Pituitary tumor symptoms: joint, muscle and body aches

I phoned my Neuro surgeon 10 days ago and said, "I cannot wait until July for another MRI, I am in continual agony, feel like all my joints are disintegrating, I need help now!!!
So, I have a new appointment for Dec 21. In the meantime I am doing EFT " tap" method for calming the nerves, praying through healing scriptures in the Bible, knowing the Lord Jesus wants me healed and enjoying the life he has given me!!
All blood tests from New GP came back normal!!🤷‍♀️
feel blessed, have my very own medical team👍 and I'm pushing myself to stand up and be as active as possible for my mental state of mind.
I am still active in my Interior Design business and it helps my mental state of mind to get up and move and create!!!
blessed Christmas, stay hopeful and advocate for yourself everyone!!

Jump to this post

I was diagnosed with a prolactinoma pituitary tumor. However, in all honesty, I think the doctors question what kind of tumor it really is. For prolactinoma, my prolactin level should be in the hundreds and thousands. My blood work showed it was at 57- high enough its a problem, but not high enough to be prolactinoma. The following was diagnosis from a variety of docs I saw: 1st primary physician- carpel tunnel, 2nd primary physician- I am over weight. Rheumatologist- 1st visit-I have gout. 2nd visit- fibromyalgia. 3rd visit depression. When I saw my endochronologist, he said it was my weight; the tumor had nothing to do with the pain. When I saw the neurologist he didn't even want to hear about my symptoms. His goal is to get the tumor out. With obvious frustration, I called Mayo and thankfully, I see an endochronolgist and a neurosurgeon soon. In the mean time, I have been researching pituitary tumors and joint/muscle pain, and I fall short every time. Then it dawned on me to research hypothyroidism (which I was diagnosed with when the tumor was found November '19). I have all the symptoms of hypothyroidism, one being sever muscle/joint/bone pain, swollen hands/fingers and feet, and carpel tunnel like symptoms, to name a few. All those symptoms are a result of nerve damage from hypothyroidism going untreated. I noticed something "off" with my body almost 2 years ago. I just assumed it was because I am aging, not as active, overweight. Turns out the tumor and hypothyroidism has slowing been creeping up on me. And interestingly enough, I stumbled across an article (that I didn't save and can't find on the internet) that quoted a doctor. He said the patients need to listen to what our bodies are telling us and not always go by what our blood work shows. I guess blood work doesn't always show there is a thyroid issues because our hormone levels change throughout the day. He advised to talk to the doctor about all the symptoms regardless of the blood work results. I know this was lengthy, but I hope it helps. My next research is going to be nerve damage and how/if/when it will heal and I hope I will be pain free once my hypothyroidism gets back to normal.

Jump to this post

Can a regular MRI see the difference of a tumor and cysts? I was told I have a cyst on my pineal gland that wasn’t there before and I’m so sick in bed bound and just got out of the ER. Please any help would be greatly appreciated 🙏🏻🤍 blessings of healing ❤️‍🩹

Jump to this post

@lidiana - I’m sorry that you are so sick! Can you tell me what brought you to the ER?
Did you have the MRI there?
A skilled radiologist should be able to tell the difference between a tumor and a cyst. Do you have a follow up appointment after your ER visit? Neurologist?
As far as I have learned from reading about pineal cysts they are not that uncommon, but they have to be followed. Obviously, if they get large they can cause problems too.
A Neurology follow up is very important so that you will know if the cyst is causing your current problems and also what are you supposed to do.

Jump to this post

@lidiana
You mention a neoplasm found on laparoscopy- can you go into more detail?

Jump to this post

Hi. I have been experiencing excruciating and debilitating joint and muscle pain for several months now. My lab work clears me of any rheumatoid issues. However, my rheumatologist diagnosed me with gout. I was on Allopurinol for a couple months with symptoms only worsening. I stopped the medication because I don't have the other typical gout symptoms. My primary doc, endocronologist, and podiatrist also ruled gout out. I was diagnosed with a pituitary tumor in November. I can't find a doctor who can help. Nobody seems to know why I have body pain and nobody can tell me if it relates to the tumor. I am ver frustrated living like this. I am just wondering if anyone else out there with a pituitary tumor might be experiencing constant cracking bones and popping joints with awful body pain that affects their daily activities/routine.

Jump to this post

been going through same things for 2 years!!! Pain getting worse daily....whole med team now!!! I am seeing my neurosurgeon on 5ec 21 and will say, " I want this tumor out NOW!! " the pain is debilitating! changed GP's because she ever said for 2 years was , "I don't understand what you are driving"
Anyway, can't afford the $50K to go to Mayo so will continue to push and advocate for myself in Alberta!! The Canadian Med system is not all it is cracked up to be!! I am on the journey and Will win!!

Jump to this post