Oral lichen Planus: What home remedies or medications help you?

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

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@willows

From my experience, in Ontario treatments by a certified dermatologist for medically necessary purposes are covered. Treatments involving cosmetics however are not covered. Same thing in Quebec. Generally, in my experience in both provinces, any treatment for lichen sclerosis or lichen planus are considered as being medical and are free with a provincial health card for treatment in that province.

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Does that include laser treatments?

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@lindajoan

Does that include laser treatments?

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I don’t know.

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My dermatologist for my lichen sclerosis prescribed me some mouthwash called DexAMETHasonee It has helped immensely. It is a rx but not outrageously expensive. I hope this helps.

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@willows

From my experience, in Ontario treatments by a certified dermatologist for medically necessary purposes are covered. Treatments involving cosmetics however are not covered. Same thing in Quebec. Generally, in my experience in both provinces, any treatment for lichen sclerosis or lichen planus are considered as being medical and are free with a provincial health card for treatment in that province.

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@willows visits to dermatologists are covered by Ontario Health Insurance Plan (OHIP), but not the medications/steroid injections.

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@microgirl

I have vaginal lp. I wonder if I may have esophageal lp as I started clearing my throat so often (about the same time as the oral lp was diagnosed) and I also often feel as though I can’t get food down and that has been terrifying at times. Recently had a periodontist appt and the hygienist examined my mouth and said-oh, there’s a lesion here and one there-I apparently have lesions and thankfully there is no pain but my tissue is sloughing away!!!
I was told over the summer to use Clobetasol every day which resulted in thrush! 🥲
It’s difficult to complain when so many people are in painful misery, whereas I have erosive lp with no symptoms 🤷‍♀️

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I am 65yrs old. I too have Oral and Vag LP. This past year I was having challenges with what appeared to be a dry esophagus. Thus often had to drink water after I ate something. I had and endo preformed & I do not have LP in my Esophagus, but I have acid reflux. I thought it odd since I never have any acid reflux that comes up into my mouth. The GI Doc explained that everyone has some degree of acid reflux and mine has not gotten to the point of coming all the way up my esophagus yet, but is coming half way up causing the irritation. Prescribed Prilosec, but I am watching what I eat as I do not want to be on another med & I have read that Prilosec is not good for peops with LP.
There is a great book called The Elimination Diet which is what I useing to figure out what was irritating my stomach. Also seeing if this helps my Oral LP as well. I wish you luck 🙂

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@ynp2907777

I am 65yrs old. I too have Oral and Vag LP. This past year I was having challenges with what appeared to be a dry esophagus. Thus often had to drink water after I ate something. I had and endo preformed & I do not have LP in my Esophagus, but I have acid reflux. I thought it odd since I never have any acid reflux that comes up into my mouth. The GI Doc explained that everyone has some degree of acid reflux and mine has not gotten to the point of coming all the way up my esophagus yet, but is coming half way up causing the irritation. Prescribed Prilosec, but I am watching what I eat as I do not want to be on another med & I have read that Prilosec is not good for peops with LP.
There is a great book called The Elimination Diet which is what I useing to figure out what was irritating my stomach. Also seeing if this helps my Oral LP as well. I wish you luck 🙂

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I didn’t find out until too late that ppi’s like Prilosec can be bad for your liver. You are right to be cautious. I have had sinus issues and hadn’t considered gasses from my digestive system as a cause until I did some research. Diet and intermittent fasting has given me some relief, but not a cure.

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@mayo99824

I didn’t find out until too late that ppi’s like Prilosec can be bad for your liver. You are right to be cautious. I have had sinus issues and hadn’t considered gasses from my digestive system as a cause until I did some research. Diet and intermittent fasting has given me some relief, but not a cure.

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Thank you for your reply. Such a frustrating disease! Take care!!

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@cjbors

My dermatologist for my lichen sclerosis prescribed me some mouthwash called DexAMETHasonee It has helped immensely. It is a rx but not outrageously expensive. I hope this helps.

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I swish & spit it out 3Xs a day for my mucous membrane Pemphigoid & it keeps it at bay.

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@mayo99824

I didn’t find out until too late that ppi’s like Prilosec can be bad for your liver. You are right to be cautious. I have had sinus issues and hadn’t considered gasses from my digestive system as a cause until I did some research. Diet and intermittent fasting has given me some relief, but not a cure.

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I have gastric reflux and was told that I could develop Barrett’s Esophagus.
I was put on PPP’s and had multiple issues with them so I stopped them. We adjusted the head of the bed, used wedge pillows etc. I ate dinner early nothing to eat after 5:30pm,
Well long story short, Aloe Vera gel 30 cc before bed seemed to work the best.
It can cause loose stools but it seems to work for me.
I hope you find a way to bring comfort.
Best wishes to you, Jillie

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@jilliemo12345

I have gastric reflux and was told that I could develop Barrett’s Esophagus.
I was put on PPP’s and had multiple issues with them so I stopped them. We adjusted the head of the bed, used wedge pillows etc. I ate dinner early nothing to eat after 5:30pm,
Well long story short, Aloe Vera gel 30 cc before bed seemed to work the best.
It can cause loose stools but it seems to work for me.
I hope you find a way to bring comfort.
Best wishes to you, Jillie

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Hi there

I am so glad that Aloe has helped you.

I have had the same issue for few years and was told the same by the dr.
I was on ppi as well which caused me to have kidney problems. I stopped it altogether went cold turkey. I tried himalayan salts for a few days to stabilize my alkaline. At first I was sceptical but it really helped.

Now I am seeing a homeopathic dr once a month and I feel like I can actually get up everyday and have the bare min pains.

I really hope this helps you!

Best wishes

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