Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for lindasue716 @lindasue716

Yes, please stay in touch. I would certainly recommend the supplements I am taking as I’ve had much improvement since taking them regularly. Epson salt baths are nothing short of amazing, albeit short lived. I would love to hear how you are doing. Nice to meet you.❤️

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I'm jumping in on this conversation because my situation is also quite similar! I'm a professional musician so the neuropathy is limiting and debilitating to my livelihood. I also had good luck with epsom salt baths and certain vitamins that my chiropractor recommended, including one that is called "receptor detox". I more recently started seeing an acupuncture person who has studied classical chinese medicine and the herbs he has given me have been nothing short of a miracle. I went from my muscles feeling like beef jerky (tight, brittle, dry, spasming) to almost normal in just a matter of 2 weeks. I felt my anxiety downshift, as well. I'm sleeping better and feel much more like my energetic self. My acupuncture person said he is treating many people with covid or vaccine symptoms.....and we all have very similar issues. I think the more folks that get boosted, the more this will come to light. Best of luck to all on this site. I'm grateful for the conversation and for the support!

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Profile picture for lindasue716 @lindasue716

Yes, please stay in touch. I would certainly recommend the supplements I am taking as I’ve had much improvement since taking them regularly. Epson salt baths are nothing short of amazing, albeit short lived. I would love to hear how you are doing. Nice to meet you.❤️

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Nice to meet you too! I will keep you updated. I have the flu vaccine scheduled for the end of the week.

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Profile picture for jgerth @jgerth

I'm jumping in on this conversation because my situation is also quite similar! I'm a professional musician so the neuropathy is limiting and debilitating to my livelihood. I also had good luck with epsom salt baths and certain vitamins that my chiropractor recommended, including one that is called "receptor detox". I more recently started seeing an acupuncture person who has studied classical chinese medicine and the herbs he has given me have been nothing short of a miracle. I went from my muscles feeling like beef jerky (tight, brittle, dry, spasming) to almost normal in just a matter of 2 weeks. I felt my anxiety downshift, as well. I'm sleeping better and feel much more like my energetic self. My acupuncture person said he is treating many people with covid or vaccine symptoms.....and we all have very similar issues. I think the more folks that get boosted, the more this will come to light. Best of luck to all on this site. I'm grateful for the conversation and for the support!

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I think acupuncture and Chinese herbs would be very helpful, also the epsom salt baths. I think that there are certain triggers that set the immune system into overdrive, and the covid spike protein is one of them. I am trying everything to get mine to settle down, and hoping that I am not crazy to get the flu shot this week. I will keep you all updated. Best wishes!

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Profile picture for lindasue716 @lindasue716

Selene… so sorry for all you are going through. your story matches mine. I had perfect health till second Moderna shot, and developed paresthesia on left side of body… face down to feet. Occasionally right side. Sometimes the areas of paresthesia would shift. The sensations would also vary
… hot, cold, prickly, tight etc very but there was no pain associated nor weakness. Like you, I saw two Neurologists Who attributed it to an over active nervous system and only getting 5-6 hours of sleep. Neither one would say it was attributed to the vaccine. You were lucky in this way. I started making sleep a priority. No improvement. I have minimal stress in life, good life I’d say. But one doc get saying it was stress induced.
for me, it will be two years in February. I am so used to the symptoms now that they hardly bother me, unless they spike in intensity. The intensity and duration of symptoms may still cause some anxiety responses when strong. However, they are much better in frequency than they were and typically mild now. I might even go a whole week now and feel no symptoms, or those easy to ignore.

The improvement started when I started supplementing with lions mane, NAC and alpha lipoid acid daily. 🤷🏼‍♀️ I have no idea what is going on here! Good luck to you.

