I noticed your post. I had sarcoidosis nodules removed from my lungs many years ago. Nothing more was said about it till recently. I had Lyme disease and have had dizziness and other problems for about two years. The neurologist is thinking the Lyme and sarcoidosis might be the cause of my problems. I have to have a spinal tap. I have been reading about neurosarcoidosis. I have a lot of pain in my neck and back of my head but it doesn't feel electric. I am interested to know more about your situation. I wish you well.
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
I try to stay away from red meat, unhealthy fats like margarine, sweets and wheat. I have also switched to nitrate free bacon when I indulge.
I am interested in good source info on antiinflammatory diets, herbs, teas etc. I'm sick of taking pills for everything. I'd like to help my body help itself.
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neuro sarcoidosis and feel electric in head
I noticed your post. I had sarcoidosis nodules removed from my lungs many years ago. Nothing more was said about it till recently. I had Lyme disease and have had dizziness and other problems for about two years. The neurologist is thinking the Lyme and sarcoidosis might be the cause of my problems. I have to have a spinal tap. I have been reading about neurosarcoidosis. I have a lot of pain in my neck and back of my head but it doesn't feel electric. I am interested to know more about your situation. I wish you well.
I'm currently being tested for it. What were your symptoms.
What tests are done for this?
Hello, @stoughtenger - welcome to Mayo Clinic Connect. Here is some general information about sarcoidosis from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/sarcoidosis/symptoms-causes/syc-20350358.
Also, the National Institutes of Health has this information on research being done for neurosarcoidosis https://www.ninds.nih.gov/Disorders/All-Disorders/Neurosarcoidosis-Information-Page
Is this a diagnosis your doctor is considering for you?
Is this board still active? If so, i am looking for good nutritional recommendations to help with neurosurgical. I was diagnosed 11 years ago and was on steroids for about 9 years. I am on methotrexate now. I want to eat to support my condition. I already do salmon, lots of veggies and fruit. Looking for other nutritional info.
Typo. I have neurosarcoidosis
Hi @dcgirl, a belated welcome to Mayo Clinic Connect. according to this article, you are eating the right things.
- Best Diet for Sarcoidosis https://www.sonashomehealth.com/best-diet-for-sarcoidosis/
What foods do you avoid?
I try to stay away from red meat, unhealthy fats like margarine, sweets and wheat. I have also switched to nitrate free bacon when I indulge.
I am interested in good source info on antiinflammatory diets, herbs, teas etc. I'm sick of taking pills for everything. I'd like to help my body help itself.
@dcgirl I do a lot of teas myself I found Yogi brand is a good brand You can go online and research Yogi teas .com Twinnings and Bigelow also