Anyone had a problem with neuropathy after receiving the vaccine?

Hi, Fortunately I only had a little soreness but I did have extreme fatigue on the day after the second Pfizer vaccine. I've since had the 3rd booster shot and so far none have had any effect on my small fiber neuropathy. I also contracted COVID after the booster shot but it was mild and I really wasn't sure I even had COVID until I did a home test and followed that with the monoclonal antibody infusion treatment.

Hi
Thank you for update.
That gives a relief.

I had a similar adverse neurological reaction to the Covid vaccine. My neurological symptoms began within 2 weeks of the first vaccination and worsened after the second. I developed sensory and motor peripheral neuropathy diagnosed by EMG. I also developed an elevated ANA titer that peaked when my neurological symptoms peaked. Most of the vaccine-injured patients begin to improve about 8 months after vaccination. I'm much improved, but still recovering at 18 months. Your timeline may be different given that you had 4 shots. I have greatly benefited from joining the Neuro V Long-Haulers Facebook group.

I am done with all COVID vaccines and boosters. Nope. Not gonna do it. It was poison to this Scot-Irish redheaded lass.

I am so sorry you experienced this too. It's horrible. The covid vaccine ruined my life and completely disabled me. Had the info about adverse reactions and neurological and dysautonomia issues been available and not actively suppressed and ignored, I wouldn't have been talked into it. It has been a year now and I am still unable to do basic tasks or personal care. Can't get a Dr to acknowledge it or do anything about it. Disability is giving me the runaround because the drs won't or can't figure it out bc they won't admit or even consider it was the vaccine despite the many links and studies and the fact that the onset was immediate and nothing changed 6 months before or after. And even if they did, my DDS caseworker already told me he doesn't believe in anything that can be proven definitively, not even cfs and fibromyaligia which I also have and counts as far as SS is concerned as long as it is disabling. I was lied to and coerced into getting it and now that I'm ruined because of it I can't get any help or assistance and I have no recourse since no one can be held liable and the CICP is a joke at best. Beyond ridiculous.

My small fiber neuropathy arrived in 2018 and was very painful. It is stable now (only tingling in my toes and hot feet at night that I treat with 5% Lidocaine patches.) I want to keep it in a treatable state but I also wanted some more covid protection because I haven't had any vaccine for a year when I had the J&J. Last week I had the Novavax vaccine (which is made with an old technology) and so far I haven't had any problems with my neuropathy.

During first rounds of chemotherapy, I had two Moderna vaccines and two Moderna boosters, with no reaction except a bit of sore arm and extra fatigue. Neuropathy symptoms get very slightly worse with each maintenance treatment, but are tolerable. Symptoms seem better after exercise and as the day progresses. I am as active as possible and my desire to live independently as long as possible motivates me to keep on keeping on.

I developed peripheral neuropathy in December 2021 after my first Moderna booster at the end of October 2021. At the time of onset, I could barely walk. As of early October 2022, I was walking and hiking three miles a day and was completely off of Gabapentin. On Thursday, I had an EMG test. The results were better than I could have imagined. My nerves are completely healed. The health of my nerves is excellent. I’m truly grateful for this turnaround. I feel very blessed to have come through this experience, back to my former good health. My doctor believes that my neuropathy was likely caused by an extreme inflammatory response to an overreaction of my immune system to my first booster. She has suggested a short term prescription for steroids if I have any future, immune response overreactions to medical conditions or at the first sense of a recurrence of any tingling or numbness. The suppression of the immune response by the steroids might keep my immune system from attacking my nerves again. The sole reason that I’m posting this is to let people know, that in some cases, healing is possible. I realize that everyone is different and that not everyone will come through this the way I have, but when I read of the frustration and desperation from so many similar cases, I hope that maybe this will help someone to feel a little better. To feel that there might be hope for resolution to their situation. I was extremely fortunate to have a wonderful doctor who heard me, believed me, and has done all that she can to see me through to this day. She gave me hope from the day I met her. We have a plan in place for any future problems. Knowing that and having such good results from the EMG gives me peace of mind. I wish that for all of you.

Hi @detc, You will notice that we moved your post to an existing discussion on the same topic here so that you could connect with other members like @dortj, @cue and others who are discussing the vaccines and neuropathy symptoms.

-- COVID vaccines and neuropathy
https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/
You might be interested in seeing the treatments that have helped others with neuropathy symptoms on the Foundation for Peripheral Neuropathy website here: https://www.foundationforpn.org/treatments/

Thank you for the links, John. I appreciate it.