Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

What is Evusheld injection? Never heard about it.

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Profile picture for lk61 @lk61

Ms. Young, I understand your point and it is valid, but there is a problem when the standard approach of entrusting one’s own physician with your illness isn’t working. By and large, most of the people on this thread are being ignored or placated by their physicians, or their physician just doesn’t know how to help them. You begin to lose trust in the only system of care you have, and VAERS is part of the same system. Additionally, VAERS is only one source of data. Other evidence needs to be considered as well. What I wish is that the few who do seem to have docs who believe them and really are trying to figure this out would ask those physicians to take this problem forward and increase awareness of it through their professional channels. I have personally asked my own neurologist, who practices at an academic medical center, to gather some of his colleagues to research these vaccine reactions. Unfortunately, he does not fall into the group who is motivated to help.

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Seems that doctors who "raise their hand" to say something are silenced, just like people on Facebook who say ANYTHING about their PERSONAL EXPERIENCE with C-19 vax are locked out. I've been locked out of my FB account TWICE just for even suggesting this might be the cause of my neuropathy, brain fog, and mobility issues.

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I had Evusheld injections. No side effects. I have RA, and on Rituxan Infusions for treatment . I had all COVID Vaccines. 2 initial, then 2 Boosters. The I was informed that because of the Rituxan, I did not have any antibodies ( had to have bloodwork to determine) Rheumatologist recommended Evusheld. As a side note.. within 8 days after my second booster, I got Shingles.. I now have Post Herpetic Neuralgia. Severe Chronic nerve pain .

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Profile picture for txsongbird @txsongbird

Seems that doctors who "raise their hand" to say something are silenced, just like people on Facebook who say ANYTHING about their PERSONAL EXPERIENCE with C-19 vax are locked out. I've been locked out of my FB account TWICE just for even suggesting this might be the cause of my neuropathy, brain fog, and mobility issues.

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Your experience is so sadly true for so many people. Are you aware of a website called Children's Health Defense? Although they vehemently advocate for children and their medical rights, they are a great source of information about what is going on with VAERS, how the CDC has played with the numbers of actual Covid deaths, and doctors who speak out against the vaccine. They always have interesting articles on people who have been physically, and all too often irreparably damaged by the vaccine. It's very interesting reading. The founder of Children's Health Defense has spoken his mind, and therefore has been banned from Twitter, FB, and just about every social media outlet in existence. He's even had family members cut ties with him because he has spoken out on the subject. Needless to say, I have a lot of admiration for him.

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Is there any risk in having too many Covid antibodies? Had a Moderna booster at the end of October, 2021. Within 2 months, I developed neuropathy, and was diagnosed with vaccine induced neuropathy. Now scheduled for Evusheld in early September. Just read about severe Covid cases after an overproduction of autoantibodies after infection. Are autoantibodies completely different from vaccine produced antibodies and monoclonal antibodies? I would really appreciate professional advice on this matter.
Thank you.

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Profile picture for detc @detc

Is there any risk in having too many Covid antibodies? Had a Moderna booster at the end of October, 2021. Within 2 months, I developed neuropathy, and was diagnosed with vaccine induced neuropathy. Now scheduled for Evusheld in early September. Just read about severe Covid cases after an overproduction of autoantibodies after infection. Are autoantibodies completely different from vaccine produced antibodies and monoclonal antibodies? I would really appreciate professional advice on this matter.
Thank you.

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Detc, this is a good question for your doctor if you are looking for professional advice.

Here’s a good article that helps explain:
- Antibodies From Vaccines vs. Antibodies From Natural Infection https://www.verywellhealth.com/antibodies-from-vaccines-and-from-natural-infection-5092564

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Definitely after my first shot of Pfizer: almost immediately both calves started tingling but that calmed down after 20 minutes. I had SFN for many years prior. But since the vax I do feel worse.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Detc, this is a good question for your doctor if you are looking for professional advice.

Here’s a good article that helps explain:
- Antibodies From Vaccines vs. Antibodies From Natural Infection https://www.verywellhealth.com/antibodies-from-vaccines-and-from-natural-infection-5092564

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Thank you for this article, Colleen. It helps to read and understand for those of us who have been severely (negatively) affected by the vaccine(s). I'm wondering if the neurology dept at Mayo will consider doing a study? While this support group chat is all very helpful (sharing of info, articles, patients sharing what supplements and meds have helped them recover), I would love to know if any of the docs at Mayo will ever give advice, are working on solving any of the side effects or if that is not a possibility? Some of us do not have health insurance that will cover going to a neurologist....or it is prohibitively expensive. The vaccine has caused pain and damage that is not being addressed by the medical community.......some doctors are not even admitting that it is the vaccine that caused symptoms. Lives are altered and some ruined. There are doctors (one famous doc in Denmark) who are helping people - will Mayo with its reputation and resources ever step in and provide more than a support chat? Thank you, Jen

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Profile picture for Colleen Young, Connect Director @colleenyoung

Detc, this is a good question for your doctor if you are looking for professional advice.

Here’s a good article that helps explain:
- Antibodies From Vaccines vs. Antibodies From Natural Infection https://www.verywellhealth.com/antibodies-from-vaccines-and-from-natural-infection-5092564

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Thank you for sharing the article, Colleen.

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Profile picture for jgerth @jgerth

Thank you for this article, Colleen. It helps to read and understand for those of us who have been severely (negatively) affected by the vaccine(s). I'm wondering if the neurology dept at Mayo will consider doing a study? While this support group chat is all very helpful (sharing of info, articles, patients sharing what supplements and meds have helped them recover), I would love to know if any of the docs at Mayo will ever give advice, are working on solving any of the side effects or if that is not a possibility? Some of us do not have health insurance that will cover going to a neurologist....or it is prohibitively expensive. The vaccine has caused pain and damage that is not being addressed by the medical community.......some doctors are not even admitting that it is the vaccine that caused symptoms. Lives are altered and some ruined. There are doctors (one famous doc in Denmark) who are helping people - will Mayo with its reputation and resources ever step in and provide more than a support chat? Thank you, Jen

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I am seeing a mayo neurologist in two weeks and I will be asking his opinion on the vaccine because that’s when my neuropathy began and got worse with booster.

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