Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for bcool123 @bcool123

lindasue, would you please explain what NAC is? Dosage, brand and frequency… for my peripheral neuropathy. Appreciate it, Bcool123

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I started getting fasciculations all over after dose 2. I won't get a booster. And I know it has neurological effects, because the second dose stopped my internal tremors for 2 days.

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Profile picture for bybee @bybee

My experience with neuropathy began two weeks after I’m received my Pfizer Covid booster on 10/5/2021. From that time on I have become increasingly miserable and am so severely affected by the heat and sun that I have to take ice packs with me if I think I am going to be exposed to these triggers. I have not been helped by a neurologist, an infectious disease physician, or a pain specialist. Needless to say, this continues to not only greatly impact my quality of life, but continues to severely limit what I can do with my family and friends.

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I am in the same situation. I was a healthy 54 year old. I got moderna shot on march 18 2021 with in a week started developing neuropathy and just turned into a mess. I am now at northwestern trying to figure it out. I just wonder how many other people are struggling like us

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Same situation here too. Was a healthy 58 year old male, other than spinal injuries from an accident but would (and still try to) go to the gym weight lifting and exercising daily. Got my second Moderna shot in November 2021 and within two weeks started developing severe muscle pain in my upper back, neck, shoulders and arms and burning and neuropathy in both hands. Had blood work done which showed CRP was dangerously high so with other testing done dr determined I now have an autoimmune disease (not sure what kind at this point) but had to go on high doses of prednisone and methotrexate. Haven’t been the same since, oh and I never got Covid until this year likely because my immune system is compromised from having to take these drugs. Wish I never got vaccinated and will never get another one.

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I had neuropathy in hands, feet and lower legs long before COVID. I had the 2 initial shots using Moderna and two booster shots using Pfiser and they did not affect my neuropathy.

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Update: Received the flu shot yesterday and call me crazy , but my neurologist ok'd the Omicron booster so I did a walk in clinic and received it. So far so good, lol, no changes in any of my symptoms. So, we'll see. I'll keep you all update.

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If there is a moderator for this forum, I hope the moderator will step in and review these comments. Individual experiences are not evidence of anything. It is more likely that these are temporal coincidences as anything related to a vaccine. Not to say that there aren't reactions to vaccines. There are. But there are also temporal coincidences and they are far more common than vaccine reactions.

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Profile picture for dgneal13 @dgneal13

I am in the same situation. I was a healthy 54 year old. I got moderna shot on march 18 2021 with in a week started developing neuropathy and just turned into a mess. I am now at northwestern trying to figure it out. I just wonder how many other people are struggling like us

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That's great you are being evaluated at Northwestern. Please share the guidance they provide. There is an outstanding doctor there who is researching long Covid. The vaccine injuries resemble long COVID. Both are likely a toxic response to the spike protein. I developed sensory and motor peripheral neuropathy. My neurological symptoms began within 2 weeks of the first Pfizer vaccine. Previously, I was in excellent health.

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Profile picture for dgneal13 @dgneal13

I am in the same situation. I was a healthy 54 year old. I got moderna shot on march 18 2021 with in a week started developing neuropathy and just turned into a mess. I am now at northwestern trying to figure it out. I just wonder how many other people are struggling like us

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Same thing happened to me with pheizer shot and booster intensified even worse

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Profile picture for cids @cids

If there is a moderator for this forum, I hope the moderator will step in and review these comments. Individual experiences are not evidence of anything. It is more likely that these are temporal coincidences as anything related to a vaccine. Not to say that there aren't reactions to vaccines. There are. But there are also temporal coincidences and they are far more common than vaccine reactions.

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@cids, great point. Sharing personal experiences is permitted on the forum. You're correct, however, that anecdotal evidence is the experience or observations of one person and is not a replacement for empirical evidence. Empirical evidence consists of observations collected systematically by researchers as part of a research study.

For this reason, you will see the moderators, and increasingly members, recommending that people report their suspected side effects to the Vaccine Adverse Event Reporting System (VAERS). https://vaers.hhs.gov/ Through the collection of patient reported outcomes, researchers can study whether effects are temporal coincidences or not.

As outlined in the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/) any post that is not a personal experience and states information as fact or makes a claim that is not properly referenced may be removed. Members are encouraged to report posts that contain misinformation.

I'd advise all members to keep in mind that forums like this one where members share their personal experiences can create a biased observation. It is not to be assumed that the majority of patients taking osteoporosis medication experience side effects or that most people don't recover range of motion after a total knee replacement or that everyone gets neuropathy from vaccines. People who don't experience adverse events tend not to participate in forums because they are not looking for support and solutions.

I also hope that members who did not experience side effects from the vaccine or whose neuropathic symptoms have since resolved will return to share on the forum.

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