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Pain in the butt - Can't sit down

Chronic Pain | Last Active: Nov 6, 2023 | Replies (276)

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@vklittle61

I’ve had a pelvic mri

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Have you requested your records so you can read your radiology report? See if it says anything about any "incidental findings" of Tarlov cysts. They are also called perineural cysts. I've been a "chronic pain patient" for 15 years (since my accident) and am finally finding out that I've had these cysts the whole time. There seem to be a lot of "incidental findings"! Anyway, these cysts basically bulge from the nerve root sleeves that exit the vertebrae and cause a multitude of symptoms. Rarely does a doctor even acknowledge them because they are "incidental findings" and they weren't taught any more than that about Tarlov cysts in medical school. You will need to mention them to your doctor or even have him/her pull your pelvic MRI up to see if you have them. Radiologist may or may not even document them, I guess it's their choice.

I have the same "pain in the butt" that others have described on here. I know exactly the kind of pain you're talking about because I have it in both. I can't even put any pressure on my right butt cheek. It feels like there are hard balls of muscle/nerves in there and the pain is crazy. That nerve pain then spreads down my leg and into my feet. I now have peripheral neuropathy because of this. These cysts, when big enough, push on your sacral nerves causing cauda equina syndrome. For more info. look up Tarlov Cyst Foundation.

I slipped on wet floor last feb and landed in my coccyx and have had pain sitting ever since. Only relief I get is from a chiro who specializes internal massages to release tension and ease the tailbone back in place. Takes 2 min. And brings instant release sometimes for months. Then I go back. He sees 6 or 7 people every day. Some drive hundreds of miles. I have heard pelvic floor physics also do it also vaginally. He does it annually