Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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Profile picture for Rachel, Volunteer Mentor @rwinney

Hello and welcome @luckymspenny1 and @7881188. Thank you for joining the conversation about internal vibrations, tingling, buzzing, shaky leg, and all that other not so fun stuff.

You're both asking the great question of, "what is this and why is it happening?" Are odd sensations from COVID or maybe from the vaccine itself? Interestingly enough one of you has had COVID and the other has not, and one of you has been vaccinated and the other has not. If you scroll back through this conversation thread page by page you will find you're not alone in wondering. Many tests later prove nothing is wrong, many doctors later brush it off as anxiety. It is neurological, but why?

Because I have Central Sensitization Syndrome (CSS) and have experienced symptoms like restless leg syndrome, internal vibrations, buzzing, shocks, etc...I can offer you information about CSS that may help answer your questions. I will say that anxiety can definitely increase these symptoms, but not likely to cause them as some doctors chalk it up to.

I'd like to introduce you to Mayo Clinic's Dr. Sletten who heads up the Mayo Clinic Pain Rehabilitation Center. He offers an in depth look of CSS and explains the how the central and peripheral nervous systems can be affected with upregulation and changes. Here is a video explaining more -

Central Sensitization Syndrome by Dr. Christopher Sletten:

- https://www.youtube.com/watch

I hope this helps explain some of what you're experiencing. Would you mind letting me know your thoughts after watching the video? There is a lot to digest. Does any of it resonate with you?

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Hello, thank you for commenting, I will try and watch the video soon!!

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Profile picture for Ethan McConkey, Moderator @ethanmcconkey

Hi @crankyunicorn68 you may have noticed I moved your post to this discussion on internal vibrations that @johnbishop suggested. Simply click VIEW & REPLY in your email notification to get to your post.

Are these symptoms constant? Is there anything you can do to lessen them at this time?

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I have been having internal vibrations for a while.
The Vibrating is in my stomach area and comes on as I awake in the morning.

It goes away when I am awake for about 5 minutes and if I sit up on the side of the bed it goes away.

The thing is that the vibrations are increasing but it is not shaking, and I cannot feel any shaking if I place my hand on my belly.

I have spoken about it to my endocrinologist, and she says that she didn’t know what it was.

Any help in identifying the cause would be most welcome.

Thanks

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Profile picture for moss24 @moss24

I have been having internal vibrations for a while.
The Vibrating is in my stomach area and comes on as I awake in the morning.

It goes away when I am awake for about 5 minutes and if I sit up on the side of the bed it goes away.

The thing is that the vibrations are increasing but it is not shaking, and I cannot feel any shaking if I place my hand on my belly.

I have spoken about it to my endocrinologist, and she says that she didn’t know what it was.

Any help in identifying the cause would be most welcome.

Thanks

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I saw a neurologist that treats or specialist in motor senses . Yes this is real but most drs look at you like you have worms coming out of your head . They just don’t know it takes the right specialist . I have the tremors in my abdomen area and it wakes me up at night also . I have a cyst on my spine . I had lymphoma cancer and had radiation 11 years ago . Well they think the radiation was the cause.
But it could be caused by many things even environmental. Radiation saves your life but at the ten year mark all the damage shows up . I’m fixing to have pelvic wall reconstruction surgery Now u may not have had radiation but the tremors can be caused by many things . It’s something on your spine . A cyst or scar tissue . Have u ever had surgery that could cause scar tissue ? But what you are experiencing is real . Now mine has gotten a little worst but I don’t want my spine operated on . So we are in a monitoring mode . Go back in 6 months . Find you a neurologist that specializes in motor functions . Parkinson’s and MS . Good luck but you aren’t crazy . Research internal tremors . Hope you can get some answers but know it’s not in your head, it’s a real thing . Jackie

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My internal tremors began as a vibrating big left toe when resting and having it elevated. After a few months the vibration went to my two feet. Just thinking tired at end of day never gave it another thought until it started moving into both legs. Now my legs and feet were vibrating when relaxing and about to go to sleep. After a little longer it went into my chest. Then months later my arms. After a little over a year my whole body including head has these internal vibrations when dozing off to sleep and upon waking. Sometimes they are very violent and I just lay there and look , my body does not move it is so odd that my insides are vibrating so bad and no outside visual. Drs just contribute ite to probably anxiety and goes on about his way. It’s very concerning that this occurs, but I’ve never really come up with anything. I have just regulated it to tough shit and just live with it for if it’s something bad it will eventually show up. I’ve always felt like it’s just my problem, but I’ve seen that other’s experience this.

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Profile picture for cathy514 @cathy514

yes I have them all day every and cannot get diagnosed 2 neurologist same office say anxiety it is NOT anxiety no reslove I am miserable and have tinnitus too

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Do you have them at the day time or just when you are falling asleep and waking up?

