Mold Toxicity

Posted by Sundance(RB) @sundance6, Jan 25, 2019

Was doing some research on Symptoms of Lyme Disease the other night and ran into similar symptoms of Mold Toxcity. Does anyone know anything about it?
Thanks,
Sundance

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@glenb

I have toxic mold poisoning for 2-3 yrs . Inside one of our outside walls was full of toxic mold and we were unaware of it . We had 3 of the most toxic molds there is and the mold experts tested air quality outside it was 300ppm and inside 18,000 it was airborne and very bad . We moved in 3 days . Since I have lived through this hell and I have learned A lot about this . Bleach alone will not eliminate toxic black mold. Yes it will turn white and appear to go away but the bleach will not eliminate the spores. The spores will attach to all of your belongings . We had to throw away 95% of our belongings. If you don’t do this when you move you will take the mold with you . I had been to about 15 Drs when I was sick for the first 18 months and we had not discovered the mold yet, and they could not figure my case out . I had done so many tests and lab work and procedures done it was crazy. Then after we found the mold I have 3 more doctors and they are trying to help me . People will think you are crazy when you have this . There really is no cure but there are some actions you can take to help you contact me anytime by Text or email and I will be glad to share my experience .i want nothing out of it I just hope to help anyone I can because this is a horrible experience .

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Just found out that I have high levels of mold toxicity - would love to hear about some of those actions you can take - Sheldon

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@starsky72

Just found out that I have high levels of mold toxicity - would love to hear about some of those actions you can take - Sheldon

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Welcome @starsky72 and @jessie1665. Thank you @jessie1665 for suggesting the video webinar by Dr. Jill Carnahan. I thought I would share it here for you as it may be helpful for @starsky72 and others.

Can you share any more details about the mold toxicity?

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@chronicpaingirl15

I’m waiting on results from having both my mom’s and my house tested on Tuesday afternoon. My mom came home from rehab yesterday and this is the best cognitively she’s been in quite some time and I’m not sure if it’s from the spinal tap they did and drained 33cc of fluid, or being out of her house for two weeks or a combination of the two.
I should have the results back today or tomorrow morning at the very latest.

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Update?

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@glenb

I posted a reply but you are welcome private message me. I am not selling anything just a victim of mold poisoning and I want to share the information I have learned over the past 3 years of suffering . Good luck GlenB

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I see you found. Doctor in Texas to help.

I am far from Texas, but I need serious help. Would you consider sharing your doctors contact information?

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@sundance6

John, Thanks, Seems Like I'm back to square One in my hunt to a cause as to what is wrong with me and many others! I thought it may be an avenue to persue but it dosen't look that way. Will continue the hunt! Have a Merry!
Thanks,
Sundance!

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Search google for CIRS chronic inflammatory response syndrome. Also CIRS shoemaker protocol. I would provide links but new users not allowed by the site.

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@massi

Search google for CIRS chronic inflammatory response syndrome. Also CIRS shoemaker protocol. I would provide links but new users not allowed by the site.

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Welcome @massi, Thanks for the suggestions for @sundance6. You should be able to share links soon. New members are prevented from posting links for a short period of time to keep spamming. I thought I would share the link to the site with the documents for you.
-- The Surviving Mold Membership Program
https://www.survivingmold.com/

Do you have chronic inflammatory response syndrome?

