Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

My neuropathy in my Feet & Legs has been getting progressively sores over the past few months. I live a sedimentary live style and I know I should walk more; but with the Neuropathy and weight problems I find very difficult to walk any distance with out either needing to rest. [1/2 kl. is about all I can manage] So I have taken to using a Mobility Scooter around my town [too large to use in stores]. I use to use a Walker before things got as bad as has. I would like to know if there any medications /or devises that I could use to make my mobility better.
I try to get sleep, but sometimes its just not possible without tiring my self out [Hot Baths etc.] So any recommendations would be greatly appreciated. By the way I live in British Columbia, Canada T.Y Leonard

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Profile picture for leonard1946bowring @leonard1946bowring

My neuropathy in my Feet & Legs has been getting progressively sores over the past few months. I live a sedimentary live style and I know I should walk more; but with the Neuropathy and weight problems I find very difficult to walk any distance with out either needing to rest. [1/2 kl. is about all I can manage] So I have taken to using a Mobility Scooter around my town [too large to use in stores]. I use to use a Walker before things got as bad as has. I would like to know if there any medications /or devises that I could use to make my mobility better.
I try to get sleep, but sometimes its just not possible without tiring my self out [Hot Baths etc.] So any recommendations would be greatly appreciated. By the way I live in British Columbia, Canada T.Y Leonard

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Welcome Leonard @leonard1946bowring, I don't have sores on my feet and legs but I do have issues walking any distance due to my back. It has gotten better for me after losing weight but that was just part of my problem. I have a home exercise bike that I try to use 30 to 45 minutes 3 or 4 days a week to help with leg strength. An inactive lifestyle is definitely not your friend if you have neuropathy. Here is some information from the Foundation for Peripheral Neuropathy that might be helpful:

-- Exercise + Physical Therapy For Neuropathy: https://www.foundationforpn.org/living-well/lifestyle/exercise-and-physical-therapy/

You mentioned progressive sores on your feet and legs. Are you diabetic? Have you seen a doctor about the sores on your feet and legs?

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Profile picture for silvern12 @silvern12

I got an email each day asking for any reactions and I told them and asked for it to be reported Who knows if did

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I was healthy 54 got the first shot moderna and 5 days later got covid. I was set to get the second vaccine called cdc and a doctor asked if it would be ok they advised yes. I received the 2 nd shot and developed neuropathy 4 days later. I am currently still experiencing neuropathy and no one can figure it out why

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Profile picture for dgneal13 @dgneal13

I was healthy 54 got the first shot moderna and 5 days later got covid. I was set to get the second vaccine called cdc and a doctor asked if it would be ok they advised yes. I received the 2 nd shot and developed neuropathy 4 days later. I am currently still experiencing neuropathy and no one can figure it out why

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I cant be sure but it all started after the shot and when they asked me on surveys to told them but never follow up.

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Someone posted a video somewhere on Mayo Connect that was done in the last couple of years about peripheral neuropathy from chemo. It was hosted by a doctor from Johns Hopkins, and a Dr. Stephanie Geisler from Washington university. It talked about Cymbalta, and many other studies. I need this link again! and can't find it.

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Profile picture for ladytnac @ladytnac

Someone posted a video somewhere on Mayo Connect that was done in the last couple of years about peripheral neuropathy from chemo. It was hosted by a doctor from Johns Hopkins, and a Dr. Stephanie Geisler from Washington university. It talked about Cymbalta, and many other studies. I need this link again! and can't find it.

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Welcome @ladytnac, I posted the Webinar: Chemo-Induced Peripheral Neuropathy video in another discussion here - What helps the symptoms of Small Fiber Neuropathy?: https://connect.mayoclinic.org/comment/666818/.

It was a video sponsored by the Foundation for Peripheral Neuropathy. You can find all of their previous videos here - https://www.foundationforpn.org/resource-library/.

Do you have chemo induced neuropathy?

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Thank you, John. I ultimately found the video on youtube, but since I am a new member to this site, it won't let me its URL links. It is one of the FPN videos from 2020 on CIPN called Chemo-Induced Peripheral Neuropathy.
It was an informative video. I will be having breast surgery due to Triple Negative Apocrine Cancer, then starting chemo in a month doing a regimen that include Taxene drugs like Taxol or Taxotere (sp?) depending on the result of my sentinel node biopsy. I know that CIPN is highly probable, especially since I have a little in my foot already, before even beginning chemo! I am so very frightened of all the side effects in addition to the surgery and the cancer... It has been less than 2 months since I have been diagnosed with cancer.

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Profile picture for chezpl69 @chezpl69

Hi. Did you have your MRI and vaccine close to each other?

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yes the MRI was in December and the Moderna in January - 4 weeks apart

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Profile picture for ladytnac @ladytnac

Thank you, John. I ultimately found the video on youtube, but since I am a new member to this site, it won't let me its URL links. It is one of the FPN videos from 2020 on CIPN called Chemo-Induced Peripheral Neuropathy.
It was an informative video. I will be having breast surgery due to Triple Negative Apocrine Cancer, then starting chemo in a month doing a regimen that include Taxene drugs like Taxol or Taxotere (sp?) depending on the result of my sentinel node biopsy. I know that CIPN is highly probable, especially since I have a little in my foot already, before even beginning chemo! I am so very frightened of all the side effects in addition to the surgery and the cancer... It has been less than 2 months since I have been diagnosed with cancer.

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@ladytnac, I can understand your fear of worsening neuropathy or that the damage may be irreversible. Your chemo team will closely monitor your accumulative neuropathic side effects and lower the dose if necessary to avoid permanent damage. Be sure to let them know that you already have some neuropathy or if you have diabetes or other conditions that make you prone to neuropathy.

I invite you to also follow the Breast Cancer group here: https://connect.mayoclinic.org/group/breast-cancer/

There are many discussions that will interest you, but here are 2 specific discussions to get you started:
- Breast Cancer and Neuropathy https://connect.mayoclinic.org/discussion/just-to-say-hello/
- Triple Negative Breast Cancer: What treatments are you having? https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer/

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Profile picture for revisl @revisl

yes the MRI was in December and the Moderna in January - 4 weeks apart

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I had 2 MRI in December and the Pfizer vaccine in February. Unfortunately MY experience with first shot was negative. I'm going to make this short. I started with burning, after many blood tests that didn't show anything wrong, I finally had a biopsy for SFN which came back positive and it's been hell since then.

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