Internal Body Tremors and Tinnitus

Posted by kkinsley @kkinsley, Jun 29, 2021

I am a 47 year old female who has been in very good health most of my life. I work out daily. In January I had sudden elevated blood pressure and feelings of heart racing/palpitations. I was put on 25 mg of Losartan. An Echo and 7 day heart monitor were normal. 3 weeks into taking the medication, I developed ear ringing and feeling shaky. I was switched to Coreg (beta blocker) to see if symptoms improve.

Symptoms progressed to feelings of internal head vibrations/quivering and sometimes into chest and abdomen as well as a feeling of shakiness in my limbs off and on. I had a CT Scan and MRI as well as lots of blood tests including checking thyroid and hormonal/adrenal gland issues. All tests normal. Saw an ENT for the tinnitus and also tell me everything looks normal. Only reference in MRI was that the bilateral anterior inferior cerebellar arteries are coursing in close proximity to their respective 7th and 8th cranial nerves. Neurologist didn't think symptoms were typical of neurological diseases so these are ruled out for now. He isn't sure but only speculation that it's possible arteries have irritated cranial nerves but had no treatment to recommend. I have days when the head and body vibrations are unbearable and days when they are more manageable.

Sleeping is challenging and I started on Gabapentin (Neurontin) at bedtime which has helped my sleep. I am also now off all blood pressure medications and my blood pressure is normal again. I have perplexed my doctors. Seeking any insight here. I am beyond frustrated. Not even sure if the Blood Pressure issues and meds caused this or just coincidence in timing. Seems I have some sort of internal tremors but no tests show why yet.

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@hopeful33250

I would certainly support your idea to have a consultation with an endocrinologist, @d13. Endocrinologists are amazing doctors who have a strong background in all of the body's systems. Developing a relationship with a good endocrinologist would be a good next step for you.

Is the abdominal discomfort related to numbness as well?

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I’m not sure, because the numbness in my feet and hands came about two months after chemotherapy treatments. Four or five days after my first treatment I got C-diff and was given antibiotics for it. Basically that’s when I started feeling the symptoms in my abdomen and a compression feeling throughout my rib cage area. Then three weeks later had my second chemo treatment and things got worse. Found it very hard to take deep breath’s and ended up going to the ER several times. The first ER visit was because I had an A-fib episode m, that’s when I found out I had breast cancer. That was eleven months ago now. Now I’m basically told it could take up to two years to get back to normal, or at least I’m hoping for that!

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@d13

I’m not sure, because the numbness in my feet and hands came about two months after chemotherapy treatments. Four or five days after my first treatment I got C-diff and was given antibiotics for it. Basically that’s when I started feeling the symptoms in my abdomen and a compression feeling throughout my rib cage area. Then three weeks later had my second chemo treatment and things got worse. Found it very hard to take deep breath’s and ended up going to the ER several times. The first ER visit was because I had an A-fib episode m, that’s when I found out I had breast cancer. That was eleven months ago now. Now I’m basically told it could take up to two years to get back to normal, or at least I’m hoping for that!

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You have been through a great deal, @d13. I agree that it might take a long time. When nerves are damaged it can take a while for them to regenerate.

Last summer I had plastic surgery on my eyelids and forehead to correct some vision problems and I still have a great deal of numbness. The surgeon said the numbness would dissipate only a millimeter a month.

I know I can't compare my surgery to yours but it is an example of how long it can take. Have any physical therapies been suggested?

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@hopeful33250

You have been through a great deal, @d13. I agree that it might take a long time. When nerves are damaged it can take a while for them to regenerate.

Last summer I had plastic surgery on my eyelids and forehead to correct some vision problems and I still have a great deal of numbness. The surgeon said the numbness would dissipate only a millimeter a month.

I know I can't compare my surgery to yours but it is an example of how long it can take. Have any physical therapies been suggested?

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No therapies have been suggested by my doctor. I am going to make an appointment with my new primary; who I have only seen once, but she did seem concerned. She told me to come in when after I see my oncologist to hear what he had to say and go from there. I’m going to see if she thinks seeing an endrocologist would help. If not, hopefully she’ll have suggestions for me.

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@d13

No therapies have been suggested by my doctor. I am going to make an appointment with my new primary; who I have only seen once, but she did seem concerned. She told me to come in when after I see my oncologist to hear what he had to say and go from there. I’m going to see if she thinks seeing an endrocologist would help. If not, hopefully she’ll have suggestions for me.

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This sounds like a good plan, @d13. I hope you get some answers and most important, some hope.

Will you post again and let me know how you are doing?

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@hopeful33250

This sounds like a good plan, @d13. I hope you get some answers and most important, some hope.

Will you post again and let me know how you are doing?

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Sure, I’ll flag this and hopefully I won’t have to wait too long for an appointment.

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I have ringing in my left ear along with headaches, head and neck pressure and brain fog since having covid in November of 2021. Did you have covid?

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Sorry to hear that I have ran and both of my ears I had MRI done a CAT scan done been on toner medication nothing works I can’t sleep I can’t focus I have a hard time working I wish you the best

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Can’t ringing in the ears be just á normal head condition? Í ám 80+ years öld and don’t know if Í never had tinnitus. Í remember being súrprised when á college friend with á head cold complained about hér ears rigning. To me it’s just part of á normal condition.

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@kkinsley

MJ, not sure if your question and post is directed to me from my post about internal body tremors and tinnitus? But, I do not have a diagnosis yet. I am still working with my neurologist to try to understand what is going on.

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@kkinsley I was wondering how these symptoms are for you now? Have you gotten any relief or diagnosis?

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I developed a persistent case of tinnitus in my left ear that began in 2004 when I had a (SCS) spinal cord stimulator threaded down through C4-5 to the L-4, S1 area (SCS was removed in 2010). I have seen an ENT specialist and had a CT scan done in 2005 with the diagnosis of tinnitus, “etiology unknown”. To this day in 2022
I still have very loud pulsations in my left ear which sounds like a loud tinny echo that just never goes away. I’m taking CBD hemp oil, 50mg which helps me to relax and sleep at night. This constant ringing in my ear has become my new normal now…

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