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Oral lichen Planus: What home remedies or medications help you?

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

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steveandsteph | @steveandsteph | Sep 11, 2022
In reply to @steveandsteph "I've had what we think is oral lichen planus for 5 months. Just got biopsy today..." + (show)
@steveandsteph

I've had what we think is oral lichen planus for 5 months. Just got biopsy today to confirm.

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Hello…. I sure hope you get a diagnosis and can move on to improved health. This has scared me to death and I’m really tired of waiting on correct diagnosis!!

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artist01 | @artist01 | Sep 12, 2022
In reply to @steveandsteph "Laurie, You have had too much time without proper diagnosis…. How horrible:( I feel really bad..." + (show)
@steveandsteph

Laurie,
You have had too much time without proper diagnosis…. How horrible:( I feel really bad for you. I had biopsy and it takes 2 weeks to get patho and histology so I get results this Thursday and will let you know. Mine was sent to Florida University Oral Path lab… supposedly excellent but I’m very untrusting with this mouth mess so I’m having one done at UMKC at the recommendation of doc friend who was misdiagnosed with leukoplakia. Sometimes I think they just don’t know or can be wrong:(

On another note… I had zero pain after my biopsy that was done on my gums. He pulled six pieces and I was fine so think you will be good:)))
Best wishes, Thais really is tiring and scary for you… I know too well.
I’m a nurse so I recommend one thing … get your Shingles vax as when you talked steroids, they hurt your immune system and ya sure don’t want to add insult of shingles.

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@steveandsteph Thanks so much for your response! It's certainly a real bonus that you had no pain with your biopsies but mine might be on my tongue and inner lips, where all the problem is, would they not? I'm very immunocompromised due to 4 or 5 other autoimmune conditions (GCA, Crohns, etc.) so, unfortunately, I've been advised not to have the shingles vax. I wish I could though.
I hope you'll get convincing results from your biopsies! It's such an awful affliction we've got. Warmest wishes, Laurie

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1 reply
steveandsteph | @steveandsteph | Sep 12, 2022
In reply to @artist01 "@steveandsteph Thanks so much for your response! It's certainly a real bonus that you had no..." + (show)
@artist01

@steveandsteph Thanks so much for your response! It's certainly a real bonus that you had no pain with your biopsies but mine might be on my tongue and inner lips, where all the problem is, would they not? I'm very immunocompromised due to 4 or 5 other autoimmune conditions (GCA, Crohns, etc.) so, unfortunately, I've been advised not to have the shingles vax. I wish I could though.
I hope you'll get convincing results from your biopsies! It's such an awful affliction we've got. Warmest wishes, Laurie

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Hi Laurie! I'm Stephanie btw. Could not get my name in there somehow. i think the inner lip will be okay but not sure about tongue. I still think you will be okay as mouth tissue heals really quickly.
Hate to hear about all your immunocompromise, really frustrating. I sure hope you don't get shingles, got enough going on.
I am looking into boosting my immune system as this OLP seems to be a real puzzle even for the "experts". I think much of this is related to allergies and immunity.
Yes, it's an awful affliction. Take care of yourself best you can:)

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1 reply
artist01 | @artist01 | Sep 12, 2022
In reply to @loribmt "@artist01 and @rashida, I’ve found another toothpaste that I like. Burt’s Bees for Kids has worked..." + (show)
@loribmt

@artist01 and @rashida, I’ve found another toothpaste that I like. Burt’s Bees for Kids has worked the best for me so far and doesn’t irritate my mouth…no mint, at least in the Strawberry splash which is my favorite. The Crest Kid’s toothpaste tastes ok, with no irritation but it doesn’t leave my mouth feeling very clean or fresh. Have you tried Burt’s Bees Kids?

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@loribmt Hi Lori. Thankyou for your suggestion with regard to non-irritating toothpastes. I'm still having sooo much distress with my yet undiagnosed mouth condition and, as posted earlier, I've finally got a "consultation appointment" with an oral surgeon two hours away for October 19th. I've tried to talk them into doing the biopsies the same day because my transportation cost is $95 each way, the initial consult fee is $180 (not covered, and no Seniors' discount) and the fee for the biopsies will be a minimum of $300 (again not covered, and no Seniors' discount). I guess I'm whining, but Sheesh!
I'll certainly get the Burt's Bees toothpaste for Kids . I've used other Burt's Bees products and they're great.
To leave this on a good note, I'm very happeeee at my new location in the Southern Okanagan area of BC, Canada!! 😊
Warmest regards, and thankyou for your caring and sensitive mentoring. Laurie

