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Nissen Fundoplication
I am a Mayo Clinic patient (past or current).
Your interests: LAPAROSCOPIC NISSEN FUNDOPLICATION Your experience as a Mayo Clinic patient (if applicable): Today is one week since surgery at the Jacksonville Clinic. It was a positive experience, in that the care was excellent. Now home in Boca Raton, I am 7 hours by car from my doctors. Although I have a local doctor at home, I feel the need to connect with others who have had this surgery. Anything else about yourself: The main symptom I suffered with was chronic cough. I also have been diagnosed with Asthma. Last summer I became a patient at National Jewish Health in Denver, CO, a hospital that specializes in Respiratory disease. I was diagnosed with Bronchiectosis, probably caused by GERD. I had been on the GERD diet, proton pump inhibitors, inhalers, antibiotics, cough meds, the works. Turning over every leaf possible, I was led to the Mayo Clinic. Somewhat cynical about the outcome, I chose to have the surgery. This week has been difficult. I experienced low grade fever, and belching every few seconds for hours on the fifth day out. This has finally stopped and I am now on soft foods, really I'm clinging to blended still. I would like to hear from others that have had this surgery.
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I did the Linx surgery in 2014, keeps acid down. The good thing is it's reversible. The PPI's are very dangerous to use after 14 days and even after surgery it took 6 weeks to wean off them as they cause horrible rebound!
I haven't had problems with the Linx surgery until lately have had abdominal pain, not sure where its coming from but since I haven't been to Mayo for 3 years even though they did the surgery, have dropped me as a patient and will not take any new patients! I have no where to turn since very few doctors know about this procedure and basically Mayo said too bad. Very disappointed that they won't even consider checking to see if the device perforated or still functioning!
Hi @saucy, I’m sure this is not the response that you were expecting when you reached out to Mayo Clinic again. While Mayo Clinic continues to accept new and returning patients, some departments at some locations have more demand than appointments available. There is a great strain on the entire nation’s health care system.
Given that you are a former Mayo Clinic patient, I strongly suggest contacting the Office of Patient Experience:
Mayo Clinic Office of Patient Experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu
They can look into the situation and possibly mediate a solution. If an appointment at one Mayo location is not possible, you might ask if an appointment would be available at another location. Or perhaps with a facility that is part of the Mayo Clinic Health System (https://www.mayoclinichealthsystem.org/) or Mayo Clinic Care Network (https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members). You might ask if there is a Mayo-trained physician closer to home for you to consult with.
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1 ReactionI did that also and got the same so sorry response! I have nowhere to turn! I went to the only gastroenterologist where I live and she didn’t know anything about Linx. Don’t know of any doctors in Phoenix 2 hours away so at this point I just have to hope for the best! Since I had the surgery at Mayo I would think they would follow up with me!
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1 ReactionI had a bunch of tests prior to procedure for Dr. to be sure I was a good candidate. He found some motility issues with my swallowing test, where he wondered if he should proceed with regular fundoplication. After discussion, he decided he would do slightly less tightening of wrap, by doing a 270 degree Nissen Toupay fundoplication. Perhaps that's why my experience seems to have been successful and comfortable.
@saucy, I completely understand your disappointment and frustration. It must feel like the bottom fell out of the support and care you need. I might suggest that you ask the Office of Patient Experience or the appointment office for a recommendation of a Mayo-trained physician in your area.
ASU Health Services and TMC HealthCare in Arizona are members of the Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members if that is an option for you.
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2 ReactionsThanks for your time but all these doctors are hours from us. I have no problem going to Phoenix. I guess I'm surprised that since they did the surgery they won't at least make sure it's still in place! The scheduler wouldn't even let me talk to anyone in the Gastro dept to explain what's going on and women I spoke to didn't have a clue what Linx is!!
Hi. I had the Nissen in Oct at Mayo in Rochester. I had been onPPI’s for close to 30 years and my digestive system all messed up. 4/5 ‘s of my stomach was herniated into my diaphragm and i was experiencing lots of painful spasms. I was on a soft diet for 6 weeks and religiously followed that diet after surgery. I drink no carbonation now. I cannot burp and last week had a stomach bug( food poisoning?) i could not vomit but had horrid dry heaves enough to worry I might have messed something up internally. The lack of burping is inconvenient the inability to vomit is worrisome. I take no PPI’s now but still can not eat much or drink much at meals. Funny…. My body has adjusted to this lack of food and I lose no weight. Bummer!!!!! I am greatful I wont have a strangulated stomach so the tradeoff is good. Sure could have used a few more days in the hospital. I spent the night in the hospital and was discharged the next morning. For a 73 year old that was kinda fast I thought. But am thankful for my Doctor and Mayo. I do have utmost faith in them especially my Thoracic surgeon. He was superb! What other questions do u have?
Have you reached out to your surgeon's office?
Re: vomiting issue? Not yet but I will. I discussed this issue with him prior to surgery as this is typical of a full wrap Nissen. I told him I wanted to be able to burp and vomit. Cannot so will reach out soon to that office. I may need to followup with a local Gastro doctor for ongoing care Re: this issue