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Profile picture for cathy514 @cathy514

yes I have them all day every and cannot get diagnosed 2 neurologist same office say anxiety it is NOT anxiety no reslove I am miserable and have tinnitus too

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Did you ever find a diagnosis or treatment ?

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Profile picture for mariell @mariell

Hi, is there a resolution to this? as i have already gone through tests such as mri etc, this is something thats come back around 2.5 weeks ago, but i feel like im geting no where with my neurologist. I have been pre scribed beta blockers and anti depressants, what can i do ? i want to just get rid of them. is this because i am in fight or flight still or?
i have also have high pitched tinnitus, but seems to be lessoning
along with fatigue

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Have you found resolution for this? You sound just like me

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Profile picture for mj953 @mj953

Hello
I know this is very late after your post . Was wondering if you still have the internal tremors. I’m having them for 7 months now . All my tests came back negative. I’m goung for an MRI this morning. I will look into the candidates cleanse as I’ve had issues with GI tract . Thx

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Have you had any resolution?

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Are you better now. If so how. I've been suffering from lyme 4 years and can't seem to get better with all the same symptoms

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I have had this internal vibration that started March of 2022. I did have covid -19 at Xmas 2021 and a colonoscopy/endoscopy 2-2022 as my motility almost ceased. Early March I decided to go for walk and while doing some arm circles and my left arm could not be lifted laterally within a 24 hr hour period. I have 98% range of motion today but the internal vibration will not go away. It happens when I sleep and it thrusts me from my sleep anywhere from 3-5 am. I experience mine in my upper left back, near back of my arm and spine since then. Daytime I experience burning, dull ache or tightening of the muscles in my left armpit, upper left arm( in the back , underneath and sometimes pecs area) had a shooting pain in my front left thoracic from my clavicle to last rib a week ago. I am struggling with same daytime pain in my left groin, left hip, left lower back as the year progressed.
I have been to a cardiologist , rheumatologist, neurologist, orthopedic spinal specialist, 2 physical therapist, chiroprator. They are baffled. I had emg of my left side to rule out neurogenic thoracic outlet syndrome. I will have to go a vascular/thoracic surgeon to rule out arterial or vascular thoracic outlet syndrome. Out of all the dr the chiroprator reviewed a full spinal mri and suggested this diagnosis instead of cervical radiculopathy.
Other tests completed: heart holter, echocardiogram, Ana bloodwork ( inflammation markers), spinal decompression, adjustments, laser therapy, 1 prp shot in shoulder, x-rays of spine, left and right shoulder, mri of brain and spine, ct of my pelvis and abdominal area left, ultrasound or pelvis and kidneys and left shoulder.
I don’t find Muscle relaxers or gabapentin helpful as the cause constipation and tremors. I have essential tremor for years but this vibration in my back cannot been seen or felt by anyone else and only happens when I sleep. Most pain relief I have had was a 2 weeks use of meloxicam for inflammation and pain until I got a uti and had 5 day dose of ciproflaxin. The burning flanked pain in my left side, hip and groin which was radiating down my left thigh now subsided to almost 1-2 on pain scale but the vibration in my thoracic increased again.
First night on cipro I woke up with both my hands vibrating nothing visual, night 3 vibration in my left upper Middleback at the spine - all new. I reported this to my pc and he recommends I see an immunologist(waiting). I may have a problem taking quinolone class of antibiotics. This drug has black box warning of tendon damage and nerve damage. ( I have always been very physically active both my Pt and pc warned me of activity) . On top of it I got internal shingles detected by a viral panel- Stress from the drug interaction or uti itself( it was a bad one but first one detected in mutiple years)? I was given levaquin same class antibiotic in 2020 and had my first experience with internal shingles. Connection? Is anyone with this vibration used this same class of drugs and has had covid-19 exposure within 2 or 3 months and / or taking this class of antibiotics?
All of this has not found a diagnosis and or treatment. I stay active now but I cannot do high impact or stressful exercise without consequence. Yoga, tai chi, mediation, walking, cycling, swimming etc. some days or weeks lately very little at all. This has been life altering with no answers in sight.
I currently am taking valtrex for shingle suppression, and Tylenol and my vitamins. Les is more with no diagnosis. May try a week of meloxicam again. Working with a pelvic physical therapist to hopefully eliminate the need for SI joint ultrasound guided cortisone injection and pain relief. My cervical/ thoracic pt is on hold until we know the shingles is completely out of my system.
People are reporting internal vibrations on the internet yet SOME dr are still practicing with blinders on. We need dr to be more investigative after covid, vaccines, and our antibiotics not made in the US to insure quality and side effects. We need them to look at the whole person even if they are specialist. Please help… I have never posted on line before so that is the evidence of desperation and frustration.

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