Papillary Thyroid Cancer: Any experiences to share?

Posted by roya81 @roya81, Nov 29, 2022

Hi, my husband has just been diagnosed by Papillary Thyroid Cancer. Anyone with some info I can use? I’m sick worried.

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

hi royal 81.
i have been diagnosed with the same. now, its a hurry up and get blood test, vocal cord checked ( voice has changed), ultrasound on the neck, and soft tissues. so overwhelmed, so fully understand your situation. also the endocrinologist wants me to meet up with the surgeon so he can explain this and that and to tell you the truth, i thought she was really going to explain it all and then of course the one who does the surgery. but, that's the way the cookie crumbles for now..........thing is, i am up in age.

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Thank you for your reply, @lilyann ! And, sorry to hear about your diagnosis. I’m sure you’ll be fine. Nader (my husband) has already had his ultrasound and biopsy results. The plan is a chest CT and thyroidectomy in a month time. The surgeon said it’s a non-agressive type, treatable and hopefully curable. My knowledge is very limited so would really like to know about people’s experiences.

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royal 81, thank you for your support, yes, from what research i have done papillary is slow growing, so glad you are feeling much better about the situation and i'm wishing you and nader wellness and happiness.

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Welcome @lilyann and @roya81. I'm tagging fellow members like @mnroni1 @jlanderson76 @aejohns @destincindy @botts @annebee @karmamamma @maureenelizabeth, who have walked this path of papillary thyroid cancer diagnosis, treatment and recovery. I'm sure you have questions that they can help answer through their experiences.

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Any one from CANADA diagnosed with papillary thyroid cancer

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Im 34 and doctor pronounced yesterday that I got small papillary thyroid cancer on my thyroid. What will be my next steps? Whether it is 100% curable ?

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@xyzck88

Im 34 and doctor pronounced yesterday that I got small papillary thyroid cancer on my thyroid. What will be my next steps? Whether it is 100% curable ?

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In my opinion, get a second opinion ( not associated with the first doctor and have them do their own testing). If it is a small “ nodule” you might want to ask if they should use active surveillance to monitor for a little while…. It might just be a nodule… not cancer.

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@xyzck88

Any one from CANADA diagnosed with papillary thyroid cancer

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Welcome, @xyzck88. There are many Canadian members on Mayo Clinic Connect. I'm not sure about anyone specially with the diagnosis of papillary thryroid cancer. As you know, we don't collect data on location when you join the community. This is information that some members choose to share and others not.

What province are you from? What treatments are you having or have you had?

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Papillary Thyroid Cancer symptoms
I was diagnosed on the 14th with thyroid a cancer after having a nodule biopsy. Am currently working to get an appointment with a thyroid surgeon. Over the past year I have been having A LOT of what would be considered hypothyroid symptoms but my t4 and t3 levels always come back normal. I was just wondering if anyone else had similar experiences. (Female, 36)

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@namwob87

Papillary Thyroid Cancer symptoms
I was diagnosed on the 14th with thyroid a cancer after having a nodule biopsy. Am currently working to get an appointment with a thyroid surgeon. Over the past year I have been having A LOT of what would be considered hypothyroid symptoms but my t4 and t3 levels always come back normal. I was just wondering if anyone else had similar experiences. (Female, 36)

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Hi
I had thyroid surgery several weeks ago to remove right thyroid folowing byopsy that showed 80% probability of cancer. I'm recovering with no side effects except 3 inch incision on nech. I go back in another month for blood work to see if I will need to be on medication going forward. I'd be happy to answer any questions I can?
Don

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