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artist01 | @artist01 | Sep 12, 2022
In reply to @steveandsteph "Hi Laurie! I'm Stephanie btw. Could not get my name in there somehow. i think the..." + (show)
@steveandsteph

Hi Laurie! I'm Stephanie btw. Could not get my name in there somehow. i think the inner lip will be okay but not sure about tongue. I still think you will be okay as mouth tissue heals really quickly.
Hate to hear about all your immunocompromise, really frustrating. I sure hope you don't get shingles, got enough going on.
I am looking into boosting my immune system as this OLP seems to be a real puzzle even for the "experts". I think much of this is related to allergies and immunity.
Yes, it's an awful affliction. Take care of yourself best you can:)

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@steveandsteph Hi Stephanie! I almost typed your name in on my last post, guessing ... because you're a nurse... but I know there are lots of good men in the nursing profession too, so I didn't. Lol.
Thanks for your reassurance too. I know from this present affliction that my tongue is very slowww to heal, maybe because I'm immunocompromised. Difficult to eat, drink, talk ...well, you know. X0 😊 Laurie

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aurport005 | @aurport005 | Sep 13, 2022
In reply to @artist01 "@steveandsteph Hi Steve and Steph. I've had painful lesions since 2020 with 2 or 3 diagnoses,..." + (show)
@artist01

@steveandsteph
Hi Steve and Steph. I've had painful lesions since 2020 with 2 or 3 diagnoses, 5 or 6 prescription meds, 4 or 5 doctors, and no definite diagnosis. One of the most eminent doctors thinks it is NOT Oral Lichen Planus. I've recently been confirmed by testing and diagnosed as having IBD, with very high inflammation markers. I know that UC and Crohns can have this symptom and have suggested it several times to my doctors. I finally have a long-requested appointment with an oral surgeon for a biopsy on October 19th!
I'd be grateful if you could tell me if you have the result of your biopsy yet. Also, were you laid up afterward with pain and not too able to eat, talk, etc. for a while?
I had a traumatic experience years ago with a tongue biopsy that ended up with hospitalization that night from excessive bleeding and blood transfusions. Very painful for a few weeks afterward. Needless to say, I'm a bit nervous for this new biopsy procedure. Lol.
Warm regards, Laurie

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I had a biopsy on both sides of me tongue done by my oral surgeon and was diagnosed with Lichens Planus. I did some research and it showed that you can have steroid injections directly injected into the ulcers. The oral surgeon did so and my ulcers on my tongue have cleared up.

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1 reply
artist01 | @artist01 | Sep 13, 2022
In reply to @aurport005 "I had a biopsy on both sides of me tongue done by my oral surgeon and..." + (show)
@aurport005

I had a biopsy on both sides of me tongue done by my oral surgeon and was diagnosed with Lichens Planus. I did some research and it showed that you can have steroid injections directly injected into the ulcers. The oral surgeon did so and my ulcers on my tongue have cleared up.

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@aurport005 Thanks so much for your encouraging message! Were the biopsies painful for a while afterward, for eating, talking, etc.
?

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1 reply
aurport005 | @aurport005 | Sep 13, 2022
In reply to @artist01 "@aurport005 Thanks so much for your encouraging message! Were the biopsies painful for a while afterward,..." + (show)
@artist01

@aurport005 Thanks so much for your encouraging message! Were the biopsies painful for a while afterward, for eating, talking, etc.
?

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Yes, the incisions were painful for about 4 to 5 days max. I ate soft foods. The surgeon gave me pain medication while they healed up. The mouth heals pretty quick compared to other areas of the body.

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1 reply
artist01 | @artist01 | Sep 13, 2022
In reply to @aurport005 "Yes, the incisions were painful for about 4 to 5 days max. I ate soft foods...." + (show)
@aurport005

Yes, the incisions were painful for about 4 to 5 days max. I ate soft foods. The surgeon gave me pain medication while they healed up. The mouth heals pretty quick compared to other areas of the body.

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@aurport005
Thanks again for your rapid reply and helpful information. Good to know what to expect!

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1 reply
aurport005 | @aurport005 | Sep 13, 2022
In reply to @artist01 "@aurport005 Thanks again for your rapid reply and helpful information. Good to know what to expect!" + (show)
@artist01

@aurport005
Thanks again for your rapid reply and helpful information. Good to know what to expect!

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Happy to help😊

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