What helps with post liver transplant fatigue?

Hello, I am 6 months post and cannot do the exercise I was able to do before transplant. It’s very frustrating. My numbers are good and I exercise everyday, but I feel like I should be able to do more. I think I’ll make an appointment with my primary care doc to check all of my non transplant numbers. I don’t know.

Welcome @eparker6. I see you found a related discussion about fatigue and lack of energy. You may also find some helpful hints in this related discussion:
- What helps with post liver transplant fatigue? https://connect.mayoclinic.org/discussion/post-liver-transplant-fatigue/

Is yours a fatigue that is not helped by sleep? I know it seems almost impossible to do, but light activity can actually help, like walking even short distances.

What type of exercise did you do pre-transplant?

Hi Colleen, thank you for responding. I’m a runner. I still run but it’s hard to do. I just wish I could feel good when I run now as I did before transplant.

Although sleep is getting better, it is still an issue.

I guess it’ll take time?

I have severe osteoporosis. I have been on Tymlos, prolia, and now evenity. There are side affects, but it is the only thing that has helped me to gain bone density. I switch drugs every 2 years. I tried the natural approach and I kept losing bone density. Every drug has side effects unfortunately. My endocrinologist tries to stick with the tried and true drugs, so I am happy with it.
I just fell recently and did not break a bone, I attribute that to my bone medicine

@cmael and @ssapp1, you may also be interested in follow this group about osteoporosis on Mayo Clinic Connect.
- Osteoporosis & Bone Health https://connect.mayoclinic.org/group/osteoporosis/

And more specifically related to transplant and bone health, see this discussion in the Transplants group:
- Bone Health After Transplant https://connect.mayoclinic.org/discussion/bone-health-after-transplant/

Thank you Colleen

Thanks so much!!

Hi,
I also was very active b/f my LT. My TP team would always remind me that I have had a MAJOR surgery and my body is going to take time to heal. So your body is telling u that it’s not ready to be where u were pre TP. I am almost 2yrs LT and I am now back to exercising my pre LT and more. Some days my body will tell me u need to slow down take a day off. So in short try and be patient, listen to your body and I bet in no time u will be back to where u were and more.
Hang in there!!!

Thank you “myfablife”. To know that I’m not alone is helpful. Did it take 2 years to get back to normal? Or did you feel more normal sooner? I will try to be patient. Any tips or advice are appreciated.

Hi sparked,
I would say a little over a year I was feeling must stronger and could do my work out and not feel totally exhausted like I did early on. I am almost 2yrs. out and feel really good, I am very fortunate that I was in very good health b/f LTP with no underlying medical conditions except my liver. The only meds I take is immunosuppressants “yuk” but we have to to stay alive. If I do take anything I try to research the natural b/f the medical meds. I hate putting things into my body. This of course my choice😊 so u r still early in your TP not sure what u have to take but when they start decreasing your immuno meds it helps.
Stay strong and positive, u got this!!😊🦋