MGUS: Please, let me know I not alone

Justin, I just received my itinerary...they have scheduled me to see my oncologist nurse, instead of the dr. I'll go along, since it's just bloodwork. ( I wanted to switch drs) If anything spiked, I feel to find another oncologist. I also emailed them about this nurse accepting my insurance, since, she was taken out of network during my last visit . Took me 6 mos to battle. I now was told to contact billing to inquire whether Mayo covers this visit with her. I'm in a rough place as we speak, losing a beloved dog in Feb. and now, shockingly, a few weeks later, my best boy Maverick, (silver Lab)with bone cancer. SO STRANGE, I'M HERE FOR CANCER, NOW MY DOGS HAVE IT??? So ill make my calls when I can . I'm beside myself. One moment, at a time here. Just wanted you to know, since you took time out for asking. Thank you for asking...Linda

Justin, I just received my itinerary...they have scheduled me to see my oncologist nurse, instead of the dr. I'll go along, since it's just bloodwork. ( I wanted to switch drs) If anything spiked, I feel to find another oncologist. I also emailed them about this nurse accepting my insurance, since, she was taken out of network during my last visit . Took me 6 mos to battle. I now was told to contact billing to inquire whether Mayo covers this visit with her. I'm in a rough place as we speak, losing a beloved dog in Feb. and now, shockingly, a few weeks later, my best boy Maverick, (silver Lab)with bone cancer. SO STRANGE, I'M HERE FOR CANCER, NOW MY DOGS HAVE IT??? So ill make my calls when I can . I'm beside myself. One moment, at a time here. Just wanted you to know, since you took time out for asking. Thank you for asking...Linda

Justin, I just received my itinerary...they have scheduled me to see my oncologist nurse, instead of the dr. I'll go along, since it's just bloodwork. ( I wanted to switch drs) If anything spiked, I feel to find another oncologist. I also emailed them about this nurse accepting my insurance, since, she was taken out of network during my last visit . Took me 6 mos to battle. I now was told to contact billing to inquire whether Mayo covers this visit with her. I'm in a rough place as we speak, losing a beloved dog in Feb. and now, shockingly, a few weeks later, my best boy Maverick, (silver Lab)with bone cancer. SO STRANGE, I'M HERE FOR CANCER, NOW MY DOGS HAVE IT??? So ill make my calls when I can . I'm beside myself. One moment, at a time here. Just wanted you to know, since you took time out for asking. Thank you for asking...Linda

Hi,
Is there anyone out there that can help me get some insight into the disease. My father was just diagnosed monoclonal gammopathy, and i've read some literature, but I want to talk to someone who has actually had a loved one go through the same thing. The doctors are not offering any treatments for him, because of his diabetes, and renal failure. He also has a clotting disorder. The doctors also told us that they do not recommend him for chemo with all of his other health issues.

@bonnicanby I have lambda IGG MGUS and Small Fiber Neuropathy

I am now in year 3 of treatment, and in remission. Hope reigns because of the continual options for care. Keep asking questions, pay attention to all good opportunities, and be kind to yourself. You can do this.

I was diagnosed with MGUS a year ago. I had insisted on a new nephrologist due to clinic practice issues. I am also a kidney patient, at stage 3b. My new Dr saw lab work that indicated problems, and sent me to the hematologist oncologist. After scans, more bloodwork and bone marrow biopsy, I am now being monitored for MGUS, and was most recently at 5%. I am eternally grateful for my new kidney Dr, as she told me the labs showed this should have been addressed earlier. We chalk it up to my old HMO just not wanting to address actual problems.
Ginger

I was diagnosed with mgus in 2003. I saw a Dr in hematology but since see an oncologist. It really isn't that much of a time bomb. I have to go to the cancer clinic twice yearly to have labs done, then a week later to see the doctor. In all these years there hasn't been any problems, I have smoldering mgus. The labs results are 3 areas and are a graph. The only problem was I got anemia which was a shock because I didn't know it. I had to have an iron infusion, and the Dr thought I would need that every 6 months, but 3 years later my iron is always checked and no problems. Of all the time bombs in medicine believe me don't get scared.