Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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1 ReactionThat is great! Did you do anything besides gabapentin that may have helped with your neuropathy? I stopped taking gabapentin because of the side effects and found that it wasn’t helping with my neuropathy anyway. My neuropathy has never went away since my first and only Pfizer vaccine 4/21. It does get better here and there but always comes back just as bad and sometimes worse.
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1 ReactionThank you.
I’m sorry to hear that you’re not finding permanent improvement with your neuropathy at this time. I was fortunate that the Gabapentin helped with no negative side effects. I gradually got off of it as my symptoms subsided. I did a 20 minute yoga nidra meditation every day which I think just helped to calm me mentally and physically. For those 20 minutes a day, it felt like I didn’t have neuropathy because I was so focused on the meditation that I forgot about the discomfort. My stated intention during the practice was, “I am healing”. I had to believe that I would completely heal one day. I also exercise walked on the days that my feet allowed. My neurologist told me from the beginning that walking does help, if you’re able. I think it helped that I was otherwise healthy and that apparently, my nerves were in good shape prior to the sudden onset of neuropathy. It’s difficult to stay positive in the midst of the pain and discomfort, but for me, it really was vital. I hope this helps and I wish you all the best.
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1 ReactionThat is such good news that you are doing so well after your vaccine injury! You are the first person I have seen to report complete recovery that includes recovery of a normal EMG. My symptoms are greatly improved but there was no improvement in the nerve damage according to my most recent EMG 5 months ago. I'm now hopeful that my next EMG will show improvement. Thank you for sharing your good news!
Did your doctor discuss a possible resurgence of your inflammatory reaction to the spike protein if you should get Covid? Would you try a short course of steroids then? My nerve damage from the vaccine is also likely due to an inflammatory autoimmune reaction.
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1 ReactionYou’re welcome. Thank you for your kind words. I’m happy that your symptoms are improving and hoping that your next EMG will show improvement in your nerve health. My doctor’s theory is that the damage to my nerves happened in the Myelin Sheath, which is a protective insulation around the nerves, more so than the “wiring” part of nerves themselves.
We did discuss a possible resurgence of the neuropathy from a case of Covid. I would take Paxlovid as a treatment and if any neuropathy symptoms began, she would definitely start me on a short term course of steroids to stop my immune system from going out of control. The sooner the symptoms would be addressed, the better the chance would be of limiting that inflammatory response that probably caused the neuropathy. Good luck.
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2 ReactionsMy pn started after my 1st Moderna Covid shot. I’ve had 5 shots with increasing pain and spreading of pn. Now my inclination is to not get the next shot when it’s available. The question is what’s going to kill me, Covid or neuropathy!
Thank you. I believe trying to maintain a positive outlook is very beneficial and I found walking is too.
The yoga nidra meditation sounds like a good thing for me to try. Would you mind sharing a link to the one you do? I wish you continued good health.
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1 ReactionYou’re welcome. Yes, staying positive is very important. I needed to believe that I was healing. The video that I used was Lizzy Hill 20 Minute Yoga Nidra. You can access it through YouTube. I hope it will be something you can use. All the best to you.
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2 ReactionsInteresting medical video. Sounds all too familiar to me.
Long COVID:
* Fatigue
* Depression
* Memory Problems
Adverse Reactions to Vax:
* Brain fog
* Cognitive issues
* Memory
* Transverse Myelitis
Lucky me. I have all of the above.
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1 ReactionWho is your doctor and is she/he taking new patients?