Neuropathy Pain at Night: What helps?

Posted by Donald @donfeld, Jun 8, 2020

THC or marijuana for me relieves pain from neuropathy. It works every time takes a few minutes and a few puffs of smoke and it comes it down for some crazy reason that makes this drug so popular.

Interested in more discussions like this? Go to the Neuropathy Support Group.

I found over the last few weeks that taking one gabapentin together with my duloxitine in the mid morning helps me get through the day. But by early evening the legs are just not good again.

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@mleaf

Has anyone tried Metanx a supplement for neuropathy that is folic acid, B vitamins. Medicare won’t pay as it’s a supplemental. Cheapest I could find was $90 for 90 days. Walgreens was $122. Haven’t received or taken it yet. Wondering if anyone else has?

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It helped me when prescribed by a podiatrist. The problem for me was the price, as insurance would not cover. Wish I could afford to take it. It did seem to lessen the painful symptoms and had no side effects for me.

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@artist01

@johnbishop . Hi John. I also sleep in my recliner every night, and have done so for four years due to a brainstem AVM and vertigo. I find that lying flat in a bed makes my vertigo much worse, somewhat the same feeling as having a wee bit too much vino,
'way back in the good old days.
My Lay-Z-Boy chair is my best friend these days! Warmest wishes,
Laurie

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@artist01 Recliners can be really helpful when you can't sleep in a regular bed. We finally broke down a couple of years ago and bought an adjustable bed and I have the head slightly elevated all the time.

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@mugs24cancer

I just participated in a 4 week research study at Mayo in Rochester to see if CBD cream lessened neuropathy. I used a CBD cream for 2 weeks and a placebo cream for 2 weeks. Did not know which cream I had which 2 weeks until the end of the study. Happy to say the CBD cream did work for me! Directions were to apply it morning and evening. Now that I have ordered some I find I can apply it once a day and it helps.

Most days neuropathy in hands is so that I can now feel to button clothes and put on jewelry. The tingling in my feet is also lessened. I think sometime arthritis gets in the way.

The cream that was used in the study and that I ordered is CBD Relief Cream from https://nightingale-remedies.com/cbd_cream.php

Data is still being collected so results of research study have not been published. We all react differently to different treatments but just wanted to share this part of my journey.

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Hi Mugs,
I am a long time victim/complainer/seeker of some kind of foot pain relief. The best is CBD/THC cream. I use it morning and night...once in a while during the day as well. I am in PA and get mine through a Dispensary. Not cheap, but works the best yet. I will be using it on my hands as the weather changes. Yes, I agree with you that arthritis is mixed in with the PN. Sometimes it is hard to determine what's what!! I would love the see the final results of the study at Mayo! Hats off to you for going through that.

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@johnbishop

@artist01 Recliners can be really helpful when you can't sleep in a regular bed. We finally broke down a couple of years ago and bought an adjustable bed and I have the head slightly elevated all the time.

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@johnbishop
I agree, John. Those adjustable beds are the answer for many. I bought a very expensive one several years ago but it didn't work well for my problem so I finally bought the Lay-Z-Boy recliner, with it's several optional positions. Love it!

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@colleenyoung

Welcome @emilyandersontarr. So many members talk about their neuropathy starting or being at its worst in the evening or during the night. I moved your post to this existing discussion:
- Neuropathy Pain at Night: What helps?: https://connect.mayoclinic.org/discussion/night-pain-2/

I did this so you can read past posts and easily connect with other members, like @artist01 @bonniethompson1234 and more.

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I finally got my medical Canibas Licence. Definitely helps you sleep at night. I recommend vapes so you don’t have the smell to deal with.

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@emilyandersontarr

What’s the best medication for neuropathy that starts at night with feet and legs?

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I will keep this short and sweet the ONLY thing that helps me at night and during the day for that matter is good old oxycodone!! Unfortunately when I moved to Georgia from Arizona 5 years ago I lost my Dr. for 20 years. When I got to this godforsaken state. I found out quick that every PCP in Georgia was afraid of prescribing any thing that was a NARCOTIC. So everybody is has to find a “pain specialist”. I’ve been on the same dose for 3 years, I guess they never heard of or understand the meaning of tolerance!! I get 10% of what I received in Arizona. To bad the CDC and the FDA stuck there nose in where it didn’t belong. They already admitted they were wrong on trying to limit opioid prescriptions, but nothing is being done. I’m 67 I don’t want to live like this in pain morning to night. So if you find a good Dr. good luck. If I sound bitter that’s because I am!!

