Chronic Pain members - Welcome, please introduce yourself

@jmb73 It's my pleasure to read your post, Jane. That's what Connect is here for, to listen, support, encourage and share positive experiences to help others. It's difficult to face multiple chronic issues. I'm glad you have an upcoming appointment August 15th with your neuro-spine surgeon and can establish priorities. Your fall could have very well had repercussions on your back.

Keep moving as best you can despite symptoms. Physical therapy is great for teaching how to safely move and provide home exercises. There is so much you can do to keep active, even from sitting in a chair or while you are laying in bed. For now using a scooter may the best way for you to shop which is okay...hey, at least you're getting out of the house, right? But, keep the faith and think positive that you'll do the best you can to not be in a wheelchair.

Good luck at your appointment. Will you keep us updated on how it goes?

Hello Joan, @jmb73 just checking in to see how your appointment went with the neuro-spine surgeon on the 15th? I hope well. Is there a pain management plan? Can you begin PT yet?

Hi everyone just wanted to reach out and see if anyone here has crps I was diagnosed with it April of this year after a tri mal ankle fracture and wrist fracture and have been struggling with the worst pains I've ever felt and need to find support groups or chats to talk about my condition

Hello @paulieoneill4979, Welcome to Connect. There are several other discussions on complex regional pain syndrome that you might want to read through and meet other members who have shared their experiences.

-- Want to talk with others. Have you found relief from CRPS?: https://connect.mayoclinic.org/discussion/crps-2/
-- New to CRPS complex regional paint syndrome: want to talk: https://connect.mayoclinic.org/discussion/crps-complex-regional-pain-syndrome/
-- CRPS - anyone suffering with complex regional pain syndrome: https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/

Did your doctor suggest any treatments that might help?

Thank you gonna check it out and see what kind of support is available

Anyone here dealing with daily persistent headaches with possible spinal CSF leaks?

I suffer from chronic, almost daily migraine, as well as gi issues that cause severe abdominal along with other symptoms. Other health issues, too.

Yes! I am! Just had another MRI. Brain seems to be lowering into the top of my spinal cord. Chronic daily headaches are fatiguing me...ugh. Neurologist wants to do lumbar puncture to check for CSF leak, but I'm not sure I want to go thru that. Lin

I've had 2 lumbar punctures. They are not bad. They numb your back. Do it. Only take a short time and if done right, bearable. No issues after either. I've also had 5 blood/glue patches in my spine that were worse and coming up are 2 more tests in my spine.
Mikayla

As a healthcare professional (retired) there is no other way to assess a spinal fluid leak without an LP. It’s typically a pretty simple procedure for both patient and doctor. I’m curious about your resistance to have it done?