Scoliosis - Introduce yourself and meet others

Let's talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles and Spine Health groups, I've noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Get comfortable in your favorite spot, grab a beverage of your choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Spine Health Support Group.

@glaciermom

Hi, my name is Sandi and I am just here to talk about my experience with surgery for scoliosis. Mine was very short term, a little over a year. It was caused by my L1-2 rupturing. The 2-3 had been gone since 2013 so, the rupture caused my spine to collapse into itself.
I could not figure out why I kept leaning toward the lady sitting next to me in Church. It was very embarrassing. When I was referred to a neurosurgeon in another state, I mentioned that and that my physical therapist said I had to retrain my brain. The doctor turned around and told me my spine was leaning to the left so of course I would be leaning to the left, Puzzle solved.
I went back a month later for what I was told by local PA, was spine reconstruction. It was more painful than any of my fusions. However, my scoliosis was gone, I had a curve in my back again and gained back a half inch like I had asked for him to try for me. After the surgical pain was gone I realized that I did not have the pain that I had fought with for over thirty years. Told the surgeon it was a miracle. He was as surprised as I was that all the pain was gone.
I never really understood what scoliosis was, so I thought I would stop in to see what you all were talking about. Sorry this is so long I tend to give large explanations.

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Hello @glaciermom and welcome to Connect. I'm so glad that you shared your good experience with surgery. You must be so pleased to be free from the pain that you experienced for years.

You were wondering about scoliosis. Here is a link to an explanation from the Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/scoliosis/symptoms-causes/syc-20350716.

As you can see from reading this article, scoliosis is often first diagnosed in children and can be a result of birth defects or neurological/muscular disorders. From your post, it appears that yours was caused by a rupture of a lumbar disk. Is that correct?

I'm wondering if an accident or other injury caused the ruptured disk.

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My name is Judy…I have scoliosis since childhood…I am now 70…it keeps getting worse…can anything be done for it? I have been told no.

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I have mild scoliosis. The book, Back Mechanic, by Scott McGill Phd is helping me to understand how I need to function in every day activities. I'm also taking private classes with a McGill practitioner. It's a long process but I do have some relief. I wish you well and hope that you find some help.

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I believe I was born with scoliosis. I was in my late thirties when a chiropractor showed me an x-ray of my spine. I thought it was a false x-ray! The curvature is pretty evident to the left just above my hip area. Why this was not addressed before, I will never know. When I thought about it, it explained so many things I could not do as a kid that others did so easily. I believe
the only thing that helped me live with it was having very strong bones and being athletically inclined. It showed itself through my right breast always being a bit lower than my left. Now, at my advanced age of 76, It seems my back is beginning to weaken; I can see the effects very clearly in my visible bone structure. I have lost an inch in height from 5’6” to 5’5”. I usually walk quite upright, so most people don’t notice, but I find myself tired every day from the effort. When I go to the gym, I find I’m also very tired afterwards. I’m concerned that I am on a downhill slide. Any help is appreciated. (Sorry for the long post. Thanks for reading this far!)

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My Name is Seyi from Nigeria. How does one manage and prevent Scoliosis progression in an area of very bad and bumpy roads?

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My Name is Seyi from Nigeria. How does one manage and prevent Scoliosis progression in an area of very bad and bumpy roads if and if one has no choice but to live in that location. Is bad roads a cause of scoliosis getting worse?

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@bonseya2

My Name is Seyi from Nigeria. How does one manage and prevent Scoliosis progression in an area of very bad and bumpy roads if and if one has no choice but to live in that location. Is bad roads a cause of scoliosis getting worse?

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Welcome Seyi. Scoliosis is a progressive condition, but it is impossible to know how much progression a person will have. The degree of progression that a person faces will vary drastically from one person to the next, even if their condition starts out with similar characteristics.

Here's a list of do and don'ts about scoliosis that you might find helpful
- Scoliosis Do's and Don'ts https://www.treatingscoliosis.com/scoliosis-dos-and-donts/

Being jostled on very bad and bumpy roads is not included in the list. But you might adopt some of the stretching and core strengthening exercises to counter the unavoidable travel you must do.

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@colleenyoung

Welcome Seyi. Scoliosis is a progressive condition, but it is impossible to know how much progression a person will have. The degree of progression that a person faces will vary drastically from one person to the next, even if their condition starts out with similar characteristics.

Here's a list of do and don'ts about scoliosis that you might find helpful
- Scoliosis Do's and Don'ts https://www.treatingscoliosis.com/scoliosis-dos-and-donts/

Being jostled on very bad and bumpy roads is not included in the list. But you might adopt some of the stretching and core strengthening exercises to counter the unavoidable travel you must do.

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On the texting issue. Does wearing a neck brace while texting solve the problem?

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My name is Patricia/Pat. I am 82 yrs old and diagnosed with Idiopathic Progressive Scoliosis since 16 years of age. My entire career was as a bedside registered nurse in the Medical Intensive Care of a city hospital. The curvature is in thoracic and lumbar areas with no surgical intervention. I, too, have experienced lumbar back pain after prolonged standing or walking relieved by rest. I was fortunate to not have chronic persistent discomfort that so many endure with this diagnosis, however, with age comes increasing fatigue.

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@mollyb1968

Good morning. I am MollyB. I was just diagnosed with scoliosis. I did not know I had it. I have noticed in the past years it hurts to do things I love to do. This year I had the bone density scan which shows scoliosis and beginning of osteoporosis. I can not take calcium as my calcium in my blood is always high due to hyperparathyroidism. I want to learn as much as I can through this media. Thank you.

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Ask your dr. if you should have parathyroid surgery. Hyperparathyroidism will make your osteoporosis get worse really fast. I have severe osteoporosis and believe me you really want to avoid it.

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