get rid of. I've had several neurologists but none of them seem to take this symptom seriously. I'm sure it's hard to imagine if you haven't experienced it. After 3 years I am losing my resilience and feeling like it isn't worth trying to live like this. I have been diagnosed with autonomic disorder and probably small-fiber neuropathy, but that isn't really helping me get to any kind of solution or hope that this will ever go away. Just when I thought it was getting a little better a few months ago, a COVID booster knocked me right back to what felt like severe brain inflammation and shaking.

I see quite a bit of discussion here of similar symptoms but what I am really looking for is 1) understanding of what's causing it and 2) any kind of help at all – anything that lessens it or improves over time. Anyone have anything to share on that?

Thank you in advance…

I am praying for you, can't imagine dealing with these vibrations for 3 years. I know how frustrating it is only at 4 months for me and normally only at nightime.

I hope they find answers soon but don't give up!!

Had neuro Covid tremors since 2/2021. Started in feet. Progressed to whole body including head. Got it for 3d time today with tremors worse than ever!

I have the same. Getting Covid the 3rd time caused my tremors to worsen/ come on full force like my legs are going to run away with me. It feels like it’s shaking my brain. I have horrible pains in my head, behind my eyeballs, my spine, arms, and legs. It feels like it’s wearing out my body.

Maybe me often begin in my feet, while lying down, and move your way up my body until my whole body has some, including my head and they are painful. I first got them after Covid in Feb. 2021. They dissipated slightly after my third booster, but came back full force after having Covid a third time.

My husband (82 years old) and I (72 years old) received Pfizer vaccines and the booster in 2021. We both tested positive with breakthrough covid-19 infections in January. 2022. The symptoms were mild and mainly like a bad head cold. He was prescribed Paxlovid (with a part of the dosage removed due to his pre-existing medical conditions) in the first few days. In February, 2022, he began to have internal vibrations which have gotten worse so that he cannot sleep at all several nights a week. He also had automatic breathing problems and must slowly and manually breathe to recover. He has phlegm and throat clearing issues all day, his eyes water constantly, he has gastrointestinal problems with extreme and urgent watery bowel movements and he has become incontinent at night. He has trouble with urinating and continues to drip/pee after he thinks he is done. He is fatigued and sleeps several hours in the day. He has complained to his doctor, been given EKG (normal), echo cardiogram (normal except mild myocardial leakage), wore a heart monitor for 7 days (normal), got an abdominal aorta ultra sound (normal), saw a neurologist this week and told he does not have Parkinson's Disease and that he suffers from "anxiety". Brushed off like all the other medical personnel because they don't know or understand the internal vibrations he is feeling that have physical and emotional fatigue and depression. We'll see his primary Tuesday for an annual physical. We've brought up long-term covid several times but no one seems to know or care about this as a possible cause. He believes he got Covid-19 (undiagnosed in March 2020) after we traveled across the US by car in February and early March. He was very ill and fatigued with headache (no fever) for a couple of weeks but got better (no testing offered by Urgent Care) so the January 2022 infection may have been his second bout with covid.

Wondering how this is going for you? I now have long vaccine injury and two of my remaining symptoms are tinitus and internal vibrations. Are they still persistent for you?