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@fala

Hi Mugs,
I am a long time victim/complainer/seeker of some kind of foot pain relief. The best is CBD/THC cream. I use it morning and night...once in a while during the day as well. I am in PA and get mine through a Dispensary. Not cheap, but works the best yet. I will be using it on my hands as the weather changes. Yes, I agree with you that arthritis is mixed in with the PN. Sometimes it is hard to determine what's what!! I would love the see the final results of the study at Mayo! Hats off to you for going through that.

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You mention you’ll use it as weather changes - is this because hands get drier, or does it help with “cold” hand feelings?
Thanks @mugs24cancer , I too am interested in the research results. I try to put things in perspective and not have pity parties, but I almost cried when I could not get pierced earrings on for a special wedding this summer. I tried for 20 minutes before giving up; my husband is a dear, but he is squeamish on doing earrings, so I didn’t push. I had anticipated the hardship in advance, and the day before had gone to a large well-known store thinking they’d have one pair of clip-in’s I could buy. They had ZERO, so I was out of luck. I asked the clerk if there were any to be found. I’m guessing she was about 45 years old. She said she had no idea where anyone could find clip-ons, that her grandmother was “old-fashioned too” and she couldn’t find them anywhere. I am 57, so I felt like I got kicked while already down.
Oh well, my fault for shopping the day before and not planning ahead so I could have bought online in advance, but I love the thought of this cream helping to do life necessities like buttons, shoestrings, and snaps, plus a little pampering activities like putting on eye makeup without stabbing my eye and indulging in jewelry 😊. Keep us posted on results!

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@deke4fun

I will keep this short and sweet the ONLY thing that helps me at night and during the day for that matter is good old oxycodone!! Unfortunately when I moved to Georgia from Arizona 5 years ago I lost my Dr. for 20 years. When I got to this godforsaken state. I found out quick that every PCP in Georgia was afraid of prescribing any thing that was a NARCOTIC. So everybody is has to find a “pain specialist”. I’ve been on the same dose for 3 years, I guess they never heard of or understand the meaning of tolerance!! I get 10% of what I received in Arizona. To bad the CDC and the FDA stuck there nose in where it didn’t belong. They already admitted they were wrong on trying to limit opioid prescriptions, but nothing is being done. I’m 67 I don’t want to live like this in pain morning to night. So if you find a good Dr. good luck. If I sound bitter that’s because I am!!

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Try THC gummy’s at night. Also Kratom helped me a ton when my poor Dr stopped my fentanyl cold Turkey after 5 year on it. Same reason you had. One of my doctors recommended Kratom for pain. Now that I’ve tried it, I will never be off it because more of the time you won’t need narcotics. Give it a try.

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@deke4fun

I will keep this short and sweet the ONLY thing that helps me at night and during the day for that matter is good old oxycodone!! Unfortunately when I moved to Georgia from Arizona 5 years ago I lost my Dr. for 20 years. When I got to this godforsaken state. I found out quick that every PCP in Georgia was afraid of prescribing any thing that was a NARCOTIC. So everybody is has to find a “pain specialist”. I’ve been on the same dose for 3 years, I guess they never heard of or understand the meaning of tolerance!! I get 10% of what I received in Arizona. To bad the CDC and the FDA stuck there nose in where it didn’t belong. They already admitted they were wrong on trying to limit opioid prescriptions, but nothing is being done. I’m 67 I don’t want to live like this in pain morning to night. So if you find a good Dr. good luck. If I sound bitter that’s because I am!!

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A very knowledgeable Pharmacist recommended Hydromorphone Compound cream many years ago. I put a little on my wrists, yes the wrists, and I don't have the awful neuropathy pain as soon as I went to bed. He explained that we have dermatomes for different areas of our body so there is where the compound is placed. He also made a combination for my L5-L4 pain that took it away. I had to rub it into the area where you would receive a shot in the backside. Didn't believe it at first but after one good recommendation I believed him on a second. Thankfully my providers over the years agreed to continue them. Compounding pharmacies are different from the regular ones as they concentrate on just compounds. At first mine did both but when it caught on they went to compound only.

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