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@glenb

Hello this is Glenb and I have been going through a horrible experience with mold for over 3 years. I moved into a house and within a few months I began having all kinds of crazy symptoms: headaches, rash, hypertension, fatigue, joint pain , trouble swallowing and choking, and many more and this progressively got worse and to the point where I felt on fire most of the time. My head felt like it was on fire. I went to 15 doctors and they kept referring me to more specialists and finally they were about to send me to Mayo Clinic or Cleveland Clinic.i had a family doctor, cardiologist, oncologist, pulmonologist, Dermologist, kidney, ENT, so many I cannot remember all and I am on the road right now . My IGE level was elevated to 12 times the normal, my BP got as high as 223/118 , I went to the ER several times . I was hopitalized for a week because they thought I had a heart issue . I had dozens of lab tests, sonogram, chest X-ray, cat scan, MRI, bone marrow procedure where they took sample it out of My spine ( not a good experience ) because they thought I had an auto immune: mast cell disease which is not good, colonoscopy, endoscopy, enhanced swallow text , and many more. The more my Friends and relatives thought I was crazy, the more symptoms I would get and the others had gotten worse to the point where I felt like my Brain was on fire and I was starting to question my own sanity.
Then we found the mold. It was very bad. It had been growing for what appears to be years between the exterior wall and the inside wall .
Mold inspectors came out and found 3 of the most toxic molds there is and they did air quality test and it was 300ppm outside and 18000 ppm inside . It was very bad . It was in the AC/heat system also. Well not very many doctors know anything about mold and the health insurance industry tried to sweep in under the rug so to speak, because there are millions of potential cases and law suits were beginning to emerge . This is why you see major medical institutions making statements about how there is no proof about toxic mold causing specific medical problems . You can even go back to older articles and Mayo even had mad similar claims; but it is slowly changing. In the last 18 months or so I am seeing more info and major
Medical institutions stating that it can cause organs to shut down, cancer, lung damage leading to death, diminished cognitive ability ( brain fog ) , and ravages immune system.
Well I guess I am a bit lucky because so far not much lung damage and no cancer yet, but I have all of the rest . There no cure. There are some treatments to help your body eliminate the mycotoxins, which is a must or like several “ doctors “ have told me if I do nothing it will eventually kill me . I am 67 ( high risk group ) sand Medicare will not lay for the blood test . I haven’t tried to appeal this and it probably will probably pay eventually . The urine test is the least expensive and they will pay for that and according to the specialist I go to now if you have mycotoxins in your urine they are in your blood . They also did a nasal swab , not sure what they call it but it was not fun and I had fungi and bacteria from the mold there. My body is producing way too much histamine now which causes so many problems . Any allergy I had before they seem like they are 10 times worse now . I forgot to mention : I have adult asthma now so I carry an inhaler 24/7 and have to use it frequently. I live in DFW Texas and it was difficult to find a doctor to help me . I had UTSW set up an appointment with a immunologist ( took 3 months ) and his office called and cancelled 2 days prior and doctor said he does not treat mold . It is crazy . This is a real issue and there are probably thousands of people that are having a variety of symptoms and don’t even realize they have been exposed and doctors have misdiagnosed and labeling it auto immune ( which they don’t know that much about ID either ) it is shameful what the health insurance big bucks has covered up . I got lucky and was referred to a Dermologist that actually spent 2 year off of work dealing with personal mold poisoning and she has helped me with much info . She told me that 75% of people metabolize the mycotoxins and eliminate these naturally but 25% of people don’t , I am in that lucky group. Check the laws in your state and there may be something about mold and landlord tenant statutes where they have to refund you and you move . I would get out of ASAP. The longer you stay the more damage to your health. Contact me and I will be glad to give you all the info I have . I don’t want any money or anything out of this . I want this information to get out to as many people as possible . I hired a lawyer and going after the people on the house legally because we have proof they were aware of it . Take care . Good luck . Glen B

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@glenb - could you share the name of the dermatologist? I'm in DFW as well.

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@hbsseller

@glenb - could you share the name of the dermatologist? I'm in DFW as well.

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Welcome @hbsseller, I'm not sure if @glenb is still following Connect as their last post was in 2020. Hopefully another member in the discussion may be able to share some suggestions. I did find this one but have no experience with them.

-- Environmental Health Center-Dallas
https://www.ehcd.com/mold-and-health

Do you have an illness that you suspect is due to mold toxicity?

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I lost a lung to mold and fungus a year ago October 12th!

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@grandma5

I lost a lung to mold and fungus a year ago October 12th!

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@grandma5. How awful? Can you share the path of your diagnosis?

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