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bonnie canby (@bonniecanby)

MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: 5 days ago | Replies (120)

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@gingerw

I was diagnosed with MGUS a year ago. I had insisted on a new nephrologist due to clinic practice issues. I am also a kidney patient, at stage 3b. My new Dr saw lab work that indicated problems, and sent me to the hematologist oncologist. After scans, more bloodwork and bone marrow biopsy, I am now being monitored for MGUS, and was most recently at 5%. I am eternally grateful for my new kidney Dr, as she told me the labs showed this should have been addressed earlier. We chalk it up to my old HMO just not wanting to address actual problems.
Ginger

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Stay alert, and keep being your own best and informed advocate. And in between, enjoy a good life of your own making.