I noticed your post. I had sarcoidosis nodules removed from my lungs many years ago. Nothing more was said about it till recently. I had Lyme disease and have had dizziness and other problems for about two years. The neurologist is thinking the Lyme and sarcoidosis might be the cause of my problems. I have to have a spinal tap. I have been reading about neurosarcoidosis. I have a lot of pain in my neck and back of my head but it doesn't feel electric. I am interested to know more about your situation. I wish you well.
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
I try to stay away from red meat, unhealthy fats like margarine, sweets and wheat. I have also switched to nitrate free bacon when I indulge.
I am interested in good source info on antiinflammatory diets, herbs, teas etc. I'm sick of taking pills for everything. I'd like to help my body help itself.
neuro sarcoidosis and feel electric in head
I noticed your post. I had sarcoidosis nodules removed from my lungs many years ago. Nothing more was said about it till recently. I had Lyme disease and have had dizziness and other problems for about two years. The neurologist is thinking the Lyme and sarcoidosis might be the cause of my problems. I have to have a spinal tap. I have been reading about neurosarcoidosis. I have a lot of pain in my neck and back of my head but it doesn't feel electric. I am interested to know more about your situation. I wish you well.
I'm currently being tested for it. What were your symptoms.
What tests are done for this?
Hello, @stoughtenger - welcome to Mayo Clinic Connect. Here is some general information about sarcoidosis from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/sarcoidosis/symptoms-causes/syc-20350358.
Also, the National Institutes of Health has this information on research being done for neurosarcoidosis https://www.ninds.nih.gov/Disorders/All-Disorders/Neurosarcoidosis-Information-Page
Is this a diagnosis your doctor is considering for you?
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
Typo. I have neurosarcoidosis
Hi @dcgirl, a belated welcome to Mayo Clinic Connect. according to this article, you are eating the right things.
- Best Diet for Sarcoidosis https://www.sonashomehealth.com/best-diet-for-sarcoidosis/
What foods do you avoid?
I try to stay away from red meat, unhealthy fats like margarine, sweets and wheat. I have also switched to nitrate free bacon when I indulge.
I am interested in good source info on antiinflammatory diets, herbs, teas etc. I'm sick of taking pills for everything. I'd like to help my body help itself.
@dcgirl I do a lot of teas myself I found Yogi brand is a good brand You can go online and research Yogi teas .com Twinnings and Bigelow also