Pituitary tumor symptoms: joint, muscle and body aches

So within a week your symptoms were resolved, that's great. I'm still dealing with fatigue, carpol tunnel and joint poping and some neck/shoulder pain. I'm hoping it goes away and being positive, only 10 days past my surgery. It's so weird cause most these symptoms which us pituitary adenoma people have, doctors will say unrelated. In my research body aches, carpol tunnel, fatigue, numbness, tingling, ear ringing, joint pain or poping seem to be common. Thank you for your reply.

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@khauert - Thanks for your detailed answer! First of all- you will eventually find out what’s happening to you when you see the Mayo doctors. Your story sounds similar to my daughter’s story. She was healthy enough through high school - competitive swimmer too. In college she first got very sick with mono -2 nd time. She started to put on a lot of weight- she was eating a lot and no exercise. In her teens she was diagnosed with fibromyalgia. It got much worse in college. Had to stop swimming, received lidocaine infusions. At the end of high school she was diagnosed with depression. After college she moved to FL for work. Dx bipolar disorder. Big weight gain, hypothyroid, diabetes, infections. Finally, her psychiatrist (!) diagnosed her with Cushing’s disease. The same week she had seen her endocrinologist for diabetes who yelled at her for being fat, she saw her internist and cardiologist- she had tachycardia and cardiologist just put her on medication without wondering why.
Anyway, we helped find a superb endocrinologist- diagnosed pituitary adenoma- Cushing’s disease- with excessive cortisol production. She was then referred to a dedicated pituitary center at a major university hospital. Tumor removed.
This shows how our bodies can fool us and why many people don’t get diagnosed for years. It is great that you will go to Mayo!!

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What is the name and location of the endocrinologist? I live in Florida now and I can't find one that just doesn't want to blame bad eating and diabetes. My story sounds so similar to your daughter's. I've been looking for an answer to my weight gain since college and I'm 53. I was an athlete in high school and then gained 70 pounds in 6 months. Because the basic blood panel doesn't show what they're looking for, no one will dig deeper. Please help

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@ralvarez38
My daughter’s Endocrinologist was Dr. Mary Lee Vance at UVA in Charon, VA. Amazing. She is very well known.
My daughter lived in FL at the time. After seeing awful doctors there I finally found a very knowledgeable Endocrinologist at Cleveland clinic’s new office in West Palm Beach. This was 2009-2010. She did the initial testing and recommended UVA. She didn’t think Miami university hospital was at the same level. Cleveland Clinic has a hospital on west coast of FL.

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Thank you. I am actually originally from Cleveland. I may just have to make a trip over to West Palm or head back home to see a specialist there if I can't get an answer soon. The pain is getting worse and worse. I have brain fog and memory issues, and I can't lose weight no matter how hard I try. There are some blood markers that are off a little bit, but no one seems concerned.

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@ralvarez38
I just checked online- i don’t see the West Palm office listing. There is one of the Cleveland Clinic hospitals as well as specialty clinics in Weston, FL.
I agree that you need to see someone soon since you are feeling worse.
What I would do is call Cleveland Clinic- in Ohio or Florida and find out where you can be seen in the near future.
If you need specific pituitary treatment I still recommend UVA in Charlottesville, VA.

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I too had a pituitary tumor diagnosed about 10 years ago and thought to be prolactin secreting. I had a great deal of pain and stiffness and eventually saw an endocrinologist who did additional testing and diagnosed me with Acromegaly. This is a rare disorder but make sure you have proper testing as it can cause lots of health issues!

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