Neuropathy post-Covid infection: Is there treatment that helps?

Posted by erice10 @erice10, Nov 11, 2021

Since having Covid in Jan. of 2021, I have had constant numbness and joint stiffness in my feet. Is there a treatment or therapy to help with this? Is there a study researching this kind of problem in Covid long haulers? I had an ultrasound checking the blood circulation in my legs and everything was fine.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@megangreen

I know this message is nearly one year old and I hope your problems have now resolved.

In the responses no one seems to have mentioned the possibility of you having developed Plantar Fasciitis which would likely have developed coincidentally to any vaccines.

Oral corticosteroids can relieve PF but certainly doesn’t resolve it until generic or customised shoe supports are implemented.

Aside from severe bilateral Plantar Fasciitis I have Peripheral Neuropathy in both feet and now severe osteoarthritis in the feet and elsewhere…..so I do understand foot pain.

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I have had chronic Plantar Fasciitis for years. The best treatment I have found to keep it at bay is Yoga, specifically for low back pain and hamstrings. "Yoga with Adrienne" on You tube.
I found that the shoes from Happy Feet work better for me than custom made insoles.

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@lenaybrown

I'm here looking for answers as I have apparent neuropathy in my feet and jumpy twitches constantly in my calves. Nerve conduction test and mri and physical tgerapy-my Dr is saying he is leaning towards nerve problems due tothe spike protein on Covid. I don't know what to do. My feet feel like blocks of ice, or shooting vibrations with sometimes sharp hot pains .

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Hello @lenaybrown, it is frustrating not knowing what to do when you have neuropathy symptoms along with other conditions. I started my journey on Connect looking for treatments for neuropathy back in 2016 but I've had the numbness for more than 20 years before deciding to get a diagnosis which turned out to be idiopathic small fiber peripheral neuropathy. Much to my dismay all of my searching has led me to learn there is no cure for neuropathy but there are many different treatments that may help. The key word is "may" help, since everyone is different.

It sounds like cold feet and/or shooting vibrations and hot pains are the main symptoms you are looking for what helps. There are a couple of discussions that might be helpful:
-- Cold feet due to neuropathy - need help:
https://connect.mayoclinic.org/discussion/cold-feet-need-help/
-- Burning feet and legs:
https://connect.mayoclinic.org/discussion/burning-feet-and-legs/
One thing that helped me was finding reliable information on neuropathy symptoms, causes, and treatments plus reliable research information. My two favorite sites are:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

Has your doctor given you any suggestions for what may help?

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I found LDN at 4mg has helped greatly. Prayers!

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@shelf

I found LDN at 4mg has helped greatly. Prayers!

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Welcome @shelf, Thanks for sharing! What symptoms do you have with your neuropathy that were helped with the LDN?

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Has anyone found that having Covid has worsened their peripheral neuropathy symptoms?
I have recently had my second covid infection and have taken Paxlovid antivirals. I have found my symptoms have become significantly worse since this bout of covid.

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@richardrr

Has anyone found that having Covid has worsened their peripheral neuropathy symptoms?
I have recently had my second covid infection and have taken Paxlovid antivirals. I have found my symptoms have become significantly worse since this bout of covid.

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Hello @richardrr. I see you'd like to connect with others who have experienced COVID and also have experience with neuropathy symptoms. Because of that, you will notice that I have moved your post into an existing discussion on the two topics, which you can find here:
- Neuropathy post-Covid infection: Is there treatment that helps?: https://connect.mayoclinic.org/discussion/neuropathy-in-feet-post-covid/

Members like @dp33 @shelf and @frking have all recently shared their experiences with others in this discussion and may be able to come in and join you as well.

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I know many people that get relief from Gabapentin
restless leg caused by severe anima
alcoholic neuropathy
nerve damage
i also have heard it helps with sleep

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@richardrr

Has anyone found that having Covid has worsened their peripheral neuropathy symptoms?
I have recently had my second covid infection and have taken Paxlovid antivirals. I have found my symptoms have become significantly worse since this bout of covid.

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Hi @richardrr
My peripheral neuropathy started after I got Covid and has continued but at a lower level follow the changes I made. I have taken a number of actions to minimize the symptoms include PN friendly vitamins (similar to Protcol 525 - particulary ALA), cut out caffeine and alcohol. Greater exercise and always something using my legs eg hour walk, or exercise bike. I also tried ARP Wave therapy for 2 months and I think that was positive but I would not recomend that for anyone experience any pain from PN. All these steps has reduced the PN - its not painful but still exists probably around 30% of what it was.

I did an EMG test which showed minor nerve damage in one foot and the rest at the lower end of the normal range. However with no baseline the results are meaningless - I could have been at the higher end of normal before.

My neurologist is hopeful this will subside over a two year period - I am 10 months in so I have some hope. Biggest impact for me was giving up caffeine.

Hope the above helps
David

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@johnbishop

Hello @erice10, Welcome to Connect. I have not had COVID but I do have small fiber peripheral neuropathy in my feet. Here are a few references to information on studies on the topic of neuropathy in the feet following COVID.

-- Peripheral Neuropathy as a Complication of SARS-Cov-2: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7673277/
-- COVID-19 Peripheral Neuropathy: A Report of Three Cases: https://www.cureus.com/articles/69236-covid-19-peripheral-neuropathy-a-report-of-three-cases
-- Imaging Review of Peripheral Nerve Injuries in Patients with COVID-19: https://pubs.rsna.org/doi/10.1148/radiol.2020203116
-- Post-COVID pain or weakness? MRI can pinpoint nerve damage: https://news.northwestern.edu/stories/2020/12/covid-pain-nerve-damage/

Have you discussed the numbness and joint stiffness in your feet with your doctor or thought about seeking an appointment with a neurologist?

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@erice10 @johnbishop
Below is the link to a published study in Post COVID PN patients
https://nn.neurology.org/content/9/3/e1146

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@dp33

Hi @richardrr
My peripheral neuropathy started after I got Covid and has continued but at a lower level follow the changes I made. I have taken a number of actions to minimize the symptoms include PN friendly vitamins (similar to Protcol 525 - particulary ALA), cut out caffeine and alcohol. Greater exercise and always something using my legs eg hour walk, or exercise bike. I also tried ARP Wave therapy for 2 months and I think that was positive but I would not recomend that for anyone experience any pain from PN. All these steps has reduced the PN - its not painful but still exists probably around 30% of what it was.

I did an EMG test which showed minor nerve damage in one foot and the rest at the lower end of the normal range. However with no baseline the results are meaningless - I could have been at the higher end of normal before.

My neurologist is hopeful this will subside over a two year period - I am 10 months in so I have some hope. Biggest impact for me was giving up caffeine.

Hope the above helps
David

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Thanks David, I'll give it a try.

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