← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)

Comment receiving replies
@johnbishop

Hello @26sabrina and @danawyn, I would like to welcome you both to Connect. One of the great things about Connect is that we can share our health journey experiences with others and also learn from each other what has helped.

@26sabrina, I'm sorry to hear the burning pain is getting worse but it's good to hear you are still searching for something that helps. The Foundation for Peripheral Neuropathy has a list of different treatments including complementary and alternative treatments that you might want to take a look at here -- https://www.foundationforpn.org/treatments/.

@danawyn, It sounds like you also have a form of neuropathy. Do you have CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)?

Jump to this post


Replies to "Hello @26sabrina and @danawyn, I would like to welcome you both to Connect. One of the..."

thanks for the welcome.
thanks for the referral to the foundation for peripheral Neuropathy.
Regarding the CIDP I don't know nothing about this. .but immediately I'll research about this. Thanks.

Yes, I do. I have been receiving IvIG treatment since 2015 and am faring well. Thank you. The fact that her neuropathy has moved to her hands (and the burning sensation) is what peaked my interest. I am the NYC Liaison for the GBS/CIDP Foundation.

I've never heard of this. Is this something that my doctor should be checking and would it mean a difference in approach to treatment?