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lindasue, would you please explain what NAC is? Dosage, brand and frequency… for my peripheral neuropathy. Appreciate it, Bcool123

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My experience with neuropathy began two weeks after I’m received my Pfizer Covid booster on 10/5/2021. From that time on I have become increasingly miserable and am so severely affected by the heat and sun that I have to take ice packs with me if I think I am going to be exposed to these triggers. I have not been helped by a neurologist, an infectious disease physician, or a pain specialist. Needless to say, this continues to not only greatly impact my quality of life, but continues to severely limit what I can do with my family and friends.

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Profile picture for bybee @bybee

My experience with neuropathy began two weeks after I’m received my Pfizer Covid booster on 10/5/2021. From that time on I have become increasingly miserable and am so severely affected by the heat and sun that I have to take ice packs with me if I think I am going to be exposed to these triggers. I have not been helped by a neurologist, an infectious disease physician, or a pain specialist. Needless to say, this continues to not only greatly impact my quality of life, but continues to severely limit what I can do with my family and friends.

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Hi bybee,

Could you tell me what symptoms you have when you encounter heat or the sun? I have developed hyperhidrosis (excessive sweating) and wondered if there was a link with the vaccines.

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Profile picture for ruf2 @ruf2

Hi bybee,

Could you tell me what symptoms you have when you encounter heat or the sun? I have developed hyperhidrosis (excessive sweating) and wondered if there was a link with the vaccines.

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My sensations are like electrical shocks/multiple bee or wasp stings. Ice packs help, otherwise there is no relief. Once the sensations get a grasp, they can go on for several days.

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Profile picture for selene53 @selene53

First, let me say that I am an RN, 100% pro vax. However, hours after receiving my 4th booster in 1/2022, I began experiencing paresthesias in my feet, legs and hands that continue to this day. I have seen many doctors, including a research neurologist at a large teaching hospital (not Mayo) who all believe that this is a reaction to the spike protein in the mRNA vaccine. To be clear, this doctor told me that she is seeing plenty of patients post covid infection who are also experiencing this sort of neurological reaction. Current thought is that some sort of auto immune issue has been triggered, although all tests, and I mean a million of them, have come back negative for any disease. They just don't know what is going on. It's extremely frustrating but the only solution seems to go back in time and not get the 4th booster. Although, then maybe I would have gotten covid and be in the same boat I am in now. And we can't just hold the mRNA vaccines responsible, because all the covid vaccinations have some form or another of the spike protein.

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I have had 2 Pfizer and 1 booster, I got Covid, was hospitalized, and have done LOTS of
research and read a lot about vaccines in general, the Moderna, all vaccines, and I will not
have another shot of any vaccine.

Foreign items, visible on microscopes found in the Moderna, sudden deaths of adults, and younger people, on and on. Long, weird cysts, looks like seaweed or little snakes. No thank you.

Great documentary called Under the Skin about vaccines going back quite a few years. Just too scary for me. I will be 80 in a couple of months, and I cannot walk or stand or get to my wheelchair on my own, anymore. So I rarely see anyone, except caregivers.

Do a lot of research before making your decision. I already had bad neuropathy, not sure if it got worse or not. Good luck.

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Profile picture for aquamarine4220 @aquamarine4220

I have had 2 Pfizer and 1 booster, I got Covid, was hospitalized, and have done LOTS of
research and read a lot about vaccines in general, the Moderna, all vaccines, and I will not
have another shot of any vaccine.

Foreign items, visible on microscopes found in the Moderna, sudden deaths of adults, and younger people, on and on. Long, weird cysts, looks like seaweed or little snakes. No thank you.

Great documentary called Under the Skin about vaccines going back quite a few years. Just too scary for me. I will be 80 in a couple of months, and I cannot walk or stand or get to my wheelchair on my own, anymore. So I rarely see anyone, except caregivers.

Do a lot of research before making your decision. I already had bad neuropathy, not sure if it got worse or not. Good luck.

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I will not have another booster, and I so wish I hadn’t had the first one (10/5/2021 as I have had severe stinging starting 2 weeks later.

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