Living with Neuropathy - Welcome to the group

@gbrodnan1945
Does it help numbness?
Is it covered by insurance, if not is it expensive? Does this medication work lin non-induced diabetic neuropathy? Is this medication formulated strictly for neuropathy for a vitamin deficiency?
Thanks much,
Jake

Sure! (short version) Following my initial J&J vaccine, I started having numb spots throughout my body. Fingertips, toes, belly, left leg. Eventually my left leg went dead. It felt like a prosthetic; like it wasn't mine. After 8 months of tests, tuling things out, and a nerve induction, I was told it was axonal polyneuropathy.

Numbness in the toes, bone crushing pain in the feet, typically after (even a short time) periods of rest or just getting up. Systemic body aches and stiffness. It was also found through labs that I had pretty bad B6 toxicity, so that hasn't been in the equation for over a year. Difficulty dealing with things that were seemingly simple before - a flight of stairs. A simple curb. Fell several times, three times ending with fractures.

PT did little to nothing for me (in Phx). Pregabaline and Tramadol helped take the edge off.

I was lucky enough, here in Tucson, to find a DPT who took the time to study my issues, talk to neurologist pals of his and work in my proprioception. We also do strength work. Pain is half of what it was a year ago. I'm always eager to learn more.

I am 73 and have been dealing with neuropathy in my feet for 5 years. It started with just a few left toes. Now really uncomfortable burning almost all the time in both feet. I am beginning to feel some tingling and numbness in my finger tips.
I have tried many meds. Right now I am using Voltaren gel, Robinorol and Pregablin. I am functioning.

Have you been tested for CIDP?

Hello @26sabrina and @danawyn, I would like to welcome you both to Connect. One of the great things about Connect is that we can share our health journey experiences with others and also learn from each other what has helped.

@26sabrina, I'm sorry to hear the burning pain is getting worse but it's good to hear you are still searching for something that helps. The Foundation for Peripheral Neuropathy has a list of different treatments including complementary and alternative treatments that you might want to take a look at here -- https://www.foundationforpn.org/treatments/.

@danawyn, It sounds like you also have a form of neuropathy. Do you have CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)?

thanks for the welcome.
thanks for the referral to the foundation for peripheral Neuropathy.
Regarding the CIDP I don't know nothing about this. .but immediately I'll research about this. Thanks.

What milligram is your prescription? I

Yes, I do. I have been receiving IvIG treatment since 2015 and am faring well. Thank you. The fact that her neuropathy has moved to her hands (and the burning sensation) is what peaked my interest. I am the NYC Liaison for the GBS/CIDP Foundation.

Good to hear you are faring well and great to hear you have a connection with the GBS/CIDP Foundation for support. There are some other CIDP discussions you might find helpful.

-- CIDP and concerns about treatment risk factors
https://connect.mayoclinic.org/discussion/cidp/
-- Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions
https://connect.mayoclinic.org/discussion/cidp-having-ivig-reactions/
-- CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
https://connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy/
-- CIDP and the Covid Vaccine
https://connect.mayoclinic.org/discussion/cidp-and-the-covid-vaccine/

I'm just joining this group. I've had Type 1 diabetes for 52 years since 1970 at 8 years of age. Started feeling neuropathy in my 20s but it seemed to go away for awhile. In my late 50s it started coming back. I don't feel pain, but just tingling and restless foot syndrome. I've never been diagnosed, but exercise especially running seemed to help it. I still run, but at 61 years of age, I'm unable to run as far and the neuropathy is getting much worse. It mostly affects my sleep. I hope to learn from some other experiences in this group.