Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I've been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don't have any issues with any of my lumbar disks. I'm in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I too am suffering from chronic pain and I cannot sit down without being in pain. It will be a year in March 2019. I have been to the chiropractor physical therapy, orthopedic doctor received injections in my tailbone I do massages weekly I’ve been to a rheumatologist. The im still having pain in my butt or more like sits bones area! I need some help God please help me! No one can tell me what the problem is

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@dailypain

Yes u have described me. My life feels over. No quality now and having to quit my job over this and I'll be left without insurance

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Did U ever get answers

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@dailypain

Yes u have described me. My life feels over. No quality now and having to quit my job over this and I'll be left without insurance

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Did u ever get answers

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@vklittle61

I too am suffering from chronic pain and I cannot sit down without being in pain. It will be a year in March 2019. I have been to the chiropractor physical therapy, orthopedic doctor received injections in my tailbone I do massages weekly I’ve been to a rheumatologist. The im still having pain in my butt or more like sits bones area! I need some help God please help me! No one can tell me what the problem is

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@vklittle61
Hi,
Have you had a pelvic
ct scan?
Jake

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@jakedduck1

@vklittle61
Hi,
Have you had a pelvic
ct scan?
Jake

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I’ve had a pelvic mri

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@vklittle61

I too am suffering from chronic pain and I cannot sit down without being in pain. It will be a year in March 2019. I have been to the chiropractor physical therapy, orthopedic doctor received injections in my tailbone I do massages weekly I’ve been to a rheumatologist. The im still having pain in my butt or more like sits bones area! I need some help God please help me! No one can tell me what the problem is

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@vklittle61 please see my posts in pudendal nerve entrapment thread of this website. I had the same symptoms (still have a little sitting pain- but only a little). You probably have Myofascial pain and tension compressing nerves. Also, my lower lumbar DDD drives this. I had several posts describing books and ways of getting rid of this tension search for my comments to @bkruppa. Short version, stretching, rolling on Rollga / various balls to get rid of trigger points and the other things I mentioned. Very deep inspiration while stretching and other things will help - one good book with a practical aim is “heal pelvic pain” by stein. Please see my other posts. There were several detailed posts with things to try. My pain got way better. It might take several month but it can get better. Also, this is described in the book “a headache in the pelvis”. Good luck.

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@vklittle61

I too am suffering from chronic pain and I cannot sit down without being in pain. It will be a year in March 2019. I have been to the chiropractor physical therapy, orthopedic doctor received injections in my tailbone I do massages weekly I’ve been to a rheumatologist. The im still having pain in my butt or more like sits bones area! I need some help God please help me! No one can tell me what the problem is

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@vklittle61 If you are not familiar with myofascial release work therapy, you may want to look into this as it can treat lots of problems that conventional medicine has failed to treat. I do this for thoracic outlet syndrome, and have a lot of information in another thread here, so look at this link with lots of information (and a video by John Barnes who invented this therapy.) MFR has helped me a lot and I have done this for 4 years and even treat myself this way at home. This is in the Neuropathy discussion, "Just Diagnosed"

https://connect.mayoclinic.org/discussion/just-diagnosed-2/?orderby=DESC#chv4-comment-stream-header
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Omg thank u I am looking into this Monday and thank u a million times over! Glory to God I pray this is my answer

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@richman54660

@vklittle61 please see my posts in pudendal nerve entrapment thread of this website. I had the same symptoms (still have a little sitting pain- but only a little). You probably have Myofascial pain and tension compressing nerves. Also, my lower lumbar DDD drives this. I had several posts describing books and ways of getting rid of this tension search for my comments to @bkruppa. Short version, stretching, rolling on Rollga / various balls to get rid of trigger points and the other things I mentioned. Very deep inspiration while stretching and other things will help - one good book with a practical aim is “heal pelvic pain” by stein. Please see my other posts. There were several detailed posts with things to try. My pain got way better. It might take several month but it can get better. Also, this is described in the book “a headache in the pelvis”. Good luck.

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Thank u so much I’m grateful

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@lisalucier

Hi, @travipr. Welcome to Mayo Clinic Connect. You are correct that this thread has not been active for a while, but yet I think some of our members may have some insights for you.

A few things that were mentioned in these old posts as possibilities to check out with your doctor might be 1) a broken tailbone or 2) ankylosing-spondylitis, https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808 or 3) some other type of nerve damage.

If you wouldn't mind, @travipr, could you tell us a little more about the following, in order to connect you with members who may have input for you?
- How this buttock pain arose for you
- Any more details about the symptoms you are experiencing, like type of pain (sharp, burning, etc.)
- What makes the pain worse or better
- What tests you may have undergone to date for this
- Protocols you have tried

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@lisalucier nice list of possibilities. However, it’s just a start. @dailypain as mentioned to @vklittle61 could also be nerve compression (not nerve damage) resulting from myofascial pain. In other words, it can be reversed. I mostly had sitting pain but had whole chains of trigger points up and down legs and I believe into my psoas muscle. Let me tell you, when you have tension where a nerve plexus is (lumbar plexus goes thru psoas) you get some other weird effects, too. I described how I got rid of mine (my pain and tension) by stretching and exercise in replies to @bkruppa in the pudendal nerve entrapment thread of this website. This does not show up on imaging. As the authors of “a headache in the pelvis” state, it’s something like 6 years average before a correct diagnosis is made. Meds like nortryptyline can help calm nerves but stretching and exercising and very deep inspiration and learning relaxation techniques can largely get rid of this. Please see my prior posts in the pudendal nerve entrapment thread for the details.

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